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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1748

Cover image of 'HPV testing'

HPV testing (March 2017)

Jo's Cervical Cancer Trust

HPV (human papillomavirus) testing has been introduced in the UK as part of the National Cervical Screening Programme. This booklet describes what HPV is, how it is transmitted, how the test is carried out and what happens if the result is positive.

Cover image of 'The facts about HPV'

The facts about HPV (2017)

Jo's Cervical Cancer Trust

A short film about HPV to dispel some of the myths surrounding the virus. It is hoped that it will help more people understand what the virus is, who can get it, how it can affect them, and what they can do to best protect themselves from cervical cancer. 

Cover image of 'Your smear test after treatment [Urdu]'

Your smear test after treatment [Urdu] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test after treatment [Polish]'

Your smear test after treatment [Polish] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test - after CIN treatment [Easy read]'

Your smear test - after CIN treatment [Easy read] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test after treatment'

Your smear test after treatment (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test after treatment [Chinese, Traditional]'

Your smear test after treatment [Chinese, Traditional] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Information for trans people. NHS Screening Programmes'

Information for trans people. NHS Screening Programmes (July 2017)

Public Health England

This leaflet is for trans (transgender) and non-binary people in England. It tells you about the adult NHS screening programmes that are available in England and explains who we invite for screening.

Cover image of 'Cervical screening and human papillomavirus (HPV) testing'

Cervical screening and human papillomavirus (HPV) testing (2016)

Public Health England

This leaflet tells you about HPV testing. This is a test carried out on the sample of cells taken during cervical screening. It makes no difference to what happens at your screening appointment. 

Cover image of 'Screening for life. Information about free NHS screening in Wales [Welsh]'

Screening for life. Information about free NHS screening in Wales [Welsh] (May 2016)

Breast Test Wales

Information about the free NHS screening tests offered by Public Health Wales, including breast screening, cervical screening and bowel screening. 

Cover image of 'Screening for life. Information about free NHS screening in Wales'

Screening for life. Information about free NHS screening in Wales (May 2016)

Breast Test Wales

Information about the free NHS screening tests offered by Public Health Wales, including breast screening, cervical screening and bowel screening. 

Cover image of 'Your guide to cervical screening (smear test)'

Your guide to cervical screening (smear test) (June 2015)

Jo's Cervical Cancer Trust

Every day eight women are diagnosed with cervical cancer and three die from the disease. Yet cervical cancer is largely preventable thanks to the NHS cervical screening programme and HPV vaccination programme. In the UK 22% of UK women do not attend their cervical screening (smear test) invitation. This short film aims to give you more information about smear tests: what the test is for and what will happen during the test. It also has information on Human Papillomavirus (HPV), a virus which is the main cause of cervical cancer and cervical abnormalities. The DVD (£5.00) includes versions in Arabic, Bengali Standard, Bengali Sylheti, Chinese, Hindi, Polish, Tamil, and Urdu. You can also watch all versions online.

Cover image of 'The smear test film'

The smear test film (2014)

Jo's Cervical Cancer Trust

'The Smear Test Film' is a health education film resource for women eligible for cervical screening (smear tests) who have mild and moderate learning disabilities. It has been made by Public Health England in association with Jo's Cervical Cancer Trust. Professional guidance and support in the development of this resource was provided by the Better Health Team for Learning Disabilities at Somerset Partnership NHS Foundation Trust. The film has been designed and made by women who have learning disabilities. It aims to give women and their carers information about smear tests and their role in preventing cervical cancer and help women make a decision about whether to attend their smear test invitation.

Cover image of 'A woman's disease. The history of cervical cancer'

A woman's disease. The history of cervical cancer (2011)

Oxford University Press

Cervical cancer is an emotive disease with multiple connotations. It has stood for the horror of cancer, the curse of femininity, the hope of cutting-edge medical technologies and the promise of screening for malignant tumours. For a long time, this disease was identified with the most dreaded aspects of malignancies: prolonged invalidity and chronic pain, but also physical degradation, shame and social isolation. Cervical cancer displayed in parallel the dangers of being a woman. In the 20th century, innovations initially developed to control cervical cancer - radiotherapy and radium therapy, exfoliate cytology (Pap smear), homogenisation of the 'staging' of tumours, mass campaigns for an early detection of precancerous lesions of the cervix - set standards for diagnosis, treatment and prevention of other malignancies. In the late 20th century, cervical cancer underwent another important change. With the display of the role of selected strands of HPV (Human Papilloma Virus) in the genesis of this malignancy, it was transformed into a sexually transmitted disease. This new understanding of cervical cancer linked it more firmly with lifestyle choices, and thus increased the danger of stigmatisation of patients; on the other hand it opened the possibility for efficient prevention of this malignancy through vaccination. Ilana Lowy follows the disease from antiquity to the 21st century, focussing on the period since the mid-19th century, during which cervical cancer was dissociated from other gynaecological disorders and became a distinct entity. Following the ways in which new developments in science, medicine, and society have affected beliefs about medical progress and an individual's responsibility, gender roles, reproduction, and sex, Lowy demonstrates our understanding of what cervical cancer is, and how it can be prevented and cured. (Publisher)

