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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Permanent seed brachytherapy'

Permanent seed brachytherapy (March 2019)

Prostate Cancer UK

This factsheet describes how permanent seed brachytherapy may be used to treat prostate cancer, who can have it, the advantages and disadvantages, what happens after treatment, and the possible side effects. It does not describe external beam radiotherapy or high dose rate brachytherapy.

Cover image of 'Understanding primary bone cancer'

Understanding primary bone cancer (March 2019)

Macmillan Cancer Support

This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.

Cover image of 'Sex and relationships. Support for young people affected by cancer'

Sex and relationships. Support for young people affected by cancer (May 2019)

Macmillan Cancer Support

This booklet is about cancer, sex and relationships. It is for teenagers and young people who are having or have had cancer treatment. It may also help carers, family members and friends. The booklet explains how cancer and cancer treatment may affect your relationships and sex life. It also gives information about coping with any changes and how to get more support.

Cover image of 'A story about cancer (with a happy ending)'

A story about cancer (with a happy ending) (2019)

Frances Lincoln Children’s Books

A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher) 

Cover image of 'Chronic myeloid leukaemia (CML)'

Chronic myeloid leukaemia (CML) (January 2019)

Bloodwise

This booklet explains what chronic myeloid leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Cancer treatment and fertility. Information for women'

Cancer treatment and fertility. Information for women (September 2019)

Macmillan Cancer Support

This booklet is for anyone who needs information about how cancer and its treatments can affect fertility. It explains how cancer treatments can affect fertility, how fertility can be preserved before cancer treatment, how fertility can be tested after treatment, options for fertility treatment to start a pregnancy, and other options for having a child. This booklet is for anyone who needs information on this before, during or after cancer treatment.

Cover image of 'Focus on men's health'

Focus on men's health (January 2019)

Cancer Focus Northern Ireland

Lifestyle tips for men to help reduce the risk of cancer.

Cover image of 'Understanding stomach cancer'

Understanding stomach cancer (September 2019)

Macmillan Cancer Support

This booklet is for anyone who has been diagnosed with stomach cancer. There is also information for carers, family members and friends. It talks about the signs and symptoms of stomach cancer and explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'A-Z of medical words'

A-Z of medical words (July 2019)

Prostate Cancer UK

This factsheet explains some of the words that people may read or hear when they are finding out about prostate problems and prostate cancer.

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

Cover image of 'Financial support - help with costs [Welsh]'

Financial support - help with costs [Welsh] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Focus on women's health'

Focus on women's health (January 2019)

Cancer Focus Northern Ireland

Lifestyle tips for women to help reduce the risk of cancer.

Cover image of 'Working while caring for someone with cancer'

Working while caring for someone with cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help working carers cope with work issues they may face because of the impact of their caring role on working life. It describes who a carer is, the different ways of caring, and the impact of cancer treatment on the working carer. It has advice about what to say at work, talking to employers, the legal rights of carers in paid work, social care, financial support, and bereavement. Includes details of useful organisations and websites.

Cover image of 'Prostate log book'

Prostate log book (July 2019)

Prostate Scotland

A log book for men to keep a record of appointments, the names of their health professionals, and the results of tests.

Cover image of 'Total penectomy'

Total penectomy (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the aftercare, including catheters, and possible complications of a total penectomy

Cover image of 'Talking with someone who has cancer'

Talking with someone who has cancer (May 2019)

Macmillan Cancer Support

This booklet is about talking with someone who has cancer. It is for anyone who wants to support someone with cancer, including carers, family members and friends. The booklet explains how to talk to and support someone who has cancer.  

Cover image of 'Metastatic spinal cord compression (MSCC)'

Metastatic spinal cord compression (MSCC) (February 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.

Cover image of 'Financial support - benefits [Chinese, Traditional]'

Financial support - benefits [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Colonoscopy through the stoma - a patient's perspective'

Colonoscopy through the stoma - a patient's perspective (June 2019)

Colostomy UK

This leaflet describes how a colonoscopy through the stoma is carried out, the preparation beforehand (bowel cleansing), what happens afterwards and the possible risks. It also explains what polyps are.

Cover image of 'Partial penectomy'

Partial penectomy (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the aftercare, including catheters, and possible complications of a partial penectomy 

Cover image of 'Glans resurfacing and split skin graft/Glansectomy'

Glans resurfacing and split skin graft/Glansectomy (March 2019)

Orchid – Fighting Male Cancer

This information sheet describes glans resurfacing and glansectomy,  how surgery is carried out, aftercare, and possible complications.

