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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 141

Cover image of 'Having chimeric antigen receptor T-cell (CAR T-CELL) therapy'

Having chimeric antigen receptor T-cell (CAR T-CELL) therapy (September 2019)

Anthony Nolan

A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.

Cover image of 'CAR T cells'

CAR T cells (October 2019)

Lymphoma Action

CAR T-cell therapy, is a type of targeted treatment used for certain types of high-grade (fast-growing) lymphoma. This factsheet explains what CAR T cells are, who can have them and how they are given, the benefits, and the possible side effects.

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'Diet and pancreatic cancer'

Diet and pancreatic cancer (January 2020)

Pancreatic Cancer UK

This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy. 

Cover image of 'CAR-T cell treatments'

CAR-T cell treatments (January 2020)

Myeloma UK

This factsheet has information on CAR-T cell treatments, which are being investigated in myeloma. It explains what CAR-T cell treatments are, how they work, and the current evidence to support their use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of CAR-T cell treatments in the UK.

Cover image of 'Ipilimumab [Polish]'

Ipilimumab [Polish] (January 2020)

Macmillan Cancer Support

Ipilimumab is a targeted therapy drug used to treat advanced melanoma. This describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Nivolumab (OPDIVO®)  [Polish]'

Nivolumab (OPDIVO®) [Polish] (January 2020)

Macmillan Cancer Support

Nivolumab (OPDIVO®) is a targeted therapy drug used to treat melanoma, non-small cell lung cancer or kidney (renal cell) cancer. 

Cover image of 'Diabetes and cancer treatment [in press]'

Diabetes and cancer treatment [in press] (January 2020)

Macmillan Cancer Support|Diabetes UK

This booklet is for anyone who has cancer and also has diabetes. You may also want to read it if you have been told your cancer treatment may increase your risk of developing diabetes. It explains how some tests and cancer treatments can affect your diabetes and make it difficult to control your blood sugar. It also has some tips to help you cope with the side effects of cancer treatment if you have diabetes.

Cover image of 'Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges'

Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges (2020)

Jessica Kingsley Publishers

Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)

Cover image of 'Proton beam therapy myths. Myths that need busting'

Proton beam therapy myths. Myths that need busting (January 2019)

Brainstrust

This leaflet looks at some of the myths around proton beam therapy: protons can treat any cancer; proton beam therapy is more effective than conventional radiotherapy; protons can cure cancer that other treatments can’t; having proton beam therapy through a private provider is better than through the NHS; decisions to be treated with proton beam therapy are based on money; other countries use proton beam therapy in most cases; most people should be treated with proton beam therapy.

Cover image of 'Proton beam therapy clinical research. The current state of clinical research'

Proton beam therapy clinical research. The current state of clinical research (January 2019)

Brainstrust

This leaflet looks at research into proton beam therapy. It considers the current state of research, why research is needed, and how do we bulild the evidence.

Cover image of 'Living with hormone therapy. A guide for men with prostate cancer'

Living with hormone therapy. A guide for men with prostate cancer (June 2019)

Prostate Cancer UK

This booklet is for men who are having hormone therapy. It describes the different types of hormone therapy, how they work and what the treatment involves. It also includes information about the possible side-effects and how to manage them.

Cover image of 'Understanding the pathway. When does proton beam therapy happen?'

Understanding the pathway. When does proton beam therapy happen? (January 2019)

Brainstrust

This leaflet describes when proton beam therapy is given, preparation for treatment, and what happens afterwards.

Cover image of 'How it works. What is proton beam therapy?'

How it works. What is proton beam therapy? (January 2019)

Brainstrust

This leaflet describes what proton beam therapy is and how it is different from conventional external-beam radiotherapy. It also explains the potential benefits and drawbacks of proton beam therapy.

Cover image of 'What to expect. What is it like to be treated with proton beam therapy?'

What to expect. What is it like to be treated with proton beam therapy? (January 2019)

Brainstrust

This leaflet describes what happens when proton beam therapy is given, and the possible side effects. 

Cover image of 'Where should I have proton beam therapy? NHS or private?'

Where should I have proton beam therapy? NHS or private? (January 2019)

Brainstrust

This leaflet outlines the advantages of having proton beam therapy in an NHS setting, rather than privately.

Cover image of 'Understanding the decision process. Who is proton beam therapy suitable for?'

Understanding the decision process. Who is proton beam therapy suitable for? (January 2019)

Brainstrust

This leaflet explains who proton beam therapy is suitable for and how the decision is made. Includes Care Pathway and Clinical Dependencies Referral and Care Pathway 1 (NHS and overseas) and Pathway 2 (NHS only).

Cover image of 'Should I have proton beam therapy? How do I make the right decision?'

Should I have proton beam therapy? How do I make the right decision? (January 2019)

Brainstrust

This leaflet is not about whether someone should or should not have proton beam therapy. Rather, it explores the approaches that can be taken to help people make a decision.

Cover image of 'Understanding breast cancer in women [Audio CD]'

Understanding breast cancer in women [Audio CD] (January 2019)

Macmillan Cancer Support

Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Advanced prostate cancer'

Advanced prostate cancer (May 2019)

Prostate Cancer UK

Factsheet for men who have been diagnosed with advanced (metastatic) prostate cancer. It explains what advanced prostate cancer is, and describes how it is diagnosed, the grading and staging, and the treatment options (hormone therapy).

