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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Macmillan Cancer Support
This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.
Anthony Nolan
A booklet for anyone about to have a stem cell or bone marrow transplant. It will help you prepare for your stay in one of your hospital or transplant centre’s protective isolation units. It’s been written with guidance and advice from patients and specialist healthcare professionals.
Macmillan Cancer Support
Ifosfamide is a chemotherapy drug used to treat different cancers including testicular cancer and some types of soft tissue and bone sarcoma. It may also be used to treat other cancers.This factsheet describes how it is given and the possible side-effects.
Polygon (Birlinn Imprint)
How do you start a new life when the person you love is about to die? At the age of thirty-six, Gordon Darroch's wife was diagnosed with breast cancer. It was a devastating blow just as he, and their two children with autism, were preparing to move to her native Holland. Eighteen months later, as their plans seemed to be back on course, came the second blow: Magteld was terminally ill and possibly had only a few months to live. As her health rapidly deteriorated, they became caught up in a race against time to get a dying mother home and give their children a future in a country they hardly knew. How could they build a new life in the midst of grief and loss? How would their two sons adjust to such enormous changes? And what would remain of Magteld once she was gone? All the Time We Thought We Had is a story of love and loss and a meditation on grief and memory. It's about how events shape our lives and how we cope with them. And it raises important questions about what we value in life and the legacies we leave behind. (Publisher)
Macmillan Cancer Support
This booklet answers questions about the causes, symptoms, diagnosis, staging, and treatment of chronic lymphocytic leukaemia. It also covers feelings, self-help, and practical and financial support. Includes details of useful organisations and resources.
Macmillan Cancer Support
Malignant spinal cord compression is a rare condition that affects people with certain cancers that have spread to the bones in the spine or that started in the spine. This factsheet describes the symptoms.
Graffeg Limited
'There's only one mum quite like me. I wish that there were two. I'd have more time to spend And I would spend it all with you.' Most of us can't imagine having the time we spend with our children or loved ones cut short, but this is the reality being faced by mother of two Lisa Wells, who was diagnosed with terminal bowel and liver cancer in December 2017 at the age of 31. The Only One of Me project grew from Lisa's determination to leave a lasting legacy for her daughters and her desire to help other families rally against the difficulties of loss. Only One of Me is the product of Lisa's lifelong love of writing and a newfound friendship with award-winning children's author Michelle Robinson. The two collaborated on this tender and moving rhyming poem, with charming illustrations by Catalina Echeverri, which is both a love letter to Lisa's own daughters and a testament to the unwavering strength of parental love, a timeless message for families facing the challenges of bereavement. (Publisher)
Macmillan Cancer Support
This booklet describes cancer of the cervix, how it develops, the symptoms, how it is diagnosed, further tests following diagnosis, and the treatment options. It also explores the emotional aspects. Includes details of the financial help and benefits available, and useful organisations
Macmillan Cancer Support
Information from the Macmillan Cancer Support website translated into Polish. MGUS (monoclonal gammopathy of unknown significance) is a non-cancerous condition but there is a small risk it developing into a blood cancer, such as myeloma or lymphoma. This information explains what MGUS is, the causes, diagnosis, and treatment and follow up.
Macmillan Cancer Support
This booklet describes acute lymphoblastic leukaemia, its causes, symptoms, diagnosis, and treatment options. It also discusses issues such as feelings, talking to children, self-help, and practical and financial support. Includes details of useful organisations and other resources.
Macmillan Cancer Support
A translation of selected pages (6-39: The pelvis; radiotherapy; how radiotherapy might affect you; tiredness; effects on the skin, bladder, bowel, vagina; finding a toilet in a hurry; effects on sex life and fertility; early menopause) from Macmillan Cancer Support’s booklet “Pelvic radiotherapy in women. Managing the side effects" [MAC13944_E03_N].
