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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Macmillan Cancer Support
This z-card gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.
Macmillan Cancer Support
This booklet is about getting benefits and other financial help if you are affected by cancer in England, Scotland, Wales or Northern Ireland. It is for anyone living with cancer and their family, friends and carers. It explains the types of financial help you could get and how to claim this support. It also tells you who to contact for further help, including Macmillan’s welfare rights advisers.
Jessica Kingsley Publishers
Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)
BUPA
This booklet explains what cancer is and explores some common worries and feelings that children may have - reassuring them that however they react, it’s ok.
BUPA
This booklet looks at some of the side-effects of different types of cancer treatments. It also offers ideas for small ways children may like to help out at home.
BUPA
This booklet explains types of treatment and some of the health professionals who are helping people with cancer to get better.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
SKCIN: The Karen Clifford Skin Cancer Charity
Leaflet with information about skin cancer and how to avoid it, including: sunburn; sunbeds; protecting young children; choosing the right sunscreen; applying sunscreen; at risk groups; types of skin cancer.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
Lymphoma Action
Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
NHS Health Scotland
From academic year 2019/20, every S1 pupil, regardless of gender, can get the human papillomavirus (HPV) vaccine for free. This leaflet is about the HPV immunisation, which is offered to boys and girls to protect them against head and neck, cervical and anogenital cancers.
Child Bereavement UK
Grieving is not about forgetting the person who has died, but finding ways to remember them; this resource allows young people to document their unique memories of someone special who has died. It is a blank version of ‘Magical Memories of Dad’, created by Child Bereavement UK for two brothers who lost their dad.
World Cancer Research Fund
Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, alcohol, and physical activity. Includes brief information on the most common symptoms of prostate, bowel, lung, mouth and throat, oesophageal and testicular cancer and information on screening tests where applicable.
World Cancer Research Fund
Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, dietary supplements, alcohol, and physical activity. Includes brief information on the most common symptoms of breast, bowel, lung, womb, ovarian, cervical and skin cancer and information on screening tests where applicable.
Anthony Nolan
A brief guide to a type of treatment you may receive after your stem cell transplant. It describes what a DLI is, why you might need one, the possible side effects, and where to get support and further information.
Anthony Nolan
A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Urdu. Includes the benefits of talking, how to talk, and information for specific age groups: babies and toddlers; younger children; older children; and teenagers.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Gujarati. Includes why tell children, telling your children, explaining cancer and ways of talking to different age groups.
Marie Curie
This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies.
Myeloma UK
Reolysin, also known as pelareorep, is a type of oncolytic virus being investigated for the treatment of myeloma and various other cancers. This factsheet explains what reolysin is, how it works, and the current evidence to support its use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of reolysin in the UK.
Anthony Nolan
A booklet to help you manage fatigue during and after a stem cell transplant, to help you come to terms with your current situation and what can help. It’s been written with guidance and advice from patients and healthcare professionals. Friends and family might also like to read through it to get an understanding of what fatigue is and how they can support you.
Bloodwise
Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Information on phaeochromocytomas, including the symptoms, diagnostic tests, and treatment options.
Ovacome
This briefing looks at the issues raised among family members, children and friends when someone is diagnosed with ovarian cancer. It also gives sources of help and support.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Turkish.
Lymphoma Action
This factsheet is about staging of Hodgkin lymphoma and non-Hodgkin lymphoma. Staging is used to work out which parts of your body are affected by lymphoma. It covers: What is staging?; Staging of lymphoma in adults; Staging of lymphoma in children; ‘Early’ stage and ‘advanced’ stage lymphoma.
Lymphoma Action
Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.
Anthony Nolan
Advice for people gping home after a stem cell transplant.
Haynes Publishing for Men's Health Forum
One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)
Lymphoma Action
Late effects are health problems that may develop months or years after treatment for lymphoma. This factsheet explains some of the potential late effects of lymphoma treatment, and who might get them. It covers second cancers, heart disease, lung problems, hormone problems and how to reduce your risk.
Anthony Nolan
A stem cell transplant is likely to affect many aspects of your life, including the way you feel. There are likely to be many highs and lows that will have an impact on your mental health. This booklet highlights some of the issues you might experience and gives advice on how to come to terms with them. It’s been written with guidance and advice from patients and healthcare professionals. They have shared their experiences with us to help you see that other people have come through similardifficulties. There is information for carers, too, to help them look after their mental health during this challenging time.
Advanced Cancers Coalition
This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]
Marie Curie
Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.
Macmillan Cancer Support
This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Macmillan Cancer Support
This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.
Macmillan Cancer Support
Oxaliplatin is a chemotherapy drug used to treat bowel, pancreatic, and stomach cancer, cancer and cancer of the oesophagus. It may be used to treat other cancers.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Leukaemia Care
Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Macmillan Cancer Support
This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.
Leukaemia Care
Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.
Macmillan Cancer Support
This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help.
Marie Curie
This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing.
CLIC Sargent
The death of a brother or sister is likely to be one of the most difficult things that’s ever happened to you. It may even feel like nobody understands what you’re going through, but the fact is help is always at hand. CLIC Sargent has worked closely with young people who have lost a sibling to put together this booklet. As well as showing how this is something others have experienced, we’ve provided contacts to help you find further support and information. Even if you just want someone to talk to, you’ll find all the information you need right here.
Macmillan Cancer Support|Mummy's Star
This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you.
Leukaemia Care
This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.
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