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'Having a stem cell transplant'

Having a stem cell transplant (July 2019)

Lymphoma Action

Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).

Cover image of 'Antibody therapy for lymphoma (including rituximab)'

Antibody therapy for lymphoma (including rituximab) (February 2019)

Lymphoma Action

This factsheet explains what antibody therapy is and how it is used to treat lymphoma.

Cover image of 'Maintenance therapy (including rituximab maintenance)'

Maintenance therapy (including rituximab maintenance) (February 2019)

Lymphoma Action

This factsheet describes maintenance therapy, used to prolong remission after successful treatment of lymphoma. It explains what it is, whio can have it and the risks and benefits.

Cover image of 'Creative arts. Evidence-based information to help you self-manage your cancer experience'

Creative arts. Evidence-based information to help you self-manage your cancer experience (2019)

Penny Brohn UK

This evidence-based information sheet aims to provide clearly sourced and reliable information to help you make informed choices about the range of creative arts activities on offer to support people with cancer. 

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Photodynamic therapy'

Photodynamic therapy (May 2019)

British Association of Dermatologists

This factsheet aims to help you understand more about photodynamic therapy, which may be used to treat basal cell carcinoma and areas of pre-cancerous skin damage. It explains what it is and what is involved, and describes the potential side effects.

Cover image of 'Immunotherapy in myeloma'

Immunotherapy in myeloma (November 2019)

Myeloma UK

This factsheet has information on on immunotherapy, a type of treatment being investigated in myeloma. It explains what imunotherapy treatment is, how it works, and the current evidence to support its use in the treatment of myeloma. It describes the main immunotherapies (monoclonal antibody drugs; CAR-T cell treatments; and oncolytic viruses) and their known possible side-effects, and the availability of immunotherapy treatment in the UK.

Cover image of 'Eating well when eating becomes difficult. Support your health during cancer treatment'

Eating well when eating becomes difficult. Support your health during cancer treatment (April 2019)

Penny Brohn UK

This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends'

Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends (November 2019)

Marie Curie

Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Understanding oesophageal cancer'

Understanding oesophageal cancer (November 2019)

Macmillan Cancer Support

This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Proton beam therapy and brain tumours'

Proton beam therapy and brain tumours (October 2019)

The Brain Tumour Charity

Proton Beam Therapy (PBT) is a highly specialised form of radiotherapy that is more targeted than conventional radiotherapy. This means it causes less damage to the healthy tissue of the brain and so causes fewer side-effects. However, PBT is only suitable for a few types of brain tumour and, in most cases, does not lead to better outcomes than conventional radiotherapy. This factsheet describes PBT and how does it compare to conventional radiotherapy, who can have it, what it involves and side-effects, and answers some commonly asked questions.

Cover image of 'Understanding melanoma that has come back in the same area'

Understanding melanoma that has come back in the same area (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).

Cover image of 'Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment'

Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment (September 2019)

Macmillan Cancer Support

This booklet explains how certain cancer treatments can cause changes to your appearance. It is for people who have had changes to their skin, nails and hair because of cancer treatment. It gives advice on how to manage these changes to help you feel more like you again. We hope it helps you deal with some of the questions or feelings you may have. 

Cover image of 'Understanding stomach cancer'

Understanding stomach cancer (September 2019)

Macmillan Cancer Support

This booklet is for anyone who has been diagnosed with stomach cancer. There is also information for carers, family members and friends. It talks about the signs and symptoms of stomach cancer and explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Pampering therapy'

Pampering therapy (April 2019)

Look Good...Feel Better

Information about Look Good Feel Better with details of workshop locations in the UK.

Cover image of 'Cancer and your sex life'

Cancer and your sex life (June 2019)

Macmillan Cancer Support

This booklet is about how cancer and its treatment can affect your sex life. It is for anyone who needs information about this before, during or after cancer treatment. This information is for you whether or not you are in a relationship or having sex. We hope you find it helpful whatever your sexual orientation or gender. 

Cover image of 'Cancer and complementary therapies'

Cancer and complementary therapies (October 2019)

Macmillan Cancer Support

This booklet describes the complementary therapies most often used for people with cancer and gives an idea of what is involved in each therapy. Includes details of useful organisations and other resources.

Cover image of 'Blood clot prevention. A guide for patients and carers'

Blood clot prevention. A guide for patients and carers (May 2019)

The Royal Marsden NHS Foundation Trust

This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.

Cover image of 'High-dose therapy and autologous stem cell transplantation'

High-dose therapy and autologous stem cell transplantation (November 2018)

Myeloma UK

High-dose therapy and stem cell transplantation is a treatment option for many people who have myeloma. This booklet explains what high-dose therapy and stem cell transplantation is, why it is needed, and the advantages and disadvantages of this treatment. It also discusses what will happen during the procedure, what to do on returning home, and feelings and relationships.

Cover image of 'Immunoglobulin replacement therapy'

Immunoglobulin replacement therapy (April 2018)

Lymphoma Action

Some people with lymphoma need an infusion of immunoglobulins to strengthen their immune system if their own antibody levels are low. People with chronic lymphocytic leukaemia (CLL) or who have had an allogeneic (donor) stem cell transplant are most likely to have this treatment. This factsheet explains what immunoglobulin replacement therapy id, who might need it, how it is gives, possible side effects, and what happens after treatment.  

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (February 2018)

Breast Cancer Care

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

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