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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 33

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'Healthy eating. Nutritional guidelines for people with a colostomy'

Healthy eating. Nutritional guidelines for people with a colostomy (June 2019)

Colostomy UK

Advice on diet and nutrition following a colostomy.

Cover image of 'Colostomy irrigation. An introduction'

Colostomy irrigation. An introduction (July 2019)

Colostomy Association

This leaflet explains the advantages and disadvantages of colostomy irrigation as an alternative to a stoma pouch. It describes who can and cannot irrigate, when irrigation can start, how it is taught, the equipment and supplies required, and how to irrigate.

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Stoma reversal'

Stoma reversal (July 2019)

Colostomy UK

This leaflet describes the different types of stoma and the surgical techniques involved in their reversal. It also considers the advantages and possible problems associated with a reversal and suggests a simple checklist to ensure you make the appropriate decision for you.

Cover image of 'Parastomal hernias'

Parastomal hernias (September 2019)

Colostomy Association

This leaflet explains what a parastomal hernia is, the causes, the complications and problems it can cause and the treatment options. It has practical hints and tips for managing a parastomal hernia and for reducing the risk. Includes the personal experiences of four ostomates.

Cover image of 'Rectal discharge following stoma surgery'

Rectal discharge following stoma surgery (July 2019)

Colostomy UK

This leaflet explains why rectal discharge might occur following a colostomy and describes some of the management techniques and coping mechanisms that might help.

Cover image of 'Pain and discomfort following stoma surgery'

Pain and discomfort following stoma surgery (July 2019)

Colostomy Association

This leaflet describes what may cause pain and discomfort following Hartmann's procedure or loop stoma or abdomino-perineal excision of the rectum (APER), coping strategies and treatments available. Patients share their experiences.

Cover image of 'Living with a stoma. Information for ostomates and their carers'

Living with a stoma. Information for ostomates and their carers (July 2019)

Colostomy UK

This booklet describes what happens after the operation, how to look after a stoma, the early days at home, and getting back to normal. It also advice on exercise and what to eat.

Cover image of 'Colonoscopy through the stoma - a patient's perspective'

Colonoscopy through the stoma - a patient's perspective (June 2019)

Colostomy UK

This leaflet describes how a colonoscopy through the stoma is carried out, the preparation beforehand (bowel cleansing), what happens afterwards and the possible risks. It also explains what polyps are.

Cover image of 'Ovarian cancer and stomas'

Ovarian cancer and stomas (June 2019)

Target Ovarian Cancer|Colostomy UK

Our expert mini guide is for you if you have a stoma or may get one after ovarian cancer surgery. Based on the latest evidence and full of insights from people who understand what you're going through, this guide explores what a stoma is and does and offers practical tips for overcoming common concerns. 

Cover image of 'Active ostomates. Sport and fitness after stoma surgery'

Active ostomates. Sport and fitness after stoma surgery (November 2019)

Colostomy UK

Adapting to life with a stoma can be challenging and the thought of exercise may well be the last thing on your mind as you recover from surgery. This booklet has advice on exercises to try and how to manage your stoma while exercising or playing sport.

Cover image of 'Bowel cancer'

Bowel cancer (2019)

Guts UK

Information about bowel cancer, including causes, symptoms, diagnosis, treatment options, and secondary bowel cancer.

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (November 2018)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'Clothing'

Clothing (March 2017)

Colostomy UK

Details of companies that supply speciliast clothing for people with a stoma.

Cover image of 'Deodorants'

Deodorants (May 2017)

Colostomy UK

Details of companies that supply deodorants for people with a colostomy.

Cover image of 'Leakage'

Leakage (May 2017)

Colostomy UK

Details of products and suppliers that can help with problems of leakage for people with a stoma.

Cover image of 'Bed protection'

Bed protection (May 2017)

Colostomy UK

Details of suppliers of bed protection products for people with a stoma.

Cover image of 'Pancaking'

Pancaking (May 2017)

Colostomy UK

Details of companies that supply lubricating deodorants.

Cover image of 'Manufacturers'

Manufacturers (May 2017)

Colostomy UK

Details of companies that manufacture stoma products.

Cover image of 'Bag covers'

Bag covers (May 2017)

Colostomy UK

Details of companies that supply bag covers.

Cover image of 'Skin care'

Skin care (May 2017)

Colostomy UK

Details of companies that supply skin products to help people with a stoma manage their condition.

Cover image of 'Coping with a stoma when you have a disability'

Coping with a stoma when you have a disability (March 2017)

Colostomy UK

Advice for people with a stoma who also have a disability, for example visual impairment, reduced dexterity, or limited mobility. Covers topics such as water bills, benefits, and organisations that can provide help.

Cover image of 'Support garments'

Support garments (May 2017)

Colostomy UK

Details of companies that supply garments to support a hernia.

Cover image of 'Solidifying agents'

Solidifying agents (May 2017)

Colostomy UK

List of solidifying agents and the companies that supply them.

Cover image of 'Large bag manufacturers'

Large bag manufacturers (May 2017)

Colostomy UK

Details of companies that supply large bag covers.

Cover image of 'Travel insurance'

Travel insurance (May 2017)

Colostomy UK

Details of insurance companies that specialise in providing cover for ostomates.

Cover image of 'Medical adhesive removers'

Medical adhesive removers (May 2017)

Colostomy UK

Details of products for people with a stoma.

Cover image of 'Stoma support organisations'

Stoma support organisations (May 2017)

Colostomy UK

Details of support organisations for people living with a stoma.

Cover image of 'Wind, ballooning and odour'

Wind, ballooning and odour (May 2017)

Colostomy UK

Guidance for colostomates on wind, ballooning and odour. Describes what may cause wind, foods to avoid, tips to help reduce wind, what to do if the bag keeps ballooning, and what to do about odour.

Cover image of 'Seat belt protection and extenders'

Seat belt protection and extenders (May 2017)

Colostomy UK

Details of companies that supply seat belt protection and extenders.

Cover image of 'It's not over till the bag lady rings'

It's not over till the bag lady rings (2007)

Spring Hill

On the basis of comments left on the author's blog, this book should appeal to cancer patients, survivors and those who care for people with cancer - healthcare professionals as well as friends and family - and anyone else wanting an insight into this wretched disease. Cancer sufferers not only have to deal with big issues - like confronting their own mortality - they have to cope with the everyday as well - the effect on relationships, changes in diet, whether or not to replace the dishwasher - and in the case of bowel cancer, perhaps a colostomy or ileostomy - while all the time trying to remain positive. Based on the author's online diaries, this book will enable the reader to get inside the mind of a cancer patient and discover what it feels like to have to cope with this disease. (Publisher)

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