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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Children's Cancer and Leukaemia Group
Getting back to school is vital for children with cancer. School helps them to feel ‘normal’ and reduces the isolation and loneliness which many children with cancer face. Teachers have a really important role to play in encouraging the child’s integration back into a school routine. But cancer is a scary word for many and it is completely normal for teachers and others working at the school to feel upset – not just for the awful situation facing the pupil and their family, but also for the impact on the rest of the class and school community. This guide aims to lessen some of the worries you may have by giving simple practical information and advice on a variety of issues faced by the child and their family, and some ideas on how to help them within a school setting.
Burning Chair
What happens when we die? Is this really all there is? What exists beyond this life? Alex Duncan is just an ordinary 14 year old boy. His main worries are homework, girls, the school bully......and his sister, Jenna who has ovarian cancer, stage B. As his parents retreat into themselves, Alex is desperate to find a way to help, a way to make things better for his sister. After all, it’s the not knowing that’s the worst thing. Whilst he tries to untangle the ultimate question, life still goes on: his best friend seems oblivious to his feelings about her, the school bully has taken a special interest in him, and everything he does just makes him feel more and more awkward and out of place. Georgia Springate’s debut novel, Beyond, is a funny and touchingly compelling coming-of-age story about love, loss and discovery. Read it and take an emotional journey through one boy’s quest to understand that most tricky of questions: what lies beyond? (Publishers)
Frances Lincoln Children’s Books
A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher)
Bone Cancer Research Trust
Abbie Has Osteosarcoma is written for parents, carers and healthcare professionals to read with children to help them understand about their osteosarcoma and its treatment.
Children's Cancer and Leukaemia Group
Hair loss is a common side effect of having chemotherapy and of radiotherapy to the head. This book tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.
Children's Cancer and Leukaemia Group
A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.
Lymphoma Action
This factsheet about lymphoma in children (0 to 14 years old) is primarily intended for parents and carers and covers: What is lymphoma?; Types of lymphoma in children; Symptoms; Tests; Outlook; Treatment; Side effects and late effects of treatment; Relapsed and refractory lymphoma; After treatment; Further information and support.
Children's Cancer and Leukaemia Group
The huge amount of information online can be overwhelming, and sometimes conflicting, causing even more worry and stress. It is important that parents make sure that health information is filtered and gathered from reliable, easy to understand sources. As a parent or carer of a newly-diagnosed child, you may not feel confident when searching through cancer information. This leaflet offers advice and tips on where to start and what to look for.
Lymphoma Action
This factsheet covers common practical concerns of parents and carers looking after children and young people with lymphoma: When your child is diagnosed; Telling your child; Where your child will be treated; Changes to expect at home; If your child becomes unwell at home; Your child’s diet during treatment; Going back to school; Looking after yourself; Further information and support.
Children's Cancer and Leukaemia Group
This factsheet is written to help explain what is involved when you undergo a peripheral blood stem cell (PBSC) harvest. It explains what haematopoietic stem cells are, why they are collected, and what happens before, during and after the harvest.
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