Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 467

Cover image of 'Docetaxel (Taxotere®) [Bulgarian]'

Docetaxel (Taxotere®) [Bulgarian] (February 2019)

Macmillan Cancer Support

Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Oxaliplatin (Thai)'

Oxaliplatin (Thai) (March 2019)

Macmillan Cancer Support

Oxaliplatin is a chemotherapy drug used to treat bowel, pancreatic, and stomach cancer, cancer and cancer of the oesophagus. It may be used to treat other cancers.

Cover image of 'Talking to children and teenagers when an adult has cancer'

Talking to children and teenagers when an adult has cancer (May 2019)

Macmillan Cancer Support

This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.

Cover image of 'Docetaxel (Taxotere®) [Spanish]'

Docetaxel (Taxotere®) [Spanish] (February 2019)

Macmillan Cancer Support

Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Docetaxel (Taxotere®) [Filipino]'

Docetaxel (Taxotere®) [Filipino] (February 2019)

Macmillan Cancer Support

Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Acute megakaryoblastic leukaemia (AMKL). A guide for patients'

Acute megakaryoblastic leukaemia (AMKL). A guide for patients (March 2019)

Leukaemia Care

Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.

Cover image of 'A young person's guide to dealing with the loss of a brother or sister'

A young person's guide to dealing with the loss of a brother or sister (November 2019)

CLIC Sargent

The death of a brother or sister is likely to be one of the most difficult things that’s ever happened to you. It may even feel like nobody understands what you’re going through, but the fact is help is always at hand. CLIC Sargent has worked closely with young people who have lost a sibling to put together this booklet. As well as showing how this is something others have experienced, we’ve provided contacts to help you find further support and information. Even if you just want someone to talk to, you’ll find all the information you need right here.

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Cancer and pregnancy'

Cancer and pregnancy (November 2019)

Macmillan Cancer Support|Mummy's Star

This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you. 

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Talking about cancer'

Talking about cancer (May 2019)

Macmillan Cancer Support

This booklet is about talking about cancer. It is for anyone who has a cancer diagnosis. It explains: the benefits of talking about cancer; how to overcome the things that make talking difficult; how to deal with other people’s reactions. It also has practical tips for talking and asking for support.

Cover image of 'Understanding oesophageal cancer'

Understanding oesophageal cancer (November 2019)

Macmillan Cancer Support

This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'HPV vaccination. Protecting against HPV infection to help reduce your risk of cancer'

HPV vaccination. Protecting against HPV infection to help reduce your risk of cancer (June 2019)

Public Health England

The HPV vaccine has been offered to all girls in school year 8 for over ten years. From September 2019, the vaccine will also be offered to year 8 boys. This leaflet explains why it is given, how HPV spreads, and the impact of the vaccine to date.

Cover image of 'Understanding melanoma. Lymph node assessment and treatment'

Understanding melanoma. Lymph node assessment and treatment (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has spread to the lymph nodes. 

Cover image of 'Understanding cancer of unknown primary'

Understanding cancer of unknown primary (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'Understanding melanoma and treatment with surgery'

Understanding melanoma and treatment with surgery (July 2019)

Macmillan Cancer Support

This booklet is about a type of skin cancer called melanoma. It includes information about melanoma, how it is diagnosed and how it is treated with surgery. 

Cover image of 'Understanding advanced melanoma'

Understanding advanced melanoma (July 2019)

Macmillan Cancer Support

This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.

Cover image of 'Could it be blood cancer?'

Could it be blood cancer? (September 2019)

Blood Cancer UK

Pocket-sized fold-out guide to the symptoms of blood cancer and suggested questions for a GP appointment. 

Cover image of 'Understanding melanoma that has come back in the same area'

Understanding melanoma that has come back in the same area (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).

