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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1748

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'Tommy v cancer. One man’s battle against the Big C. (Again).'

Tommy v cancer. One man’s battle against the Big C. (Again). (2019)

Independently published

In March 2016, cancer attacked me for the first time. I was diagnosed with inoperable, stage four throat cancer and underwent intensive courses of both chemotherapy and radiotherapy which left me extremely weak and vulnerable to infection. As a result, I contracted double pneumonia and sepsis and was rushed into intensive care where my family was told that, unless I began responding to treatment, I had approximately two hours left to live. Thankfully, I pulled through and set off upon the long road to recovery. It was the hardest thing I've ever faced but - eventually, in the summer of 2017 - I was declared cancer free.For a few months, at least. In January 2018, a routine scan found the cancer had returned - and had now spread to my lungs. Bugger. "Tommy v cancer: Round Two" continues the story of my fight to survive the 'Big C', salvage what remained of my career, and support my terrified family through yet another battle of life and death. (Publisher)

Cover image of 'The bowel screening test. What you need to know'

The bowel screening test. What you need to know (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'Lymph node dissection'

Lymph node dissection (March 2019)

Orchid – Fighting Male Cancer

This factsheet describes inguinal and pelvic lymph node dissection and possible complications such as infection and lymphoedema.

Cover image of 'Recipes for when food is a problem'

Recipes for when food is a problem (September 2019)

The Oesophageal Patients Association

Recipes and tips for people with oesophageal cancer who are having problems eating.

Cover image of 'Talking to children and teenagers when an adult has cancer'

Talking to children and teenagers when an adult has cancer (May 2019)

Macmillan Cancer Support

This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.

Cover image of 'Your smear test results [Arabic]'

Your smear test results [Arabic] (2019)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Myeloma. An introduction'

Myeloma. An introduction (February 2019)

Myeloma UK

This booklet provides a brief overview of myeloma, the causes, symptoms, diagnosis, and treatment and management.

Cover image of 'Colostomy irrigation. An introduction'

Colostomy irrigation. An introduction (July 2019)

Colostomy Association

This leaflet explains the advantages and disadvantages of colostomy irrigation as an alternative to a stoma pouch. It describes who can and cannot irrigate, when irrigation can start, how it is taught, the equipment and supplies required, and how to irrigate.

Cover image of 'Getting care and support. A guide for people living with a terminal illness, and their family and friends'

Getting care and support. A guide for people living with a terminal illness, and their family and friends (April 2019)

Marie Curie

This guide is for people living with a terminal illness and their friends and family. It aims to helps you explore your care options. It explains what care may be available, what you can expect from it, and who to ask for help.

Cover image of 'Financial support - help with costs'

Financial support - help with costs (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. 

Cover image of 'Donating stem cells to your relative'

Donating stem cells to your relative (October 2019)

Anthony Nolan

This booklet for anyone thinking about donating their stem cells to a relative who needs a transplant to treat a blood cancer or blood disorder. It will explain why a donation is needed and what happens at each step of the process. 

Cover image of 'The two faces of cancer'

The two faces of cancer (2019)

Troubador Publishing

Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)

Cover image of 'Clinical trials'

Clinical trials (November 2019)

Orchid – Fighting Male Cancer

Brief information about clinical trials, including the four phases, and the pros and cons of taking part..

Cover image of 'When someone dies. Practical and emotional help at a difficult time'

When someone dies. Practical and emotional help at a difficult time (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Difficulty swallowing'

Difficulty swallowing (February 2019)

Marie Curie

Having difficulty swallowing is a common problem for people living with a terminal illness. It can affect your ability to eat, drink and take medication, and this may be worrying for you and your family and friends. This booklet has information about how your healthcare team can help you, and what you can do to help yourself.

Cover image of 'Sex and fertility'

Sex and fertility (November 2019)

Orchid – Fighting Male Cancer

This leaflet describes sperm banking and how different treatment options for testicular cancer may affect a man’s fertility.