Cover image of 'Myelodysplastic syndromes (MDS)'

Myelodysplastic syndromes (MDS) (March 2019)

Bloodwise

This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Acute lymphoblastic leukaemia (ALL) in adults'

Acute lymphoblastic leukaemia (ALL) in adults (February 2019)

Bloodwise

This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.

Cover image of 'Managing cancer pain'

Managing cancer pain (July 2019)

Macmillan Cancer Support

This booklet aims to help people understand more about cancer pain and the wide range of medical and complementary treatments available for controlling it. It describes pain and its possible causes, before covering individual methods of pain control. It includes a section on how to describe pain, a pullout pain diary, information about sources of support, and lists of useful organisation and websites.

Cover image of 'Looking after someone with cancer'

Looking after someone with cancer (May 2019)

Macmillan Cancer Support

This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.

Cover image of 'The bowel screening test. What you need to know [Urdu]'

The bowel screening test. What you need to know [Urdu] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Looking after someone. Information and support for carers in Northern Ireland'

Looking after someone. Information and support for carers in Northern Ireland (November 2019)

Carers Northern Ireland

Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer. 

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Clinical trials'

Clinical trials (January 2019)

Kidney Cancer UK

Factsheet with information about clinical trials. It describes the different phases of trials, who conducts trials and where they take place and has advice about deciding whether to participate.

Cover image of 'Tommy v cancer. One man’s battle against the Big C. (Again).'

Tommy v cancer. One man’s battle against the Big C. (Again). (2019)

Independently published

In March 2016, cancer attacked me for the first time. I was diagnosed with inoperable, stage four throat cancer and underwent intensive courses of both chemotherapy and radiotherapy which left me extremely weak and vulnerable to infection. As a result, I contracted double pneumonia and sepsis and was rushed into intensive care where my family was told that, unless I began responding to treatment, I had approximately two hours left to live. Thankfully, I pulled through and set off upon the long road to recovery. It was the hardest thing I've ever faced but - eventually, in the summer of 2017 - I was declared cancer free.For a few months, at least. In January 2018, a routine scan found the cancer had returned - and had now spread to my lungs. Bugger. "Tommy v cancer: Round Two" continues the story of my fight to survive the 'Big C', salvage what remained of my career, and support my terrified family through yet another battle of life and death. (Publisher)

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Polish]'

The bowel screening test. What you need to know [Polish] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'The bowel screening test. What you need to know'

The bowel screening test. What you need to know (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'Lymph node dissection'

Lymph node dissection (March 2019)

Orchid – Fighting Male Cancer

This factsheet describes inguinal and pelvic lymph node dissection and possible complications such as infection and lymphoedema.

Cover image of 'Looking after someone. Information and support for carers in Wales'

Looking after someone. Information and support for carers in Wales (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Recipes for when food is a problem'

Recipes for when food is a problem (September 2019)

The Oesophageal Patients Association

Recipes and tips for people with oesophageal cancer who are having problems eating.

Cover image of 'Your smear test results [Arabic]'

Your smear test results [Arabic] (2019)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Bloodwise

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'Myeloma. An introduction'

Myeloma. An introduction (February 2019)

Myeloma UK

This booklet provides a brief overview of myeloma, the causes, symptoms, diagnosis, and treatment and management.

Cover image of 'Colostomy irrigation. An introduction'

Colostomy irrigation. An introduction (July 2019)

Colostomy Association

This leaflet explains the advantages and disadvantages of colostomy irrigation as an alternative to a stoma pouch. It describes who can and cannot irrigate, when irrigation can start, how it is taught, the equipment and supplies required, and how to irrigate.

Cover image of 'Getting care and support. A guide for people living with a terminal illness, and their family and friends'

Getting care and support. A guide for people living with a terminal illness, and their family and friends (April 2019)

Marie Curie

This guide is for people living with a terminal illness and their friends and family. It aims to helps you explore your care options. It explains what care may be available, what you can expect from it, and who to ask for help.

Cover image of 'Breast screening explained'

Breast screening explained (May 2019)

Breast Test Wales

This leaflet has information about the accuracy, advantages and disadvantages of breast screening, what it is, why it is important; who is screened; what to wear, and what happens during the procedure and afterwards. It also answers common questions that women may have.

Cover image of 'Talking to children and teenagers when an adult has cancer'

Talking to children and teenagers when an adult has cancer (May 2019)

Macmillan Cancer Support

This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.

Cover image of 'Donating stem cells'

Donating stem cells (July 2019)

Bloodwise

This fact sheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells. 

Cover image of 'Financial support - help with costs'

Financial support - help with costs (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. 

Cover image of 'The two faces of cancer'

The two faces of cancer (2019)

Troubador Publishing

Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)

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