Cover image of 'Understanding stomach cancer'

Understanding stomach cancer (September 2019)

Macmillan Cancer Support

This booklet is for anyone who has been diagnosed with stomach cancer. There is also information for carers, family members and friends. It talks about the signs and symptoms of stomach cancer and explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Cancer and relationships. Support for partners, families and friends'

Cancer and relationships. Support for partners, families and friends (January 2019)

Macmillan Cancer Support

This booklet is about coping with your feelings when someone close to you has cancer. It is for anyone who is close to someone with cancer, including partners, family members and friends. This booklet replaces two booklets: Be there for someone facing cancer; and Coping when someone close to you has cancer. 

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of 'Sorting out your financial affairs'

Sorting out your financial affairs (October 2019)

Macmillan Cancer Support

This booklet is for people affected by cancer who want to plan ahead. It can help you make choices about what will happen to your money and belongings. By planning ahead, you can save family or friends from tough decisions or financial difficulties in the future. This booklet also explains how to arrange for someone to help you if you become unable to look after your finances. 

Cover image of 'Talking with someone who has cancer'

Talking with someone who has cancer (May 2019)

Macmillan Cancer Support

This booklet is about talking with someone who has cancer. It is for anyone who wants to support someone with cancer, including carers, family members and friends. The booklet explains how to talk to and support someone who has cancer.  

Cover image of 'CAR-T therapy'

CAR-T therapy (August 2019)

Blood Cancer UK

CAR-T therapy is a new type of cancer treatment that uses the immune system to kill cancer cells. This factsheet describes what it is, how it is given, who can have it, and its safety and effectiveness.

Cover image of 'Returning to school. A teacher's guide for pupils with a brain tumour, during and after treatment'

Returning to school. A teacher's guide for pupils with a brain tumour, during and after treatment (2019)

The Royal Marsden NHS Foundation Trust|Cerebra

This publication aims to guide teachers and schools faced with the task of supporting a pupil with a brain or spinal tumour who may be absent for some time, or who may have sporadic attendance with a very serious illness and potentially devastating long term effects. It explains what the pupil may be going through both medically and psychologically. It offers practical strategies for ensuring supportive re-integration back to school. Suggestions are given for how teachers, assistants and SENCOs can provide sustained and targeted support for pupils who face extended treatments, devastating long term side effects or an uncertain future.

Cover image of 'Activity book'

Activity book (2019)

BUPA

An activity booklet to help occupy children at home or in hospital when someone they know has cancer.

Cover image of 'Donating stem cells to your relative'

Donating stem cells to your relative (October 2019)

Anthony Nolan

This booklet for anyone thinking about donating their stem cells to a relative who needs a transplant to treat a blood cancer or blood disorder. It will explain why a donation is needed and what happens at each step of the process. 

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Blood Cancer UK

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'Sore mouth or gut (mucositis)'

Sore mouth or gut (mucositis) (December 2019)

Blood Cancer UK

Mucositis is a condition that affects your mucous membrane, the thin skin that covers and protects the inside surface of parts of your body. It can be a painful side effect of chemotherapy or radiotherapy. This factsheet explains how it is caused and who gets it, and describes the signs and symptoms, and how to look after yourself.

Cover image of 'Myeloproliferative neoplasms'

Myeloproliferative neoplasms (January 2019)

Blood Cancer UK

This booklet describes the myeloproliferative disorders - a group of diseases that shares some common features. It covers polycythaemia vera, essential thrombocythaemia, and myelofibrosis, with information on causes, signs and symptoms, diagnosis, and treatment.

Cover image of 'Mum's jumper'

Mum's jumper (2019)

AVA Publishing SA

If Mum has gone, how do you carry on? Missing her feels like a dark cloud that follows you around, or like swimming to a shore that never comes any nearer. But memories are like a jumper that you can cuddle and wear. And Mum's jumper might be a way to keep her close. A simple, heartfelt and ultimately uplifting book for anyone coping with loss. (Publisher)

Cover image of 'Focus on common female cancers'

Focus on common female cancers (July 2018)

Cancer Focus Northern Ireland

Brief overview of the most common women's cancers (ovarian, cervical, womb and breast).