Cover image of 'Financial support - help with costs [Portuguese]'

Financial support - help with costs [Portuguese] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Cancer and complementary therapies'

Cancer and complementary therapies (October 2019)

Macmillan Cancer Support

This booklet describes the complementary therapies most often used for people with cancer and gives an idea of what is involved in each therapy. Includes details of useful organisations and other resources.

Cover image of 'The bowel screening test. What you need to know [Large print]'

The bowel screening test. What you need to know [Large print] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Fatigue'

Fatigue (November 2019)

Lymphoma Action

Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'A simple guide to the prostate'

A simple guide to the prostate (October 2019)

Prostate Scotland

This leaflet describes the prostate, the most common symptoms or signs and what they might mean (benign prostatic hyperplasia, prostatis, prostate cancer).

Cover image of 'Applying for a blue badge. Exemption from Prescription Charges'

Applying for a blue badge. Exemption from Prescription Charges (November 2019)

Mesothelioma UK

This leaflet describes how to apply for a blue badge. It also explains that prescription charges were abolished for cancer patients in 2009.

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Hair loss'

Hair loss (September 2019)

Lymphoma Action

Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back. 

Cover image of 'Complementary therapies'

Complementary therapies (August 2019)

Ovacome

This briefing looks at the complementary therapies that are most commonly used by people with ovarian cancer, how they can help to manage treatment side effects and improve quality of life.

Cover image of 'Talking to your family and friends'

Talking to your family and friends (August 2019)

Ovacome

This briefing looks at the issues raised among family members, children and friends when someone is diagnosed with ovarian cancer. It also gives sources of help and support.

Cover image of 'Going back to work'

Going back to work (March 2019)

Ovacome

This briefing looks at the experience of returning to work after an ovarian cancer diagnosis and treatment, the importance of talking to your employer as soon as possible, your rights under the law and what to expect from your employer. 

Cover image of 'Getting the support you need'

Getting the support you need (March 2019)

Ovacome

This briefing looks at how you can find support groups in your area, the experiences of being a member of a group and other sources of support that may be available. 

Cover image of 'Targeted therapies'

Targeted therapies (June 2019)

Ovacome

This factsheet has information about targeted therapies that can be used to treat ovarian cancer. It describes how they are used, their risks and benefits and how to access them. 

Cover image of 'Clinical trials'

Clinical trials (January 2019)

Ovacome

This factsheet gives information about how clinical trials are conducted and about taking part in trials that test new treatments for ovarian cancer.

Cover image of 'Ibrutinib'

Ibrutinib (November 2019)

Lymphoma Action

This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.

Cover image of 'Chemotherapy'

Chemotherapy (November 2019)

Orchid – Fighting Male Cancer

This leaflet describes how chemotherapy may be used to treat localised and non-localised testicular cancer, and the possible side-effects..

Cover image of 'Make time for breast screening [Farsi]'

Make time for breast screening [Farsi] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Having a stem cell transplant'

Having a stem cell transplant (July 2019)

Lymphoma Action

Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).

Cover image of 'Make time for breast screening [Pashto]'

Make time for breast screening [Pashto] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Your smear test results'

Your smear test results (2019)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Cervical screening (smear test)'

Cervical screening (smear test) (2019)

Jo's Cervical Cancer Trust

This leaflet is for women who find it hard to go for cervical screening (a smear test), for example they may feel anxious because they have a mental health condition, had a traumatic experience in the past, or for another reason. 

Cover image of 'Make time for breast screening [Romanian]'

Make time for breast screening [Romanian] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Make time for breast screening [Albanian]'

Make time for breast screening [Albanian] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Blood Cancer UK

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'The bowel screening test. What you need to know [Chinese, Simplified]'

The bowel screening test. What you need to know [Chinese, Simplified] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'CAR-T therapy'

CAR-T therapy (August 2019)

Blood Cancer UK

CAR-T therapy is a new type of cancer treatment that uses the immune system to kill cancer cells. This factsheet describes what it is, how it is given, who can have it, and its safety and effectiveness.

Cover image of 'Make time for breast screening [Slovakian]'

Make time for breast screening [Slovakian] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

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