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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Bowel cancer screening. A guide to bowel cancer screening in England'

Bowel cancer screening. A guide to bowel cancer screening in England (November 2019)

Bowel Cancer UK

This leaflet describes bowel screening in England: what bowel cancer screening is; why it is important; what the test involves; who can take part; and what happens after the test.

Cover image of 'Know your breasts. A quick guide to being breast aware'

Know your breasts. A quick guide to being breast aware (July 2019)

Breast Cancer Care

Illustrated mini leaflet showing women how to check their breasts.

Cover image of 'Active surveillance as a management for early prostate cancer'

Active surveillance as a management for early prostate cancer (August 2019)

Prostate Scotland

A leaflet to help men decide if active surveillance is right for them.

Cover image of 'Ascites and ascitic drainage. Build-up of fluid in the abdomen (tummy) and how it can be treated'

Ascites and ascitic drainage. Build-up of fluid in the abdomen (tummy) and how it can be treated (September 2019)

Marie Curie

This leaflet aims to help you understand ascites (build-up of fluid in the abdomen), what causes it and how it can be treated. It explains how the fluid can be removed in a procedure called ascitic drainage, or paracentesis. 

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Caring for someone with an illness they will probably die from. Money and work [Easy read]'

Caring for someone with an illness they will probably die from. Money and work [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about money and work if you are caring for someone with an illness they will probably die from.

Cover image of 'Eating well when eating becomes difficult. Support your health during cancer treatment'

Eating well when eating becomes difficult. Support your health during cancer treatment (April 2019)

Penny Brohn UK

This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.

Cover image of 'If your prostate cancer comes back. A guide to treatment and support'

If your prostate cancer comes back. A guide to treatment and support (July 2019)

Prostate Cancer UK

This booklet is for men who are worried that their prostate cancer might come back, or whose cancer has recurred after one or more treatments. It describes why prostate cancer might come back, the treatment options, and how to get support. It has space to record the names and contact details of the health professionals involved in ongoing care, details of appointments, and results of PSA tests. Includes a glossary.

Cover image of 'Pancreatic cancer. Treating symptoms and getting support. An Easy Read booklet'

Pancreatic cancer. Treating symptoms and getting support. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain how symptoms like diet problems and pain are treated, and how you can get support. 

Cover image of 'Deciding on treatment: a step on your journey'

Deciding on treatment: a step on your journey (July 2019)

Prostate Scotland

Guidance for men who are making a decision about treatment. Includes a chart with brief details of the treatments, what's involved and potential side effects.

Cover image of 'Looking after someone. Information and support for carers in Wales [Welsh]'

Looking after someone. Information and support for carers in Wales [Welsh] (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Pancreatic cancer. Treatment if you can't have surgery. An Easy Read booklet'

Pancreatic cancer. Treatment if you can't have surgery. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain treatments if you can’t have surgery, including chemotherapy and stents. 

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'Active ostomates. Sport and fitness after stoma surgery'

Active ostomates. Sport and fitness after stoma surgery (November 2019)

Colostomy UK

Adapting to life with a stoma can be challenging and the thought of exercise may well be the last thing on your mind as you recover from surgery. This booklet has advice on exercises to try and how to manage your stoma while exercising or playing sport.

Cover image of 'Prostate cancer. A guide for men who've just been diagnosed [large print]'

Prostate cancer. A guide for men who've just been diagnosed [large print] (May 2019)

Prostate Cancer UK

This booklet is for men who have been recently diagnosed with prostate cancer. It describes the prostate, how prostate cancer is diagnosed, what the test results mean, the treatment options, and the support available. It has space to record contact details and other information that may be useful, such as appointment times and PSA levels.

Cover image of 'About colonic stenting'

About colonic stenting (September 2019)

Bowel Cancer UK

This factsheet is about using a stent to unblock your bowel if it has become blocked due to bowel cancer. It explains why you might have a stent fitted, what’s involved, and the possible complications. 

Cover image of 'Working while caring for someone with cancer [Bengali]'

Working while caring for someone with cancer [Bengali] (April 2019)

Macmillan Cancer Support

This factsheet is a translation of selected pages of the Macmillan booklet (MAC11688_E06_N)

Cover image of 'Know your breasts. A quick guide to being breast aware [Punjabi]'

Know your breasts. A quick guide to being breast aware [Punjabi] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Talking to children and teenagers when an adult has cancer [Gujarati]'

Talking to children and teenagers when an adult has cancer [Gujarati] (2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Gujarati. Includes why tell children, telling your children, explaining cancer and ways of talking to different age groups.

