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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
CLIC Sargent
This booklet has been written with the help of bereaved parents. It’s designed to help parents think about what’s important to sort out, when, and how to make a start.
CLIC Sargent
This booklet has been written using the real experiences of bereaved parents.
Jessica Kingsley Publishers
Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)
Bone Cancer Research Trust
Harry has an Operation is written for parents, carers and healthcare professionals to read with children in order to help them understand their sarcoma and its treatment. It has been produced especially for young patients who require limb-sparing surgery or amputation.
Children's Cancer and Leukaemia Group
This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.
Children's Cancer and Leukaemia Group
Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.
Bone Cancer Research Trust
This booklet for children and young people explains what cancer is, and describes the different types of bone cancer and how osteosarcoma is treated. It also covers topics such as body image and what happens after treatment. Includes a glossary of medical terms.
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Langerhan's cell histiocytosis is, and briefly describes the signs, symptoms, tests and treatment.
Bone Cancer Research Trust
This booklet for children and young people explains what cancer is, and describes the different types of bone cancer and how Ewing sarcoma is treated. It also covers topics such as body image and what happens after treatment. Includes a glossary of medical terms.
Children's Cancer and Leukaemia Group
This factsheet is written for young people with cancer, or parents of a child with cancer, who are receiving total body irradiation (TBI), as part of their conditioning therapy for a stem cell transplant (SCT). It explains TBI, including where you will have your radiotherapy, how the radiotherapy will be given and the side effects that may happen.
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