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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Your smear test results [Chinese, Traditional]'

Your smear test results [Chinese, Traditional] (2018)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Having a smear test [Easy read]'

Having a smear test [Easy read] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active. 

Cover image of 'Pelvic radiation disease'

Pelvic radiation disease (2018)

Guts UK

Pelvic radiation disease is a term used to describe a collection of symptoms that can arise after radiotherapy treatment to the abdomen or pelvis for cancers such as cervical, prostate, bladder and bowel cancers. This leaflet describes the causes, symptoms, how it is diagnosed, the treatment options, and the impact.

Cover image of 'Focus on common female cancers'

Focus on common female cancers (July 2018)

Cancer Focus Northern Ireland

Brief overview of the most common women's cancers (ovarian, cervical, womb and breast).

Cover image of 'The HPV vaccine for men who have sex with men [Easy read]'

The HPV vaccine for men who have sex with men [Easy read] (2018)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of 'Managing the late effects of pelvic radiotherapy in women'

Managing the late effects of pelvic radiotherapy in women (April 2018)

Macmillan Cancer Support

A booklet for women who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; early menopause; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'Cervical cancer'

Cervical cancer (March 2017)

Jo's Cervical Cancer Trust

This booklet describes what cervical cancer is, the symptoms, causes, the different types and (briefly) the treatment options.

Cover image of 'Cervical cancer. The facts'

Cervical cancer. The facts (March 2017)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about cervical cancer, including incidence, the symptoms to look out for, how to reduce the risk, and cervical screening.

Cover image of 'Your guide to cervical cancer'

Your guide to cervical cancer (March 2017)

Jo's Cervical Cancer Trust

A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.  

Cover image of 'Cervical screening. The facts'

Cervical screening. The facts (March 2017)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about cervical screening. It also describes briefly what happens during cervical screening and who is invited for screening, and has tips for coping if you are nervous or worried.

Cover image of 'Cervical screening (smear test)'

Cervical screening (smear test) (March 2017)

Jo's Cervical Cancer Trust

This booklet explains what cervical screening is, who is eligible, the test itself, and what happens if the result is abnormal.

Cover image of 'Abnormal cervical screening results. The facts'

Abnormal cervical screening results. The facts (May 2017)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about abnormal cervical screening results in the UK. It also describes briefly the type of abnormal screening results, further tests, and treatment for abnormal cells. It also describes the services that Jo's Cervical Cancer Trust offers to anyone just diagnosed with cervical abnormalities.

Cover image of 'Ovarian and cervical cancer'

Ovarian and cervical cancer (May 2017)

Action Cancer

Z-card with facts about cervical and ovarian cancer, including symptoms and risk factors, diagnosis, the smear test, HPV vaccine and ways to lower your risk of getting cervical cancer. 

Cover image of 'What women need to know about... cervical cancer'

What women need to know about... cervical cancer (March 2017)

The Eve Appeal

Key information about cervical cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer. 

Cover image of 'HPV vaccine'

HPV vaccine (March 2017)

Jo's Cervical Cancer Trust

This booklet describes HPV (human papillomavirus) and how the vaccine works. It explains where girls can get the vaccine, how effective it is and the possible side effects.

Cover image of 'Human papillomavirus (HPV). The facts'

Human papillomavirus (HPV). The facts (March 2017)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about HPV, high risk HPV and cervical cancer, contracting high risk HPV and how to reduce your risk. It also describes the services that Jo's Cervical Cancer Trust offers to anyone concerned about HPV, cervical screening, cervical abnormalities and cervical cancer.

Cover image of 'Large loop excision of the transformation zone (LLETZ)'

Large loop excision of the transformation zone (LLETZ) (March 2017)

Jo's Cervical Cancer Trust

This booklet describes LLETZ (large loop excision of the transformation zone), which may be carried out after an abnormal cervical smear.

Cover image of 'HPV testing'

HPV testing (March 2017)

Jo's Cervical Cancer Trust

HPV (human papillomavirus) testing has been introduced in the UK as part of the National Cervical Screening Programme. This booklet describes what HPV is, how it is transmitted, how the test is carried out and what happens if the result is positive.

Cover image of 'Human papillomavirus (HPV)'

Human papillomavirus (HPV) (March 2017)

Jo's Cervical Cancer Trust

This booklet explains what HPV (human papillomavirus) is and the link with cervical cancer. It describes how HPV is transmitted, how to reduce the risk, and testing for HPV.

Cover image of 'The facts about HPV'

The facts about HPV (2017)

Jo's Cervical Cancer Trust

A short film about HPV to dispel some of the myths surrounding the virus. It is hoped that it will help more people understand what the virus is, who can get it, how it can affect them, and what they can do to best protect themselves from cervical cancer. 

Cover image of 'Your smear test after treatment [Urdu]'

Your smear test after treatment [Urdu] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test after treatment [Polish]'

Your smear test after treatment [Polish] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test - after CIN treatment [Easy read]'

Your smear test - after CIN treatment [Easy read] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test after treatment'

Your smear test after treatment (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Your smear test after treatment [Chinese, Traditional]'

Your smear test after treatment [Chinese, Traditional] (2017)

NHS Health Scotland

This leaflet describes cervical screening tests after treatment for cervical intraepithelial neoplasia (CIN). It explains what CIN is, what happens after treatment, and why women are now tested for HPV six months after treatment for CIN.

Cover image of 'Information for trans people. NHS Screening Programmes'

Information for trans people. NHS Screening Programmes (July 2017)

Public Health England

This leaflet is for trans (transgender) and non-binary people in England. It tells you about the adult NHS screening programmes that are available in England and explains who we invite for screening.

