The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Children's Cancer and Leukaemia Group
This factsheet provides information on the use of mercaptopurine in children and young people with cancer.
Little Five Star
When a child is diagnosed with cancer, his or her siblings may struggle with complex emotions such as confusion, guilt, and fear. Part story, part journal, Jamie's Journey: Cancer from the Voice of a Sibling helps siblings of pediatric cancer patients cope with those intense feelings. The first half of the book is about 13-year-old Jamie who describes the roller coaster of emotions she experiences when her 10-year-old sister, Jordan, is diagnosed with cancer. Jamie laments the loss of her 'normal' teenage life and describes feeling forgotten as her family focuses on Jordan's medical needs. Jamie finds solace through journaling about her experience, and encourages the reader to write about his or her own journey on the pages provided in the book. Jamie's Journey is unique in that it's designed especially for the siblings of pediatric cancer patients. Author Sharon Wozny draws from her experience volunteering with Children's Cancer Network for the past three years. During the time she's spent with young cancer patients and their families, Wozny has discovered that the patients' siblings face unique challenges. "They endure so much," she said. "They feel so much pain on so many levels and need to know that they are heroes also." Wozny has made the second half of the book an interactive journal, offering siblings of pediatric cancer patients a safe place to share their own journey. (Publisher)
Children's Cancer and Leukaemia Group
This illustrated booklet has been written for young adults (16+) who have survived cancer. Please note: this booklet was reviewed in March 2017 but no changes were made so versions dated 2015 are still current.
The author was diagnosed with osteosarcoma when she was 12. She wrote this booklet two years later when she had finished treatment because there was nothing for people her age about what it was like to be in hospital and how to handle it. There are tips for surviving long stays in hospital and keeping positive, and explanations of medical terms.
Self-published using I_AM Self-Publishing
My son Andrew was only three years old when he was diagnosed with Leukaemia. Now he’s a healthy, happy six-year-old. We Beat Leukemia is my honest account of chemo, childhood and being a mummy to cancer – written over 1235 days from diagnosis to remission. I started writing daily posts to record the highs and lows, frustrations and elations of his childhood cancer treatment. My posts and photos form this book. I’m sharing my family’s experience to raise awareness of childhood cancer (and the UK charities who can offer so much), but also to offer support to families facing the challenges that any child cancer diagnosis brings. I hope to make a difference in the cancer community. (Publisher)
Children's Cancer and Leukaemia Group
This illustrated leaflet for children has a list of things that the child with cancer may want their friends to know.
Caroline Burch experienced every parent's worst nightmare when her son Elliot was diagnosed with cancer when he was just six months old. To document her experiences she kept a diary detailing the ups and downs of her son's treatment and the emotional anguish of their situation from diagnosis to remission. Ten years later, and with Elliot happily recovered from the condition that threatened his life, Caroline looks back at the traumatic months when there appeared to be no end in sight to the misery. Caroline's story is proof that there is life after cancer and this book is a tribute to the tireless work of the individuals who help parents and their children emerge from their nightmare. (Publisher)
Self-published using CreateSpace Independent Publishing Platform
This one-of-a-kind story is a message of hope for young children and families who are undergoing chemotherapy or any difficult struggle. Without words like cancer and chemo, the kid-friendly tale follows a brave hare on her courageous journey to overcome illness. A mysterious, healing stream offers the potential to get well, but there are surprising side effects that will challenge the hare's strength and determination. This book is about believing wishes can come true even in the most extreme circumstances. Ideal for early stage cancers due to the message of survival. Perfect for pairing with honest discussions about your personal situation. (Publisher)
Bloomsbury Children's Books
Megan Bright and Jackson Dawes are two teenagers who first meet each other on the hospital ward where they are both being treated for cancer. Megan is scared and worried about her illness, but Jackson seems to be an old hand, having been on the ward for ages. And everybody loves Jackson! He is a whirlwind of life and energy, warmth and sparkle. Megan will need to borrow some of Jackson's extraordinary optimism to face her and Jackson's future. A moving story of first love and a remarkably powerful debut novel. (Publisher)
In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g