Cover image of 'Bereavement and stem cell transplant'

Bereavement and stem cell transplant (December 2018)

Anthony Nolan

Losing someone close after a stem cell transplant can be devastating. Although it is a challenging treatment, there is often a lot of hope that it will give a long-term remission. Bereavement is a personal experience and there is no right or wrong way to grieve. This guide was developed with people who lost a partner or family member after a stem cell transplant. The post-transplant experience leading up to the bereavement can leave you with questions and emotions; this guide aims to help you identify those emotions and answer some of your questions. 

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'Rare ovarian tumours'

Rare ovarian tumours (May 2018)

Ovacome

This factsheet describes some of the rarer ovarian cancers and how they may be treated, namely: germ cell tumours; sex-cord stromal tumours (granulosa cell tumour and Sertoli-Leydig cell tumours); small-cell carcinoma of the ovary; Brenner tumours; and Krukenberg tumours.

Cover image of 'Types of pancreatic cancer'

Types of pancreatic cancer (November 2018)

Pancreatic Cancer UK

There are different types of pancreatic cancer. This factsheet explains the different types, including the most common type, pancreatic ductal adenocarcinoma, neuroendocrine tumours, and rarer types of pancreatic cancer. 

Cover image of 'Essential facts for transplant patients'

Essential facts for transplant patients (January 2018)

Anthony Nolan

A short illustrated guide to what happens next if you or someone you know needs a stem cell transplant. 

Cover image of 'Follow-up appointments'

Follow-up appointments (October 2018)

Lymphoma Action

This factsheet explains what to expect from follow-up appointments and how to prepare for them. It is relevant to people of all ages, although follow-up in children, teenagers and young adults may include some additional checks on development and growth. Contents: Follow-up after treatment; What are follow-up appointments for?; Before follow-up appointments; What happens at follow-up appointments?; When will my follow-up finish?.

Cover image of 'Fallopian tube cancer'

Fallopian tube cancer (December 2018)

Ovacome

This factsheet has about fallopian tube cancer. It describes what fallopian tube cancer is, the risk factors, symptoms, diagnostic tests, treatment options (surgery, chemotherapy), and follow-up care.

Cover image of 'Causes of lymphoma'

Causes of lymphoma (April 2018)

Lymphoma Action

Information about the causes of lymphoma, including age and sex, family history, immune system problems, infections, previous cancers, non-cancerous factors and other possible causes.

Cover image of 'Neutropenia'

Neutropenia (July 2018)

Lymphoma Action

Many people with lymphoma – and other cancers – are affected by neutropenia at some point during their illness and treatment. Having neutropenia increases the risk of infection. This factsheet describes neutropenia and ts effects, risk factors, treatment and neutropenic diet.

Cover image of 'Pelvic radiation disease'

Pelvic radiation disease (2018)

Guts UK

Pelvic radiation disease is a term used to describe a collection of symptoms that can arise after radiotherapy treatment to the abdomen or pelvis for cancers such as cervical, prostate, bladder and bowel cancers. This leaflet describes the causes, symptoms, how it is diagnosed, the treatment options, and the impact.

Cover image of 'Family history of pancreatic cancer'

Family history of pancreatic cancer (September 2018)

Pancreatic Cancer UK

This factsheet is for people who want to find out about the hereditary risk of pancreatic cancer.

Cover image of 'Younger people with bowel cancer: a guide for the under 50s'

Younger people with bowel cancer: a guide for the under 50s (August 2018)

Bowel Cancer UK

This booklet is for people who have been diagnosed with bowel cancer under the age of 50. It gives an introduction to how bowel cancer can affect your body, your emotions, your relationships and your everyday life. It includes the personal experiences of people who have been diagnosed with bowel cancer at a younger age. There are links to more detailed information, contact details for organisations, and a glossary of the medical words used.

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