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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Gujarati. Includes why tell children, telling your children, explaining cancer and ways of talking to different age groups.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Turkish.
Marie Curie
This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies.
Ovacome
This briefing looks at the issues raised among family members, children and friends when someone is diagnosed with ovarian cancer. It also gives sources of help and support.
Together for Short Lives
Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Information on phaeochromocytomas, including the symptoms, diagnostic tests, and treatment options.
Lymphoma Action
Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.
Lymphoma Action
This factsheet is about staging of Hodgkin lymphoma and non-Hodgkin lymphoma. Staging is used to work out which parts of your body are affected by lymphoma. It covers: What is staging?; Staging of lymphoma in adults; Staging of lymphoma in children; ‘Early’ stage and ‘advanced’ stage lymphoma.
Children's Cancer and Leukaemia Group
Getting back to school is vital for children with cancer. School helps them to feel ‘normal’ and reduces the isolation and loneliness which many children with cancer face. Teachers have a really important role to play in encouraging the child’s integration back into a school routine. But cancer is a scary word for many and it is completely normal for teachers and others working at the school to feel upset – not just for the awful situation facing the pupil and their family, but also for the impact on the rest of the class and school community. This guide aims to lessen some of the worries you may have by giving simple practical information and advice on a variety of issues faced by the child and their family, and some ideas on how to help them within a school setting.
The Brain Tumour Charity
This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.
Macmillan Cancer Support
This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.
Macmillan Cancer Support
This booklet is about how cancer and its treatment can affect your fertility. It is for teenagers and young people who need information about this before, during or after cancer treatment, whether you are in a relationship or not and whatever your sexual orientation. It explains how cancer and cancer treatment may affect your fertility and has information about preserving your fertility, having fertility tests, fertility treatments and other options for having a child. It also tells you how to get more support.
Marie Curie
Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.
Macmillan Cancer Support
This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.
Macmillan Cancer Support
This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help.
Leukaemia Care
Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.
CLIC Sargent
The death of a brother or sister is likely to be one of the most difficult things that’s ever happened to you. It may even feel like nobody understands what you’re going through, but the fact is help is always at hand. CLIC Sargent has worked closely with young people who have lost a sibling to put together this booklet. As well as showing how this is something others have experienced, we’ve provided contacts to help you find further support and information. Even if you just want someone to talk to, you’ll find all the information you need right here.
Macmillan Cancer Support
This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.
Marie Curie
This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing.
Macmillan Cancer Support
This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about cancer, sex and relationships. It is for teenagers and young people who are having or have had cancer treatment. It may also help carers, family members and friends. The booklet explains how cancer and cancer treatment may affect your relationships and sex life. It also gives information about coping with any changes and how to get more support.
Macmillan Cancer Support
This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues.
Public Health England
The HPV vaccine has been offered to all girls in school year 8 for over ten years. From September 2019, the vaccine will also be offered to year 8 boys. This leaflet explains why it is given, how HPV spreads, and the impact of the vaccine to date.
Macmillan Cancer Support
This booklet is about talking about cancer. It is for anyone who has a cancer diagnosis. It explains: the benefits of talking about cancer; how to overcome the things that make talking difficult; how to deal with other people’s reactions. It also has practical tips for talking and asking for support.
Leukaemia Care
Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.
Macmillan Cancer Support
This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
Information for people whose melanoma has spread to the lymph nodes.
Macmillan Cancer Support
This booklet is about a type of skin cancer called melanoma. It includes information about melanoma, how it is diagnosed and how it is treated with surgery.
Macmillan Cancer Support
Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).
Macmillan Cancer Support
This booklet is for people affected by cancer who want to plan ahead. It can help you make choices about what will happen to your money and belongings. By planning ahead, you can save family or friends from tough decisions or financial difficulties in the future. This booklet also explains how to arrange for someone to help you if you become unable to look after your finances.
Macmillan Cancer Support
This booklet is about coping with your feelings when someone close to you has cancer. It is for anyone who is close to someone with cancer, including partners, family members and friends. This booklet replaces two booklets: Be there for someone facing cancer; and Coping when someone close to you has cancer.
Macmillan Cancer Support
This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.
