Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 351

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (May 2020)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'Talking about dying with children'

Talking about dying with children (2020)

Hospice UK|Dying Matters

Guidance on talking to children about death.

Cover image of 'Guide to cancer resources for children and young people'

Guide to cancer resources for children and young people (March 2020)

Macmillan Cancer Support

This list of books, booklets, leaflets, and factsheets for children and young people covers cancer in general, specific cancers, treatments, cancer in others, end of life, and bereavement. It also includes works of fiction that feature cancer. Many of the resources have been reviewed by people affected by cancer and we have linked to the reviews where available.

Cover image of 'Young person's guide to lymphoma'

Young person's guide to lymphoma (January 2020)

Lymphoma Action

Comprehensive booklet for young people with lymphoma. 

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Now

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'Talking to children about lymphoma'

Talking to children about lymphoma (June 2020)

Lymphoma Action

Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.

Cover image of 'Coming home after my stem cell transplant'

Coming home after my stem cell transplant (August 2020)

Anthony Nolan

Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.

Cover image of 'Having my stem cell transplant'

Having my stem cell transplant (August 2020)

Anthony Nolan

Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (August 2020)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Helping your child through their stem cell transplant'

Helping your child through their stem cell transplant (August 2020)

Anthony Nolan

This booklet is for anyone with a child who needs a stem cell transplant (sometimes also called a bone marrow transplant). It will help you understand why they need one, what will happen to them and how to look after them as they recover. It will also help you answer any questions your child might have about what they’re going through. It is a supplement to our children’s activity books: Going to hospital for my stem cell transplant; Having my stem cell transplant; and Coming home after my stem cell transplant. 

Cover image of 'Going to hospital for my stem cell transplant'

Going to hospital for my stem cell transplant (August 2020)

Anthony Nolan

Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (March 2020)

Macmillan Cancer Support

This booklet is about getting benefits and other financial help if you are affected by cancer in England, Scotland, Wales or Northern Ireland. It is for anyone living with cancer and their family, friends and carers. It explains the types of financial help you could get and how to claim this support. It also tells you who to contact for further help, including Macmillan’s welfare rights advisers.

Cover image of 'Understanding anal cancer'

Understanding anal cancer (April 2020)

Macmillan Cancer Support

This booklet is about anal cancer. The anus is part of the large bowel, which includes the colon and rectum. We have separate booklets about colon cancer and rectal cancer. The booklet explains what anal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. 

Cover image of 'Understanding rectal cancer'

Understanding rectal cancer (April 2020)

Macmillan Cancer Support

This booklet is about rectal cancer. The rectum is part of the bowel. We have separate information about small bowel cancer, colon cancer and anal cancer. The booklet explains what rectal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes rectal cancer. 

Cover image of 'Understanding colon cancer'

Understanding colon cancer (April 2020)

Macmillan Cancer Support

This booklet is about colon cancer. The colon is part of the bowel. We have separate information about small bowel cancer, rectal cancer and anal cancer. The booklet explains what colon cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes colon cancer.  

Cover image of 'Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma'

Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma (June 2020)

Macmillan Cancer Support

This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Understanding secondary cancer in the liver'

Understanding secondary cancer in the liver (June 2020)

Macmillan Cancer Support

This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (April 2019)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of treatment for childhood cancer, but its impact can be significant. This animation tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'What does it mean?'

What does it mean? (2019)

BUPA

This booklet explains what cancer is and explores some common worries and feelings that children may have - reassuring them that however they react, it’s ok.

Cover image of 'Life at home'

Life at home (2019)

BUPA

This booklet looks at some of the side-effects of different types of cancer treatments. It also offers ideas for small ways children may like to help out at home.  

Cover image of 'Visiting hospital'

Visiting hospital (2019)

BUPA

This booklet explains types of treatment and some of the health professionals who are helping people with cancer to get better. 

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Sun safety and skin cancer. The facts, prevention and early detection'

Sun safety and skin cancer. The facts, prevention and early detection (2019)

SKCIN: The Karen Clifford Skin Cancer Charity

Leaflet with information about skin cancer and how to avoid it, including: sunburn; sunbeds; protecting young children; choosing the right sunscreen; applying sunscreen; at risk groups; types of skin cancer.