Macmillan Cancer Support
This booklet is about cancer of the larynx (voicebox), which is also called laryngeal cancer. It is for anyone who is having tests for cancer of the larynx, or anyone who has been diagnosed with it. There is also information for carers, family members and friends. It explains the signs and symptoms of cancer of the larynx. It also explains how it is diagnosed and treated, and ways to cope. This includes your feelings, relationships, work and finances.
Leukaemia Care
Essential thrombocythaemia (ET) belongs to a group of conditions called myeloproliferative neoplasms (MPNs), which also includes polycythaemia vera and myelofibrosis. ET is a chronic condition that is characterised by too many platelets (blood cells that helps the blood clot) in the blood. This booklet explains what ET is, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments.
British Association of Dermatologists
This factsheet aims to help you understand the risk of developing skin cancer after receiving an organ transplant. It explains the importance of early detection and treatment of skin cancers. It describes the main types of precancerous and cancerous skin growths, how you can reduce the risk of getting skin cancer, and how skin cancer can be treated.
Macmillan Cancer Support
This is a translation of information from the Macmillan Cancer Support website. It describes the GemCis chemotherapy regimen to treat many cancers, the drugs, how treatment is given, and possible side-effects.
Macmillan Cancer Support
This is a translation of information from the Macmillan Cancer Support website. It describes the GemCis chemotherapy regimen to treat many cancers, the drugs, how treatment is given, and possible side-effects.
Macmillan Cancer Support
This booklet explains what testicular cancer is, the symptoms, diagnosis, treatment, and surgery. It also has sections on sexuality and fertility (including sperm storage), emotions, self-help and support. Includes details of useful organisations.
Macmillan Cancer Support
This is a translation of information from the Macmillan Cancer Support website. It describes the GemCis chemotherapy regimen to treat many cancers, the drugs, how treatment is given, and possible side-effects.
North Staffordshire Press
My Daddy Is My Superhero was inspired by Michaelagh's own experience of explaining her husband's brain tumour illness to her eldest son, and is intended to help begin conversations surrounding serious illness and death with young children. At its core, My Daddy Is My Superhero is about the loving relationship between a little boy and his dad. It is a story about love, fun, beauty, loss, sadness, memories and celebration. (Publisher)
Macmillan Cancer Support
Carboplatin is a chemotherapy drug used to treat ovarian and lung cancer. It may also be used to treat other cancers.
Macmillan Cancer Support
This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.
Macmillan Cancer Support|Winston's Wish
This booklet is written with the childhood bereavement charity, Winston’s Wish. It’s for parents or guardians who are near the end of life and aims to help you prepare and talk to a child or children about your death. Partners, grandparents and close family members may find it useful, too. It may also help you talk to children who are already dealing with the death of a family member.
Macmillan Cancer Support
This booklet for anyone who is having tests for mesothelioma or has been diagnosed with it. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of pleural and peritoneal mesothelioma. It explains how they are diagnosed and how they may be treated. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.
Macmillan Cancer Support
This booklet gives information about early cancer of the prostate gland, i.e. cancer that has not spread into the surrounding tissues or to other parts of the body. It describes the prostate gland and prostate cancer, the cause of prostate cancer, the symptoms, PSA testing and other diagnostic tests, the grading and staging of prostate cancer, and the treatment options. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.
Macmillan Cancer Support
This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.
Macmillan Cancer Support
This booklet has information about soft tissue sarcomas, including the different types, the symptoms, diagnosis, staging and grading, and treatment options. It also discusses feelings and how your relationships, work and finances might be affected.
Macmillan Cancer Support
This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.
Macmillan Cancer Support
This booklet is about a type of kidney cancer called renal cell cancer. It is for anyone who has been diagnosed with kidney cancer, or is having tests for it. There is also information for carers, family members and friends. The booklet explains how renal cell cancer is diagnosed and treated. The booklet also talks about your feelings when you are diagnosed with cancer. You can find practical advice on dealing with work and finances towards the end of the booklet.
