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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Breast Cancer Now
This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.
Cancer Research UK
This leaflet highlights the early signs and symptoms of cancer. It explains what to look out for and why it is important to get any symptoms checked out.
Cancer Research UK
This leaflet for women highlights the early signs and symptoms of cancer. It explains what to look out for and why it is important to get any symptoms checked out.
Macmillan Cancer Support
This z-card gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.
Cancer Research UK
This leaflet for men highlights the early signs and symptoms of cancer. It explains what to look out for and why it is important to get any symptoms checked out.
Anthony Nolan
One of the most common side effects after a stem cell transplant is infection and although it is an expected part of recovery, it can also be challenging. This booklet highlights when you might get infections, the symptoms to look out for and how infections are treated as well as how to look after yourself and prevent infections in both your short and long term recovery.
Lymphoma Action
Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.
Anthony Nolan
Returning to work after a stem cell transplant can be an important milestone on the road to recovery. For many people, work can help them get back into their everyday life and give them different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, you’ll be recovering physically and emotionally from major treatment. You may need to make adjustments to the way you work, and take things gradually. For some people, going back to work isn’t always possible. We’ve put together this booklet to help you prepare for and manage work after a transplant. It might also be useful if you’re a carer, family member or supporter
Anthony Nolan
A brief guide to a type of stem cell or bone marrow transplant called a matched unrelated donor or MUD transplant. It describes who can have this type of transplant, how it works, the possible side effects and where to find further information and support.
Anthony Nolan
Having a stem cell transplant is a life-changing event. Dealing with the treatment and its impact on your everyday life can be a challenge. This guide aims to help you learn more about diet and physical activity after a transplant. All the tips are based on ideas that other patients and health professionals have told us can be useful. If you are preparing for a transplant, this leaflet is designed to help you learn more about what to expect and how you can help yourself after transplant.
Anthony Nolan
Working after a stem cell transplant can be a big milestone on your employee’s road to recovery. It can be an important part of making them feel ‘normal’ again and give them a different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, your employee will be recovering physically and emotionally from major treatment. They may need to make adjustments to the way they work and take things gradually. We’ve put together this booklet to help you support your employee, before and after their transplant.
Macmillan Cancer Support
This booklet is about getting benefits and other financial help if you are affected by cancer in England, Scotland, Wales or Northern Ireland. It is for anyone living with cancer and their family, friends and carers. It explains the types of financial help you could get and how to claim this support. It also tells you who to contact for further help, including Macmillan’s welfare rights advisers.
Blood Cancer UK
Guidance for employers: Key facts about blood cancer; Coronavirus and blood cancer; Your employee’s rights; Supporting your employee during coronavirus; Support for you.
Macmillan Cancer Support
This booklet is about anal cancer. The anus is part of the large bowel, which includes the colon and rectum. We have separate booklets about colon cancer and rectal cancer. The booklet explains what anal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances.
Jessica Kingsley Publishers
Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)
Macmillan Cancer Support
This booklet is about rectal cancer. The rectum is part of the bowel. We have separate information about small bowel cancer, colon cancer and anal cancer. The booklet explains what rectal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes rectal cancer.
Macmillan Cancer Support
This booklet is about colon cancer. The colon is part of the bowel. We have separate information about small bowel cancer, rectal cancer and anal cancer. The booklet explains what colon cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes colon cancer.
Macmillan Cancer Support
This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
BUPA
This booklet explains what cancer is and explores some common worries and feelings that children may have - reassuring them that however they react, it’s ok.
BUPA
This booklet looks at some of the side-effects of different types of cancer treatments. It also offers ideas for small ways children may like to help out at home.
BUPA
This booklet explains types of treatment and some of the health professionals who are helping people with cancer to get better.
SKCIN: The Karen Clifford Skin Cancer Charity
Leaflet with information about skin cancer and how to avoid it, including: sunburn; sunbeds; protecting young children; choosing the right sunscreen; applying sunscreen; at risk groups; types of skin cancer.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
Child Bereavement UK
Grieving is not about forgetting the person who has died, but finding ways to remember them; this resource allows young people to document their unique memories of someone special who has died. It is a blank version of ‘Magical Memories of Dad’, created by Child Bereavement UK for two brothers who lost their dad.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
World Cancer Research Fund
Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, alcohol, and physical activity. Includes brief information on the most common symptoms of prostate, bowel, lung, mouth and throat, oesophageal and testicular cancer and information on screening tests where applicable.
World Cancer Research Fund
Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, dietary supplements, alcohol, and physical activity. Includes brief information on the most common symptoms of breast, bowel, lung, womb, ovarian, cervical and skin cancer and information on screening tests where applicable.
Anthony Nolan
A brief guide to a type of treatment you may receive after your stem cell transplant. It describes what a DLI is, why you might need one, the possible side effects, and where to get support and further information.
Anthony Nolan
A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.
Myeloma UK
Reolysin, also known as pelareorep, is a type of oncolytic virus being investigated for the treatment of myeloma and various other cancers. This factsheet explains what reolysin is, how it works, and the current evidence to support its use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of reolysin in the UK.
Marie Curie
This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies.
Anthony Nolan
A booklet to help you manage fatigue during and after a stem cell transplant, to help you come to terms with your current situation and what can help. It’s been written with guidance and advice from patients and healthcare professionals. Friends and family might also like to read through it to get an understanding of what fatigue is and how they can support you.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Urdu. Includes the benefits of talking, how to talk, and information for specific age groups: babies and toddlers; younger children; older children; and teenagers.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Information on phaeochromocytomas, including the symptoms, diagnostic tests, and treatment options.
Ovacome
This briefing looks at the issues raised among family members, children and friends when someone is diagnosed with ovarian cancer. It also gives sources of help and support.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Gujarati. Includes why tell children, telling your children, explaining cancer and ways of talking to different age groups.
Lymphoma Action
This factsheet is about staging of Hodgkin lymphoma and non-Hodgkin lymphoma. Staging is used to work out which parts of your body are affected by lymphoma. It covers: What is staging?; Staging of lymphoma in adults; Staging of lymphoma in children; ‘Early’ stage and ‘advanced’ stage lymphoma.
Lymphoma Action
Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Turkish.
Lymphoma Action
Late effects are health problems that may develop months or years after treatment for lymphoma. This factsheet explains some of the potential late effects of lymphoma treatment, and who might get them. It covers second cancers, heart disease, lung problems, hormone problems and how to reduce your risk.
Anthony Nolan
Advice for people gping home after a stem cell transplant.
Anthony Nolan
A stem cell transplant is likely to affect many aspects of your life, including the way you feel. There are likely to be many highs and lows that will have an impact on your mental health. This booklet highlights some of the issues you might experience and gives advice on how to come to terms with them. It’s been written with guidance and advice from patients and healthcare professionals. They have shared their experiences with us to help you see that other people have come through similardifficulties. There is information for carers, too, to help them look after their mental health during this challenging time.
Haynes Publishing for Men's Health Forum
One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)
Advanced Cancers Coalition
This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]
Macmillan Cancer Support
This booklet is about cancer, sex and relationships. It is for teenagers and young people who are having or have had cancer treatment. It may also help carers, family members and friends. The booklet explains how cancer and cancer treatment may affect your relationships and sex life. It also gives information about coping with any changes and how to get more support.
Marie Curie
Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.
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