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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 289

Cover image of 'Understanding breast cancer in women [Audio CD]'

Understanding breast cancer in women [Audio CD] (January 2019)

Macmillan Cancer Support

Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'Lenalidomide (Revlimid®)'

Lenalidomide (Revlimid®) (January 2019)

Myeloma UK

Lenalidomide, also known as Revlimid®, is an immunomodulatory drug (IMiD) used in the treatment of myeloma.This factsheet describes what it is, how it works, how it is given, and possible side-effects.

Cover image of 'Reduced fertility'

Reduced fertility (April 2019)

Lymphoma Action

This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (November 2019)

Lymphoma Action

This comprehensive booklet discusses Hodgkin lymphoma in detail.

Cover image of 'Immunotherapy in myeloma'

Immunotherapy in myeloma (November 2019)

Myeloma UK

This factsheet has information on on immunotherapy, a type of treatment being investigated in myeloma. It explains what imunotherapy treatment is, how it works, and the current evidence to support its use in the treatment of myeloma. It describes the main immunotherapies (monoclonal antibody drugs; CAR-T cell treatments; and oncolytic viruses) and their known possible side-effects, and the availability of immunotherapy treatment in the UK.

Cover image of 'Isatuximab'

Isatuximab (December 2019)

Myeloma UK

Isatuximab is a new drug that is being investigated for the treatment of myeloma. This factsheet describes briefly what it is, how it works, how it is given, the possible benefits over existing drugs, the possible side-effects, and its availability in the UK.

Cover image of 'Sore mouth (oral mucositis)'

Sore mouth (oral mucositis) (June 2019)

Lymphoma Action

Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.

Cover image of 'Thalidomide'

Thalidomide (January 2019)

Myeloma UK

This treatment guide has information about thalidomide, a drug used in the treatment of myeloma. It explains  what it is, how it works, and how it is given, and describes the possible side-effects.

Cover image of 'Bowel problems'

Bowel problems (August 2019)

Lymphoma Action

Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).

Cover image of 'Selinexor'

Selinexor (July 2019)

Myeloma UK

Selinexor is the first in a new family of drugs known as Selective Inhibitor of Nuclear Export (SINE™) compounds. This factsheet explains what it is, how it works, and how it is given. It also describes the evidence (clinical trials) to date, the possible side-effects, and the availability of Selinexor in the UK.

Cover image of 'Treatments for skin lymphoma'

Treatments for skin lymphoma (April 2019)

Lymphoma Action

This factsheet has information about the different treatments used for skin (cutaneous) lymphomas. It covers the following: How are skin lymphomas treated?; Active monitoring; Topical (skin-directed) treatments; Light treatment (phototherapy); Radiotherapy; Systemic (whole body) treatments; Stem cell transplants; Research and future treatments.

Cover image of 'Elotuzumab (Empliciti®)'

Elotuzumab (Empliciti®) (November 2019)

Myeloma UK

Elotuzumab is a new drug that is being investigated for the treatment of myeloma. This factsheet describes briefly what it is, how it works, how it is given, the possible benefits over existing drugs, the possible side-effects, its availability in the UK, and the future.

Cover image of 'Eating well during cancer treatment. Support your health during cancer treatment'

Eating well during cancer treatment. Support your health during cancer treatment (April 2019)

Penny Brohn UK

General advice to help you eat well during chemotherapy and radiotherapy; the challenges can be similar but where the information is specific to chemotherapy or radiotherapy, this will be stated. There’s no one way of eating that’s right for everyone so the general advice in this booklet will need to be adapted to you and your situation. It’s not intended to replace any advice given to you by a member of your healthcare team.

Cover image of 'Treatment for lymphoma [Easy read]'

Treatment for lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what treatment is, what chemotherapy, radiotherapy and stem cell transplants are, and what side effects you might get from treatment. 

Cover image of 'Venetoclax (Venclyxto®)'

Venetoclax (Venclyxto®) (August 2019)

Myeloma UK

This factsheet has information on venetoclax, a drug being investigated for the treatment of patients with the t(11;14) type of myeloma. It explains what venetoclax treatment is, how it works, and the current evidence to support its use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of venetoclax in the UK.

Cover image of 'Reolysin®'

Reolysin® (July 2019)

Myeloma UK

Reolysin, also known as pelareorep, is a type of oncolytic virus being investigated for the treatment of myeloma and various other cancers. This factsheet explains what reolysin is, how it works, and the current evidence to support its use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of reolysin in the UK.

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Fertility, pregnancy and breast cancer'

Fertility, pregnancy and breast cancer (October 2019)

Breast Cancer Now

This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman’s fertility, and possible ways of preserving fertility. It also includes information about pregnancy after a diagnosis of breast cancer, and permanent infertility. 

Cover image of 'Your pathway. A guide to bowel cancer treatment'

Your pathway. A guide to bowel cancer treatment (May 2019)

Bowel Cancer UK

This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes. 

Cover image of 'Pancreatic cancer. Treatment if you can't have surgery. An Easy Read booklet'

Pancreatic cancer. Treatment if you can't have surgery. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain treatments if you can’t have surgery, including chemotherapy and stents. 

Cover image of 'Day-to-day living'

Day-to-day living (June 2019)

Lymphoma Action

Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.

Cover image of 'Pancreatic cancer. Surgery to remove pancreatic cancer. An Easy Read booklet'

Pancreatic cancer. Surgery to remove pancreatic cancer. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain surgery to remove pancreatic cancer. 

