Publications directory

Understanding cancer of the ovary, fallopian tube and peritoneum (July 2018)

Macmillan Cancer Support

This booklet is about cancer of the ovary, fallopian tube and peritoneum. It is for anyone who has been diagnosed with one of these types of cancer. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of these cancers, and  how they are diagnosed and treated. It also has information about emotional, practical and financial issues. <!-- ?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ? -->

Understanding womb (endometrial) cancer (July 2018)

Macmillan Cancer Support

This booklet is about a type of womb cancer called endometrial cancer. It is for anyone who has been diagnosed with this type of cancer. There is also information for carers, family members and friends. The booklet explains how these cancers are diagnosed and treated. It gives information about coping during and after treatment.

In our own words. Parents talk about life after their child has died of cancer (January 2018)

CLIC Sargent

This booklet has been written for families whose children have cancer. It includes sections on the circles of grief, changes in grief over time, how relationships are affected, the dual process model of coping with grief, remembering your child, spirituality, and dealing with other people's responses. The text is interspersed with quotes from people whose child has died.

The cancer guide for young people. What to expect when you're affected by cancer (February 2018)

Macmillan Cancer Support

A booklet for young people aged 12-25 years. It aims to help answer some of their questions and to provide tips and guidance. It explains what cancer is and how it can be treated. It also gives practical tips about coping with treatment, relationships and sorting out practical things like school, university, work, and money.

Childhood brain tumours (February 2018)

The Brain Tumour Charity

This factsheet briefly describes brain tumours in children, the risk factors, diagnosis, treatment options and long-term side effects. It also describes the different types of brain tumours in children.

When your child won't get better. Your child's care, emotions, relationships and practicalities at the end of their life: a guide for parents. (July 2018)

CLIC Sargent

This booklet has been written using the real experiences of bereaved parents.

Practical tasks after your child dies. What you might need to sort out and how to do it (July 2018)

CLIC Sargent

This booklet has been written with the help of bereaved parents. It’s designed to help parents think about what’s important to sort out, when, and how to make a start.

Echo's sister (2018)

HarperCollins

Twelve-year-old El has planned on making her first week at a new school fantastic. She won’t go by her given name, Laughter. She’ll sit in the back of the classroom where she can make new friends. She won’t even have time to think about all the fun her old friends are having without her. Everything will be great. But when her dad picks her up after school and tells her that her younger sister, Echo, has a life-threatening illness, her world is suddenly turned upside down. And with her parents now pressed for time and money, El feels lost and powerless. Then she befriends Octavius, the only other kid in school who gets what she’s going through. As El begins to adjust to her new life, she soon finds that maybe a little hope and a lot of love can overcome any obstacle. (Publishers)

Understanding neutropaenia. A colouring book (November 2018)

This illustrated booklet is designed to help children and their parents understand the management of chemotherapy induced neutropaenia. Available only as an interactive book on iTunes and Amazon Kindle, or as a PDF download. Every purchase includes free access to a black-and-white version for children to colour in.  

Follow the child. Planning and having the best end-of-life care for your child (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)