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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Living with lymphoedema after breast cancer'

Living with lymphoedema after breast cancer (April 2019)

Breast Cancer Care

This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.

Cover image of 'Complementary therapies. Evidence-based information to help you self-manage your cancer experience'

Complementary therapies. Evidence-based information to help you self-manage your cancer experience (June 2019)

Penny Brohn UK

This information sheet aims to provide clearly sourced and reliable information to help you make informed choices about the range of complementary therapies on offer to support people with cancer. It covers acupuncture, healing, massage, reflexology, and shiatsu.

Cover image of 'Prostate cancer. A guide for men who've just been diagnosed'

Prostate cancer. A guide for men who've just been diagnosed (May 2019)

Prostate Cancer UK

This booklet is for men who have been recently diagnosed with prostate cancer. It describes the prostate, how prostate cancer is diagnosed, what the test results mean, the treatment options, and the support available. It has space to record contact details and other information that may be useful, such as appointment times and PSA levels.

Cover image of 'Planning for your funeral'

Planning for your funeral (February 2019)

Age UK

This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral. 

Cover image of 'Managing fatigue. A guide to making the most of your energy'

Managing fatigue. A guide to making the most of your energy (October 2019)

Marie Curie

Fatigue isn't like normal tiredness. It doesn't go away after rest or a good night's sleep. But there are things you can do to help manage it. This booklet has practical tips on making the most of the energy you have. 

Cover image of 'A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family'

A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family (July 2019)

Advanced Cancers Coalition

This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]

Cover image of 'Being cared for at home'

Being cared for at home (July 2019)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Fertility, pregnancy and breast cancer'

Fertility, pregnancy and breast cancer (October 2019)

Breast Cancer Now

This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman’s fertility, and possible ways of preserving fertility. It also includes information about pregnancy after a diagnosis of breast cancer, and permanent infertility. 

Cover image of 'FEC chemotherapy'

FEC chemotherapy (February 2019)

Breast Cancer Care

This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.

Cover image of 'Living with an illness you will probably die from. Your feelings [Easy read]'

Living with an illness you will probably die from. Your feelings [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how they might feel and what might help.

Cover image of 'Financial support - help with costs [Chinese, Traditional]'

Financial support - help with costs [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Financial support - help with costs [Urdu]'

Financial support - help with costs [Urdu] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes the English-language version.

Cover image of 'Exercises after breast cancer surgery'

Exercises after breast cancer surgery (April 2019)

Breast Cancer Care

This leaflet explains why exercise is necessary after breast surgery, when to start exercising, and how long to carry on. It opens out into a poster that demonstrates exercises for the days and weeks after surgery.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'Surgery to remove pancreatic cancer'

Surgery to remove pancreatic cancer (March 2019)

Pancreatic Cancer UK

This factsheet is for people diagnosed with pancreatic cancer who are having surgery to remove the cancer. Family members may also find it helpful. We describe the different types of surgery to remove pancreatic cancer, how to prepare for your operation, what to expect, and recovery afterwards. This factsheet does not cover surgery for pancreatic neuroendocrine tumours (PNETs).  

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'FEC-T chemotherapy'

FEC-T chemotherapy (February 2019)

Breast Cancer Care

This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).

Cover image of 'Living with an illness you will probably die from. Who can help? [Easy read]'

Living with an illness you will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.

Cover image of 'What is bowel cancer? What it is, who’s at risk and what to look out for'

What is bowel cancer? What it is, who’s at risk and what to look out for (June 2019)

Bowel Cancer UK

A5 leaflet outlining what bowel cancer is, who's at risk and what symptoms to look out for. 

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'Advice for carers. A practical guide'

Advice for carers. A practical guide (May 2019)

Age UK

This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life. 

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Financial support - help with costs [Polish]'

Financial support - help with costs [Polish] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes the English-language version.

Cover image of 'Financial support - help with costs [Russian]'

Financial support - help with costs [Russian] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Financial support - help with costs [Arabic]'

Financial support - help with costs [Arabic] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Your pathway. A guide to bowel cancer treatment'

Your pathway. A guide to bowel cancer treatment (May 2019)

Bowel Cancer UK

This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes. 

Cover image of 'Ovarian cancer, diet and nutrition'

Ovarian cancer, diet and nutrition (June 2019)

Target Ovarian Cancer

When you have ovarian cancer you might find that your appetite (the amount you want to eat) and the types of food you want to eat are different from before. You might also be wondering if there is anything you can change about your diet (including eating or not eating specific foods) that might impact on how your cancer acts or how effective your treatment is. This booklet aims to give you an overview of the evidence for diet and nutrition in relation to ovarian cancer so that you can make choices that are right for you. 