Cover image of 'Do I need a smear test?'

Do I need a smear test? (2010)

Health Scotland on behalf of the Family Advice and Information Resource

Illustrated booklet for women with learning difficulties. It explains what a smear test is, who should have one and when, and what the smear test will show.

Cover image of 'A guide to having a smear test'

A guide to having a smear test (2010)

Family Advice and Information Resource

Illustrated booklet for women with learning difficulties. It explains what a smear test is, why it is important to have one, and what happens during the examination.

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (May 2020)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients'

Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients (2020)

The Oesophageal Patients Association

This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'COVID-19 (coronavirus)'

COVID-19 (coronavirus) (March 2020)

Lymphoedema Support Network

Guidance for people with lymphoedema.

Cover image of 'Diet and pancreatic cancer'

Diet and pancreatic cancer (January 2020)

Pancreatic Cancer UK

This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy. 

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Now

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2020)

British Association of Dermatologists

This factsheet aims to help you to understand more about checking your lymph nodes yourself. It explains what lymph nodes are, why you should check them, how often you should perform a check, and how to check them.

Cover image of 'What is lymphoma?'

What is lymphoma? (March 2020)

Lymphoma Action

An overview of how cancer develops and what lymphoma is. 

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (August 2020)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (February 2020)

Breast Cancer Now

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'Planning for your funeral'

Planning for your funeral (February 2020)

Age UK

This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral. 

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Now

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Dying to be heard'

Dying to be heard (2020)

Hospice UK|Dying Matters

Guidance on how to be a good listener if someone wants to talk about death.

Cover image of 'Surgery'

Surgery (January 2020)

Macmillan Cancer Support

This factsheet explains why surgery may be used to treat cancer. It describes how the surgery is carried out, what happens before and after an operation, and the possible long-term complications, such as lymphoedema.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (July 2020)

Breast Cancer Now

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Help with health costs'

Help with health costs (August 2020)

Age UK

Most NHS services are free but there are charges for prescriptions, dental treatment, sight tests, glasses and contact lenses and wigs and fabric supports. This factsheet explains how the NHS Low Income Scheme helps people on a low income with charges and the cost of travelling to receive NHS treatment. The factsheet explains what you are entitled to if you: are aged 60 and over; receive Pension Credit Guarantee Credit.

Cover image of 'Surgery [Welsh]'

Surgery [Welsh] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Know your breasts. A quick guide to being breast aware [Chinese, Cantonese]'

Know your breasts. A quick guide to being breast aware [Chinese, Cantonese] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Surgery [Russian]'

Surgery [Russian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Docetaxel (Taxotere)'

Docetaxel (Taxotere) (October 2020)

Breast Cancer Now

This factsheet explains briefly what Taxotere® is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'Surgery [Urdu]'

Surgery [Urdu] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Polish]'

Surgery [Polish] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Arabic]'

Surgery [Arabic] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Gujarati]'

Surgery [Gujarati] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Surgery [Bengali]'

Surgery [Bengali] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Surgery [Portuguese]'

Surgery [Portuguese] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Romanian]'

Surgery [Romanian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Chinese, Traditional]'

Surgery [Chinese, Traditional] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Punjabi]'

Surgery [Punjabi] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English language version.

Cover image of 'Secondary breast cancer in the lung'

Secondary breast cancer in the lung (February 2020)

Breast Cancer Now

This booklet is for anyone diagnosed with secondary lung cancer that has spread from the breast. It describes what secondary breast cancer in the lung is, the symptoms and how they can be managed, the investigations that may be needed, and the treatment options.

Cover image of 'Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public'

Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public (January 2020)

National Institute for Health and Care Excellence (NICE)

Information about palbociclib (Ibrance), with fulvestrant, which is available through the Cancer Drugs Fund, and which may be used to treat hormone receptor-positive, HER2-negative, advanced breast cancer.

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