Macmillan Cancer Support
This booklet is for women who are having, or are going to have, radiotherapy to the pelvic area. The pelvic area is the lower part of the tummy (abdomen), between the hips. The booklet explains: side effects that may happen during, or shortly after, pelvic radiotherapy; how side effects can be controlled or reduced; what you can do to help yourself.
Macmillan Cancer Support
This booklet is for anyone who has been diagnosed with locally advanced prostate cancer. This is when prostate cancer has grown outside the prostate and may have started to spread into tissue or organs close by. There is also information for family members and friends. The booklet explains the different treatments for locally advanced prostate cancer and their side effects. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.
Macmillan Cancer Support
This booklet has information about the side effects of pelvic radiotherapy during treatment. There is a separate booklet for men experiencing late effects (Managing the late effects of pelvic radiotherapy in men).
Macmillan Cancer Support
A booklet for men who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.
Macmillan Cancer Support
This booklet describes the symptoms, diagnosis and treatment (including side-effects) of myeloma. It also covers issues such as feelings, and practical and financial help. Includes details of useful support organisations and other resources.
Macmillan Cancer Support
This booklet is about non-muscle-invasive bladder cancer. It is for anyone who is having tests for this type of cancer or has been diagnosed with it. It may also be helpful for family members, friends or carers. The booklet explains the symptoms of non-muscle-invasive bladder cancer. It also explains how it is diagnosed and treated, and ways to cope; this includes your feelings, relationships, work and finances.
Macmillan Cancer Support
This booklet provides information on the causes and symptoms of vulval cancer, diagnosis and staging, and treatment options and their side-effects. It also discusses feelings and has advice on self-help and support (including financial benefits).
Macmillan Cancer Support
This booklet is about secondary breast cancer. This is breast cancer that has spread to another part of the body. It is for anyone who has been diagnosed with secondary breast cancer and explains the signs and symptoms, the different treatments, how to manage symptoms and ways to cope with some of the feelings you may have.
Macmillan Cancer Support
This booklet is about muscle-invasive and advanced bladder cancer. It is for anyone who is having tests for this type of cancer or has been diagnosed with it. It may also be helpful for family members, friends or carers. The booklet explains the symptoms of muscle-invasive and advanced bladder cancer. It also explains how it is diagnosed and treated, and ways to cope. This includes your feelings, relationships, work and finances.
Macmillan Cancer Support
Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.
Graffeg Limited
There's only one dad quite like me. I wish that there were two. I'd have more time to spend And I would spend it all with you. Most of us can't imagine having the time we spend with our children or loved ones cut short, but this is the reality being faced by mother of two Lisa Wells, who was diagnosed with terminal bowel and liver cancer in December 2017, at the age of 31. The Only One of Me project grew from Lisa's determination to leave a lasting legacy for her daughters and her desire to help other families rally against the difficulties of loss. Only One of Me is the product of Lisa's lifelong love of writing and a newfound friendship with award-winning children's author Michelle Robinson. The two collaborated on this tender and moving rhyming poem, with charming illustrations by Tim Budgen, which is both a love letter to Lisa's own daughters and a testament to the unwavering strength of parental love, a timeless message for families facing the challenges of bereavement. (Publisher)
Macmillan Cancer Support
A booklet for women who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; early menopause; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.
Macmillan Cancer Support
This booklet is about a type of leukaemia called acute myeloid leukaemia (AML). It is for anyone who has been diagnosed with AML, or who wants to know more about it. It also has information for carers, family members and friends. The booklet covers: what AML is; symptoms and how AML is diagnosed; how AML is treated; coping with AML.
Brainstrust
Many people are unsure about how to talk to someone who might be distressed or in difficulty. Questions about the illness, its symptoms, its meaning or its impact can be hard to ask. This guide will help people talk to those close to them,.