Cover image of 'Eating well when eating becomes difficult. Support your health during cancer treatment'

Eating well when eating becomes difficult. Support your health during cancer treatment (April 2019)

Penny Brohn UK

This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

Cover image of 'Understanding oesophageal cancer'

Understanding oesophageal cancer (November 2019)

Macmillan Cancer Support

This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Azacitidine for acute myeloid leukaemia (AML). A guide for patients'

Azacitidine for acute myeloid leukaemia (AML). A guide for patients (June 2019)

Leukaemia Care

Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.

Cover image of 'Understanding melanoma that has come back in the same area'

Understanding melanoma that has come back in the same area (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).

Cover image of 'Understanding primary bone cancer'

Understanding primary bone cancer (March 2019)

Macmillan Cancer Support

This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.

Cover image of 'Cancer and your sex life'

Cancer and your sex life (June 2019)

Macmillan Cancer Support

This booklet is about how cancer and its treatment can affect your sex life. It is for anyone who needs information about this before, during or after cancer treatment. This information is for you whether or not you are in a relationship or having sex. We hope you find it helpful whatever your sexual orientation or gender. 

Cover image of 'Ependymoma (in children). What you need to know'

Ependymoma (in children). What you need to know (July 2019)

The Brain Tumour Charity

This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.

Cover image of 'Managing cancer pain'

Managing cancer pain (July 2019)

Macmillan Cancer Support

This booklet aims to help people understand more about cancer pain and the wide range of medical and complementary treatments available for controlling it. It describes pain and its possible causes, before covering individual methods of pain control. It includes a section on how to describe pain, a pullout pain diary, information about sources of support, and lists of useful organisation and websites.

Cover image of 'Thinking difficulties (cognitive impairment)'

Thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

Many people diagnosed with a brain tumour will have some form of cognitive impairment (difficulties with their thinking abilities), due to the presence of the tumour and the pressure it puts on the brain. This leaflet describes the types of impairment that might develop and how they are affected by the location of the tumour, treatment and drugs, and by emotional and psychological factors.

Cover image of 'Blood clot prevention. A guide for patients and carers'

Blood clot prevention. A guide for patients and carers (May 2019)

The Royal Marsden NHS Foundation Trust

This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.

Cover image of 'Sore mouth or gut (mucositis)'

Sore mouth or gut (mucositis) (December 2019)

Blood Cancer UK

Mucositis is a condition that affects your mucous membrane, the thin skin that covers and protects the inside surface of parts of your body. It can be a painful side effect of chemotherapy or radiotherapy. This factsheet explains how it is caused and who gets it, and describes the signs and symptoms, and how to look after yourself.

Cover image of 'Chemo companion. A friendly guide to chemotherapy and a collection of chemo stories'

Chemo companion. A friendly guide to chemotherapy and a collection of chemo stories (2019)

Rethink Street Publishing

This clear, concise book helps you to understand what chemotherapy may be doing to your body, your mind and your life. It gives you useful tips and information, practical advice and reassurance, and it reminds you that you are not alone. Part 1 is a brief GUIDE to the time before, during and after chemotherapy. It includes planning and preparation, common side effects, your thoughts and feelings, food and exercise, work and money issues, how you might feel after treatment, and where to find further help and support. Part 2 is a collection of STORIES based on true, real-life experiences of chemotherapy. Each one is candid and honest and shared in the spirit of kindness and friendship. Including an overly complicated salad, finding long lost relatives, flying paper aeroplanes, writing to new online pen-pals, and tips for friends who don't know what to say. (Publisher)

Cover image of 'Tommy v cancer. One man’s battle against the Big C. (Again).'

Tommy v cancer. One man’s battle against the Big C. (Again). (2019)

Independently published

In March 2016, cancer attacked me for the first time. I was diagnosed with inoperable, stage four throat cancer and underwent intensive courses of both chemotherapy and radiotherapy which left me extremely weak and vulnerable to infection. As a result, I contracted double pneumonia and sepsis and was rushed into intensive care where my family was told that, unless I began responding to treatment, I had approximately two hours left to live. Thankfully, I pulled through and set off upon the long road to recovery. It was the hardest thing I've ever faced but - eventually, in the summer of 2017 - I was declared cancer free.For a few months, at least. In January 2018, a routine scan found the cancer had returned - and had now spread to my lungs. Bugger. "Tommy v cancer: Round Two" continues the story of my fight to survive the 'Big C', salvage what remained of my career, and support my terrified family through yet another battle of life and death. (Publisher)

Cover image of 'Chemotherapy'

Chemotherapy (August 2018)

Prostate Cancer UK

This factsheet describes how chemotherapy is used to treat prostate cancer, the advantages and disadvantages, what it involves, the possible side effects and what happens after treatment finishes.

Cover image of 'Understanding chemotherapy [Audio CD]'

Understanding chemotherapy [Audio CD] (November 2018)

Macmillan Cancer Support

Audio CD of the booklet, which describes chemotherapy in detail, what it is, why and when it is given, how it is given, and the most common side-effects. Includes details of useful organisations and other resources such as books and websites, and a list of questions to ask about treatment.

Cover image of 'Chemotherapy'

Chemotherapy (September 2018)

Macmillan Cancer Support

This factsheet provides information on chemotherapy, what it is, when it is used, how it works, length of treatment, and side-effects.

Cover image of 'Chemotherapy [Portuguese]'

Chemotherapy [Portuguese] (September 2018)

Macmillan Cancer Support

This factsheet provides information about chemotherapy, including possible side-effects. Includes English language version.

Cover image of 'Chemotherapy [Punjabi]'

Chemotherapy [Punjabi] (September 2018)

Macmillan Cancer Support

This factsheet provides information about chemotherapy, including possible side-effects. Includes the English language version.

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