Cover image of 'Cervical screening and human papillomavirus (HPV) testing'

Cervical screening and human papillomavirus (HPV) testing (2016)

Public Health England

This leaflet tells you about HPV testing. This is a test carried out on the sample of cells taken during cervical screening. It makes no difference to what happens at your screening appointment. 

Cover image of 'Screening for life. Information about free NHS screening in Wales [Welsh]'

Screening for life. Information about free NHS screening in Wales [Welsh] (May 2016)

Breast Test Wales

Information about the free NHS screening tests offered by Public Health Wales, including breast screening, cervical screening and bowel screening. 

Cover image of 'Screening for life. Information about free NHS screening in Wales'

Screening for life. Information about free NHS screening in Wales (May 2016)

Breast Test Wales

Information about the free NHS screening tests offered by Public Health Wales, including breast screening, cervical screening and bowel screening. 

Cover image of 'Your guide to cervical screening (smear test)'

Your guide to cervical screening (smear test) (June 2015)

Jo's Cervical Cancer Trust

Every day eight women are diagnosed with cervical cancer and three die from the disease. Yet cervical cancer is largely preventable thanks to the NHS cervical screening programme and HPV vaccination programme. In the UK 22% of UK women do not attend their cervical screening (smear test) invitation. This short film aims to give you more information about smear tests: what the test is for and what will happen during the test. It also has information on Human Papillomavirus (HPV), a virus which is the main cause of cervical cancer and cervical abnormalities. The DVD (£5.00) includes versions in Arabic, Bengali Standard, Bengali Sylheti, Chinese, Hindi, Polish, Tamil, and Urdu. You can also watch all versions online.

Cover image of 'The smear test film'

The smear test film (2014)

Jo's Cervical Cancer Trust

'The Smear Test Film' is a health education film resource for women eligible for cervical screening (smear tests) who have mild and moderate learning disabilities. It has been made by Public Health England in association with Jo's Cervical Cancer Trust. Professional guidance and support in the development of this resource was provided by the Better Health Team for Learning Disabilities at Somerset Partnership NHS Foundation Trust. The film has been designed and made by women who have learning disabilities. It aims to give women and their carers information about smear tests and their role in preventing cervical cancer and help women make a decision about whether to attend their smear test invitation.

Cover image of 'A woman's disease. The history of cervical cancer'

A woman's disease. The history of cervical cancer (2011)

Oxford University Press

Cervical cancer is an emotive disease with multiple connotations. It has stood for the horror of cancer, the curse of femininity, the hope of cutting-edge medical technologies and the promise of screening for malignant tumours. For a long time, this disease was identified with the most dreaded aspects of malignancies: prolonged invalidity and chronic pain, but also physical degradation, shame and social isolation. Cervical cancer displayed in parallel the dangers of being a woman. In the 20th century, innovations initially developed to control cervical cancer - radiotherapy and radium therapy, exfoliate cytology (Pap smear), homogenisation of the 'staging' of tumours, mass campaigns for an early detection of precancerous lesions of the cervix - set standards for diagnosis, treatment and prevention of other malignancies. In the late 20th century, cervical cancer underwent another important change. With the display of the role of selected strands of HPV (Human Papilloma Virus) in the genesis of this malignancy, it was transformed into a sexually transmitted disease. This new understanding of cervical cancer linked it more firmly with lifestyle choices, and thus increased the danger of stigmatisation of patients; on the other hand it opened the possibility for efficient prevention of this malignancy through vaccination. Ilana Lowy follows the disease from antiquity to the 21st century, focussing on the period since the mid-19th century, during which cervical cancer was dissociated from other gynaecological disorders and became a distinct entity. Following the ways in which new developments in science, medicine, and society have affected beliefs about medical progress and an individual's responsibility, gender roles, reproduction, and sex, Lowy demonstrates our understanding of what cervical cancer is, and how it can be prevented and cured. (Publisher)

Cover image of 'Do I need a smear test?'

Do I need a smear test? (2010)

Health Scotland on behalf of the Family Advice and Information Resource

Illustrated booklet for women with learning difficulties. It explains what a smear test is, who should have one and when, and what the smear test will show.

Cover image of 'A guide to having a smear test'

A guide to having a smear test (2010)

Family Advice and Information Resource

Illustrated booklet for women with learning difficulties. It explains what a smear test is, why it is important to have one, and what happens during the examination.

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'COVID-19 (coronavirus)'

COVID-19 (coronavirus) (March 2020)

Lymphoedema Support Network

Guidance for people with lymphoedema.

Cover image of 'Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients'

Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients (2020)

The Oesophageal Patients Association

This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.

Cover image of 'Diet and pancreatic cancer'

Diet and pancreatic cancer (January 2020)

Pancreatic Cancer UK

This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy. 

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Care

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'What is lymphoma?'

What is lymphoma? (March 2020)

Lymphoma Action

An overview of how cancer develops and what lymphoma is. 

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (February 2020)

Breast Cancer Care

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Care

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Surgery'

Surgery (January 2020)

Macmillan Cancer Support

This factsheet explains why surgery may be used to treat cancer. It describes how the surgery is carried out, what happens before and after an operation, and the possible long-term complications, such as lymphoedema.

Cover image of 'Surgery [Welsh]'

Surgery [Welsh] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Russian]'

Surgery [Russian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Know your breasts. A quick guide to being breast aware [Chinese, Cantonese]'

Know your breasts. A quick guide to being breast aware [Chinese, Cantonese] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Surgery [Urdu]'

Surgery [Urdu] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Polish]'

Surgery [Polish] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Punjabi]'

Surgery [Punjabi] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English language version.

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