Graffeg Limited
The Pond is a touching picture book about a young boy, and his family, overcoming the loss of his father. This colourful, emotional book is filled with natural imagery, and will teach children not only about death and loss, but the importance of the natural world. From Nicola Davies and Cathy Fisher, the duo behind the beautiful children’s book Perfect. (Publisher)
Short Books
The cruel early death of his wife Helen tears up the script of Adam Golightly's middle-class, middle-aged existence. Miserably single, outnumbered by his kids and haunted by life's screaming fragility, he recounts his fight back against the hand of fate. This irreverent and frank memoir follows Adam's snakes-and-ladders journey through his grief in the year following his wife's death, as he struggles with small town tongue wagging, the trauma of teenage bra shopping and online dating anarchy.Adam's is the biggest mid-life crisis anyone could face and as he starts to build a new, alternative life for himself and his children, he shows not just how to survive bereavement but how to be transformed by it. (Publisher)
Macmillan Cancer Support
This booklet gives information about advanced or metastatic cancer of the prostate gland, i.e. cancer that has spread beyond the prostate gland to other parts of the body. It describes the prostate gland and advanced prostate cancer, the symptoms, how it is diagnosed, tests, the grading and staging of prostate cancer, and the treatment options. It concludes with guidance on coping with advanced prostate cancer, financial help and benefits, and sources of further information and support.
Trapeze (Orion)
Renowned as a much-loved and highly respected BBC journalist, Victoria Derbyshire has spent 20 years finding the human story behind the headlines. In 2015 she found herself at the heart of the news, with a devastating breast cancer diagnosis. With honesty and openness, she decided to live out her treatment and recovery in the spotlight in a series of video diaries that encouraged thousands to seek diagnosis and help. Victoria has kept a diary since she was nine years old and in this book she shares her day to day experiences of life following her diagnosis and coming to terms with a future that wasn't planned. From the moment she woke up to find her right breast had collapsed, to telling her partner and children, through to mastectomy and chemotherapy. From wearing a wig to work and hiding it from her colleagues, to the relief and joy of finishing treatment before immediately flying to Glasgow to present a debate on the European Referendum. y sharing her story, she became the person that mums, daughters, sisters, husbands, boyfriends and family members contacted to thank as they tried to find ways to cope with their own and their loved ones' prognosis, and needed to know that they were not alone. (Publisher)
Blood Cancer UK
Some blood cancers and treatments for blood cancer can make you feel sick and sometimes be sick (vomit). This factsheet will help you to understand why this can happen, what to do if it does happen, and the range of treatments that can help.
British Lung Foundation
This information is for people with a long-term lung condition who are coming to the end of their life. It is also for those who are close to them, including their carers, family and friends.
Winston's Wish
A child’s early years are a time of development and change which helps shape the rest of their life. From newborn babies needing constant attention and care to curious children seeking new experiences, an immense amount of learning and change happen during this short period of time. A key focus of early childhood is the relationships that children form with the important people in their lives — usually parents, carers and siblings. Most children will form a strong, secure bond with these people, which enables them to feel safe, and encourages the curiosity that helps them to explore their world. Bereavement during a child’s early years interrupts the attachment that they have with that person. In the absence of strong memories of their own, it can be hard for a young child to remember the person who has died and to feel connected to them. This booklet is designed for parents, carers, childcare professionals and other adults supporting children up to the age of 5 who have experienced the death of a parent or carer. It offers information and ideas as well as some activities which we hope will benefit children and their families. (Publisher)
Fentum Press
After a life of reading and writing, what does it feel like to be deprived of both, to be thrown back only on what’s in your head? The literary snippets that emerge into Todd’s consciousness during a month of radiation are sometimes apt, often ludicrous. They draw her back into childhood in Wales, Bermuda, Ceylon when literature functioned as friend and escape, to her unquiet past in sixties Ghana, then America at the dawn of the rights movements. Her father, nearing 100, is caught in the same ‘hospital-land’: both learn the selfishness of sickness and both respond by telling stories. (Publisher)
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