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'My dad and me'

My dad and me (June 2019)

Child Bereavement UK

Grieving is not about forgetting the person who has died, but finding ways to remember them; this resource allows young people to document their unique memories of someone special who has died. It is a blank version of ‘Magical Memories of Dad’, created by Child Bereavement UK for two brothers who lost their dad.

Cover image of 'Talking to children and teenagers when an adult has cancer [Urdu]'

Talking to children and teenagers when an adult has cancer [Urdu] (2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Urdu. Includes the benefits of talking, how to talk, and information for specific age groups: babies and toddlers; younger children; older children; and teenagers.

Cover image of 'Talking to children and teenagers when an adult has cancer [Gujarati]'

Talking to children and teenagers when an adult has cancer [Gujarati] (2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Gujarati. Includes why tell children, telling your children, explaining cancer and ways of talking to different age groups.

Cover image of 'Talking to children and teenagers when an adult has cancer [Turkish]'

Talking to children and teenagers when an adult has cancer [Turkish] (2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Turkish.

Cover image of 'When someone dies. Practical and emotional help at a difficult time'

When someone dies. Practical and emotional help at a difficult time (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Talking to your family and friends'

Talking to your family and friends (August 2019)

Ovacome

This briefing looks at the issues raised among family members, children and friends when someone is diagnosed with ovarian cancer. It also gives sources of help and support.

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'Phaeochromocytomas'

Phaeochromocytomas (August 2019)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Information on phaeochromocytomas, including the symptoms, diagnostic tests, and treatment options.

Cover image of 'Day-to-day living'

Day-to-day living (June 2019)

Lymphoma Action

Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.

Cover image of 'Staging of lymphoma'

Staging of lymphoma (April 2019)

Lymphoma Action

This factsheet is about staging of Hodgkin lymphoma and non-Hodgkin lymphoma. Staging is used to work out which parts of your body are affected by lymphoma. It covers: What is staging?; Staging of lymphoma in adults; Staging of lymphoma in children; ‘Early’ stage and ‘advanced’ stage lymphoma.

Cover image of 'Supporting your pupil after a cancer diagnosis. An information guide for teachers helping children and young
people returning to school after a diagnosis of cancer'

Supporting your pupil after a cancer diagnosis. An information guide for teachers helping children and young people returning to school after a diagnosis of cancer (December 2019)

Children's Cancer and Leukaemia Group

Getting back to school is vital for children with cancer. School helps them to feel ‘normal’ and reduces the isolation and loneliness which many children with cancer face. Teachers have a really important role to play in encouraging the child’s integration back into a school routine. But cancer is a scary word for many and it is completely normal for teachers and others working at the school to feel upset – not just for the awful situation facing the pupil and their family, but also for the impact on the rest of the class and school community. This guide aims to lessen some of the worries you may have by giving simple practical information and advice on a variety of issues faced by the child and their family, and some ideas on how to help them within a school setting.

Cover image of 'Ependymoma (in children). What you need to know'

Ependymoma (in children). What you need to know (July 2019)

The Brain Tumour Charity

This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.

Cover image of 'Talking to children and teenagers when an adult has cancer'

Talking to children and teenagers when an adult has cancer (May 2019)

Macmillan Cancer Support

This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.

Cover image of 'Fertility. Support for young people affected by cancer'

Fertility. Support for young people affected by cancer (September 2019)

Macmillan Cancer Support

This booklet is about how cancer and its treatment can affect your fertility. It is for teenagers and young people who need information about this before, during or after cancer treatment, whether you are in a relationship or not and whatever your sexual orientation. It explains how cancer and cancer treatment may affect your fertility and has information about preserving your fertility, having fertility tests, fertility treatments and other options for having a child. It also tells you how to get more support. 

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Acute megakaryoblastic leukaemia (AMKL). A guide for patients'

Acute megakaryoblastic leukaemia (AMKL). A guide for patients (March 2019)

Leukaemia Care

Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.

Cover image of 'A young person's guide to dealing with the loss of a brother or sister'

A young person's guide to dealing with the loss of a brother or sister (November 2019)

CLIC Sargent

The death of a brother or sister is likely to be one of the most difficult things that’s ever happened to you. It may even feel like nobody understands what you’re going through, but the fact is help is always at hand. CLIC Sargent has worked closely with young people who have lost a sibling to put together this booklet. As well as showing how this is something others have experienced, we’ve provided contacts to help you find further support and information. Even if you just want someone to talk to, you’ll find all the information you need right here.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

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