Macmillan Cancer Support
Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.
BUPA
An activity booklet to help occupy children at home or in hospital when someone they know has cancer.
Macmillan Cancer Support
Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.
Macmillan Cancer Support
This booklet is for anyone who has been diagnosed with stomach cancer. There is also information for carers, family members and friends. It talks about the signs and symptoms of stomach cancer and explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Headsmart
Brain tumours are relatively rare, but early diagnosis can save lives, which is why keeping track of any potential symptoms can help to make the most out of a doctor’s appointment and may lead to a quicker referral or better reassurance. You can use the diary at your appointment to describe the symptoms and explain your concerns.
Macmillan Cancer Support
This booklet is about talking with someone who has cancer. It is for anyone who wants to support someone with cancer, including carers, family members and friends. The booklet explains how to talk to and support someone who has cancer.
The Royal Marsden NHS Foundation Trust|Cerebra
This publication aims to guide teachers and schools faced with the task of supporting a pupil with a brain or spinal tumour who may be absent for some time, or who may have sporadic attendance with a very serious illness and potentially devastating long term effects. It explains what the pupil may be going through both medically and psychologically. It offers practical strategies for ensuring supportive re-integration back to school. Suggestions are given for how teachers, assistants and SENCOs can provide sustained and targeted support for pupils who face extended treatments, devastating long term side effects or an uncertain future.
Blood Cancer UK
Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support.
Burning Chair
What happens when we die? Is this really all there is? What exists beyond this life? Alex Duncan is just an ordinary 14 year old boy. His main worries are homework, girls, the school bully......and his sister, Jenna who has ovarian cancer, stage B. As his parents retreat into themselves, Alex is desperate to find a way to help, a way to make things better for his sister. After all, it’s the not knowing that’s the worst thing. Whilst he tries to untangle the ultimate question, life still goes on: his best friend seems oblivious to his feelings about her, the school bully has taken a special interest in him, and everything he does just makes him feel more and more awkward and out of place. Georgia Springate’s debut novel, Beyond, is a funny and touchingly compelling coming-of-age story about love, loss and discovery. Read it and take an emotional journey through one boy’s quest to understand that most tricky of questions: what lies beyond? (Publishers)
Frances Lincoln Children’s Books
A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher)
AVA Publishing SA
If Mum has gone, how do you carry on? Missing her feels like a dark cloud that follows you around, or like swimming to a shore that never comes any nearer. But memories are like a jumper that you can cuddle and wear. And Mum's jumper might be a way to keep her close. A simple, heartfelt and ultimately uplifting book for anyone coping with loss. (Publisher)
Bone Cancer Research Trust
Abbie Has Osteosarcoma is written for parents, carers and healthcare professionals to read with children to help them understand about their osteosarcoma and its treatment.
Children's Cancer and Leukaemia Group
Hair loss is a common side effect of having chemotherapy and of radiotherapy to the head. This book tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.
Children's Cancer and Leukaemia Group
A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.
Lymphoma Action
This factsheet about lymphoma in children (0 to 14 years old) is primarily intended for parents and carers and covers: What is lymphoma?; Types of lymphoma in children; Symptoms; Tests; Outlook; Treatment; Side effects and late effects of treatment; Relapsed and refractory lymphoma; After treatment; Further information and support.
Lymphoma Action
This factsheet covers common practical concerns of parents and carers looking after children and young people with lymphoma: When your child is diagnosed; Telling your child; Where your child will be treated; Changes to expect at home; If your child becomes unwell at home; Your child’s diet during treatment; Going back to school; Looking after yourself; Further information and support.
Children's Cancer and Leukaemia Group
The huge amount of information online can be overwhelming, and sometimes conflicting, causing even more worry and stress. It is important that parents make sure that health information is filtered and gathered from reliable, easy to understand sources. As a parent or carer of a newly-diagnosed child, you may not feel confident when searching through cancer information. This leaflet offers advice and tips on where to start and what to look for.
Children's Cancer and Leukaemia Group
This factsheet is written to help explain what is involved when you undergo a peripheral blood stem cell (PBSC) harvest. It explains what haematopoietic stem cells are, why they are collected, and what happens before, during and after the harvest.
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