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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Ken Harwood
The author was diagnosed in 2019 with a low-grade non-Hodgkin lymphoma and this is his day-by-day account of his chemotherapy journey over a six month period.
Macmillan Cancer Support
This booklet is about colon cancer. The colon is part of the bowel. We have separate information about small bowel cancer, rectal cancer and anal cancer. The booklet explains what colon cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes colon cancer.
Macmillan Cancer Support
This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
Christie Hospital NHS Trust
Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.
Roy Castle Lung Cancer Foundation
This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.
Roy Castle Lung Cancer Foundation
This booklet explains what small cell lung cancer is, and addresses common questions and concerns.
Orchid – Fighting Male Cancer
This leaflet describes the use of radiotherapy and chemotherapy to treat cancer that has spread beyond the penis to other parts of the body.
Orchid – Fighting Male Cancer
This leaflet describes how chemotherapy may be used to treat localised and non-localised testicular cancer, and the possible side-effects..
Pancreatic Cancer UK
This fact sheet is for anyone who wants to know more about treating pancreatic cancer with chemotherapy. It explains how chemotherapy is given, and the different drugs that may be used. It also explains the main side effects of chemotherapy and how these can be managed and how to look after yourself and get support during chemotherapy..
Myeloma UK
Melphalan is a chemotherapy drug used in the treatment of myeloma. It belongs to a class of chemotherapy drugs called alkylating agents.This factsheet describes what it is, how it works, how it is given, and possible side-effects.
Pancreatic Cancer UK
The newly diagnosed pack is for people recently diagnosed with pancreatic cancer. It contains the following publications: An overview of diagnosis and treatment, Diet and pancreatic cancer, Chemotherapy for pancreatic cancer, We're here for you leaflet and our Patient Charter. Depending on your situation we will also include: Surgery for operable pancreatic cancer, Stents and bypass surgery or Caring for someone with pancreatic cancer.
Adrenocortical Cancer Support and Information
Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.
Myeloma UK
Dexamethasone is a steroid drug used in the treatment of myeloma. It belongs to a class of steroids called glucocorticoids. This factsheet describes what it is, how it works, how it is given, and possible side-effects.
Myeloma UK
Bendamustine is an alkylating agent that may be used to treat people with myeloma. This factsheet describes what it is, how it works, how it is given, and possible side-effects.
Macmillan Cancer Support
Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.
Myeloma UK
Melflufen is a new drug being investigated in the treatment of myeloma. It is a derivative of the chemotherapy drug melphalan. This factsheet explains what melflufen is, how it works, and the current evidence to support its use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of melflufen in the UK.
Lymphoma Action
Peripheral neuropathy may be a side-effect of chemotherapy. This factsheet describes peripheral neuropathy, the chemotherapy drugs that most commonly cause it, the symptoms and diagnosis, reducing the risk and managing the symptoms.
Lymphoma Action
This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations
Myeloma UK
Cyclophosphamide is a chemotherapy drug used in the treatment of myeloma. It belongs to a class of chemotherapy drugs called alkylating agents. This factsheet describes what it is, how it works, how it is given, and possible side-effects.
Lymphoma Action
This comprehensive booklet discusses Hodgkin lymphoma in detail.
Lymphoma Action
Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.
Roy Castle Lung Cancer Foundation
If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available.
Lymphoma Action
This factsheet has information about the different treatments used for skin (cutaneous) lymphomas. It covers the following: How are skin lymphomas treated?; Active monitoring; Topical (skin-directed) treatments; Light treatment (phototherapy); Radiotherapy; Systemic (whole body) treatments; Stem cell transplants; Research and future treatments.
Lymphoma Action
This booklet describes autologous stem cell transplant in detail.
Penny Brohn UK
General advice to help you eat well during chemotherapy and radiotherapy; the challenges can be similar but where the information is specific to chemotherapy or radiotherapy, this will be stated. There’s no one way of eating that’s right for everyone so the general advice in this booklet will need to be adapted to you and your situation. It’s not intended to replace any advice given to you by a member of your healthcare team.
Lymphoma Action
Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).
Lymphoma Action
This booklet covers what treatment is, what chemotherapy, radiotherapy and stem cell transplants are, and what side effects you might get from treatment.
Breast Cancer Now
This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman’s fertility, and possible ways of preserving fertility. It also includes information about pregnancy after a diagnosis of breast cancer, and permanent infertility.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain treatments if you can’t have surgery, including chemotherapy and stents.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Macmillan Cancer Support
Oxaliplatin is a chemotherapy drug used to treat bowel, pancreatic, and stomach cancer, cancer and cancer of the oesophagus. It may be used to treat other cancers.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain surgery to remove pancreatic cancer.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Bowel Cancer UK
This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes.
Penny Brohn UK
This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.
Macmillan Cancer Support
This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.
Macmillan Cancer Support
This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help.
Macmillan Cancer Support
This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support|Mummy's Star
This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you.
Macmillan Cancer Support and British Heart Foundation
Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.
Macmillan Cancer Support
This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet explains how certain cancer treatments can cause changes to your appearance. It is for people who have had changes to their skin, nails and hair because of cancer treatment. It gives advice on how to manage these changes to help you feel more like you again. We hope it helps you deal with some of the questions or feelings you may have.
Leukaemia Care
Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.
Macmillan Cancer Support
This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.
The Brain Tumour Charity
This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.
Macmillan Cancer Support
Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).
Macmillan Cancer Support
This booklet is about how cancer and its treatment can affect your sex life. It is for anyone who needs information about this before, during or after cancer treatment. This information is for you whether or not you are in a relationship or having sex. We hope you find it helpful whatever your sexual orientation or gender.
The Royal Marsden NHS Foundation Trust
This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.
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