Cover image of 'Financial support - help with costs [Gujarati]'

Financial support - help with costs [Gujarati] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Reducing the risk of lymphoedema'

Reducing the risk of lymphoedema (April 2019)

Breast Cancer Care

This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).

Cover image of 'Financial support - help with costs [Romanian]'

Financial support - help with costs [Romanian] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Your body, intimacy and sex'

Your body, intimacy and sex (November 2019)

Breast Cancer Now

Breast cancer and its treatments can cause many physical and emotional changes. This booklet outlines how these changes can alter the way you feel about your body, and how they may affect sex and intimacy. The booklet covers many topics including getting used to changes to your body, how breast cancer and its treatments may affect your sex life or intimate relationships, and offers tips on sex and intimacy after treatment. 

Cover image of 'Financial support - help with costs [Punjabi]'

Financial support - help with costs [Punjabi] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes the English-language version.

Cover image of 'Living well. After bowel cancer treatment'

Living well. After bowel cancer treatment (August 2019)

Bowel Cancer UK

The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work. 

Cover image of 'Financial support - help with costs [Bengali]'

Financial support - help with costs [Bengali] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged'

Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged (June 2019)

Age UK

This guide aims to put older people at ease if they are going to be admitted to hospital. It will help them: prepare for going into hospital; understand their rights in hospital; understand the discharge process; and be more informed about care afterwards. It may also be useful for relatives and friends, as it can be a difficult time for them too. 

Cover image of 'Eating well. A guide to diet and bowel cancer'

Eating well. A guide to diet and bowel cancer (May 2019)

Bowel Cancer UK

This booklet has information about how food can affect your symptoms during and after bowel cancer treatment. After treatment, you may find you can’t eat the same foods as you did before. These changes may be temporary or they may be longer-lasting. 

Cover image of 'Trastuzumab (Herceptin)'

Trastuzumab (Herceptin) (February 2019)

Breast Cancer Care

This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience. 

Cover image of 'How to stop smoking and stay stopped'

How to stop smoking and stay stopped (2019)

NHS Health Scotland

This booklet is for smokers who are seriously thinking of giving up smoking. The contents include: Thinking about stopping; Preparing to stop; Stopping; Staying stopped; Further help; Medications.

Cover image of 'Managing breathlessness. A guide to breathing techniques, medication and other things that can help'

Managing breathlessness. A guide to breathing techniques, medication and other things that can help (October 2019)

Marie Curie

If you have breathlessness, this booklet may be helpful for you. It’s aimed at people with a life-limiting or terminal illness and may be helpful at any stage of your illness. It describes things you can do yourself to manage breathlessness, and who can help you.

Cover image of 'Minimal access radical prostatectomy for prostate cancer'

Minimal access radical prostatectomy for prostate cancer (February 2019)

Prostate Scotland

This booklet is to help men whose cancer has not spread beyond the prostate understand more about minimal access surgery to remove the prostate (also known as robotic assisted radical prostatectomy and laparoscopic radical prostatectomy). It covers what it is, who it’s suitable for, what happens and the advantages and drawbacks of this type of treatment. It may help men decide if this might be the right treatment choice for them.

Cover image of 'How to stop smoking and stay stopped [Polish]'

How to stop smoking and stay stopped [Polish] (2019)

NHS Health Scotland

This booklet is for smokers who are seriously thinking of giving up smoking. The contents include: Thinking about stopping; Preparing to stop; Stopping; Staying stopped; Further help; Medications.

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'Know your breasts. A quick guide to being breast aware [Welsh]'

Know your breasts. A quick guide to being breast aware [Welsh] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts. Includes the English-language version.

Cover image of 'Bowel cancer screening. A guide to bowel cancer screening in England'

Bowel cancer screening. A guide to bowel cancer screening in England (November 2019)

Bowel Cancer UK

This leaflet describes bowel screening in England: what bowel cancer screening is; why it is important; what the test involves; who can take part; and what happens after the test.

Cover image of 'Living with an illness you will probably die from. Your family and friends [Easy read]'

Living with an illness you will probably die from. Your family and friends [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about talking to family and friends.

Cover image of 'Pancreatic cancer. Surgery to remove pancreatic cancer. An Easy Read booklet'

Pancreatic cancer. Surgery to remove pancreatic cancer. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain surgery to remove pancreatic cancer. 

Cover image of 'Know your breasts. A guide to breast awareness and screening'

Know your breasts. A guide to breast awareness and screening (July 2019)

Breast Cancer Care

This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.

Cover image of 'When someone dies. Practical and emotional help at a difficult time [Welsh]'

When someone dies. Practical and emotional help at a difficult time [Welsh] (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Know your breasts. A quick guide to being breast aware'

Know your breasts. A quick guide to being breast aware (July 2019)

Breast Cancer Care

Illustrated mini leaflet showing women how to check their breasts.

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