Cover image of 'Talking to children and teenagers when an adult has cancer [Urdu]'

Talking to children and teenagers when an adult has cancer [Urdu] (2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Urdu. Includes the benefits of talking, how to talk, and information for specific age groups: babies and toddlers; younger children; older children; and teenagers.

Cover image of 'Know your breasts. A quick guide to being breast aware [Gujarati]'

Know your breasts. A quick guide to being breast aware [Gujarati] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Your rights at work when you are affected by cancer'

Your rights at work when you are affected by cancer (March 2019)

Macmillan Cancer Support

This booklet is for people affected by cancer, including carers, who would like to know more about their rights at work. 

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Macmillan Cancer Support core books list'

Macmillan Cancer Support core books list (May 2019)

Macmillan Cancer Support

We have produced the Core Books List to help public libraries and cancer information and support centres improve the quality and reliability of the cancer books they stock. The list includes books about cancer itself and people’s experience of living with cancer. All the books on the list have been reviewed favourably by our volunteer book reviewers. This list is not prescriptive but intended to help libraries to make informed choices between the very wide range of books available, which can be of variable quality and accuracy. Please note: Inclusion of a book in this list does not imply endorsement by Macmillan Cancer Support.

Cover image of 'Talking to children and teenagers when an adult has cancer [Turkish]'

Talking to children and teenagers when an adult has cancer [Turkish] (2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Talking to children and teenagers when an adult has cancer” (MAC5766_E04_N) into Turkish.

Cover image of 'Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet'

Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain what pancreatic cancer is and how it is diagnosed. 

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'Know your breasts. A quick guide to being breast aware [Arabic]'

Know your breasts. A quick guide to being breast aware [Arabic] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia Care

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Stage 4 melanoma'

Stage 4 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 4 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 2 melanoma'

Stage 2 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 2 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 1A melanoma'

Stage 1A melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1A melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 3 melanoma'

Stage 3 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 3 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 1B melanoma'

Stage 1B melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1B melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Photodynamic therapy'

Photodynamic therapy (May 2019)

British Association of Dermatologists

This factsheet aims to help you understand more about photodynamic therapy, which may be used to treat basal cell carcinoma and areas of pre-cancerous skin damage. It explains what it is and what is involved, and describes the potential side effects.

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Breast screening [Portuguese]'

Breast screening [Portuguese] (July 2019)

Macmillan Cancer Support

A translation of selected pages (14-25, 28-34) from Macmillan Cancer Support’s booklet “Understanding breast screening” (MAC11674_E07_N).

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia Care

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'Book reviews'

Book reviews (December 2019)

Macmillan Cancer Support

Cover image of 'Managing breathlessness [Polish]'

Managing breathlessness [Polish] (March 2019)

Macmillan Cancer Support

Polish translation of selected pages from the Macmillan booklet "Managing breathlessness" (MAC12918_E04_N).

Cover image of 'When someone dies. Feelings you might have [Easy read]'

When someone dies. Feelings you might have [Easy read] (June 2019)

Marie Curie

This easy read booklet is to help people after someone dies. It tells you about feelings you might have and things that might make you feel better.

Cover image of '10 top tips for line managers'

10 top tips for line managers (April 2019)

Macmillan Cancer Support

Ten tips to help line managers support an employee through the cancer journey, from diagnosis through treatment and living with cancer.

Cover image of 'Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read]'

Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how to keep comfortable, healthy and happy.

Cover image of 'Planning ahead for the end of life (England and Wales) [Gujarati]'

Planning ahead for the end of life (England and Wales) [Gujarati] (November 2019)

Macmillan Cancer Support

A translation of selected pages (56-59: Do not attempt cardiopulmonary resuscitation) from Macmillan Cancer Support’s booklet “Planning ahead for the end of life" [MAC13616_E03_N]

Cover image of 'Bowel screening test kit instructions [Welsh]'

Bowel screening test kit instructions [Welsh] (January 2019)

Bowel Screening Wales

Instructions on how to use the bowel screening test kit.

Cover image of 'What to expect at the end of someone's life. Information for family, friends and carers'

What to expect at the end of someone's life. Information for family, friends and carers (July 2019)

Marie Curie

This leaflet aims to help you prepare for the end of your partner, relative or friend’s life. Knowing what to expect can help you prepare yourself for their last few weeks and days. 

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'Fertility. Support for young people affected by cancer'

Fertility. Support for young people affected by cancer (September 2019)

Macmillan Cancer Support

This booklet is about how cancer and its treatment can affect your fertility. It is for teenagers and young people who need information about this before, during or after cancer treatment, whether you are in a relationship or not and whatever your sexual orientation. It explains how cancer and cancer treatment may affect your fertility and has information about preserving your fertility, having fertility tests, fertility treatments and other options for having a child. It also tells you how to get more support. 

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