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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Anthony Nolan
A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.
Lymphoma Action
CAR T-cell therapy, is a type of targeted treatment used for certain types of high-grade (fast-growing) lymphoma. This factsheet explains what CAR T cells are, who can have them and how they are given, the benefits, and the possible side effects.
Leukaemia Care
Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.
Blood Cancer UK
CAR-T therapy is a new type of cancer treatment that uses the immune system to kill cancer cells. This factsheet describes what it is, how it is given, who can have it, and its safety and effectiveness.
PCaSO Prostate Cancer Support Network
This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.
Pancreatic Cancer UK
This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy.
Myeloma UK
This factsheet has information on CAR-T cell treatments, which are being investigated in myeloma. It explains what CAR-T cell treatments are, how they work, and the current evidence to support their use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of CAR-T cell treatments in the UK.
Macmillan Cancer Support
Nivolumab (OPDIVO®) is a targeted therapy drug used to treat melanoma, non-small cell lung cancer or kidney (renal cell) cancer.
Macmillan Cancer Support
Ipilimumab is a targeted therapy drug used to treat advanced melanoma. This describes how it works, how it is given, and some of the possible side-effects.
Breast Cancer Now
This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.
Macmillan Cancer Support|Diabetes UK
This booklet is for anyone who has cancer and also has diabetes. You may also want to read it if you have been told your cancer treatment may increase your risk of developing diabetes. It explains how some tests and cancer treatments can affect your diabetes and make it difficult to control your blood sugar. It also has some tips to help you cope with the side effects of cancer treatment if you have diabetes.
Macmillan Cancer Support
This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
Jessica Kingsley Publishers
Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)
Brainstrust
This leaflet looks at some of the myths around proton beam therapy: protons can treat any cancer; proton beam therapy is more effective than conventional radiotherapy; protons can cure cancer that other treatments can’t; having proton beam therapy through a private provider is better than through the NHS; decisions to be treated with proton beam therapy are based on money; other countries use proton beam therapy in most cases; most people should be treated with proton beam therapy.
Brainstrust
This leaflet looks at research into proton beam therapy. It considers the current state of research, why research is needed, and how do we bulild the evidence.
Prostate Cancer UK
This booklet is for men who are having hormone therapy. It describes the different types of hormone therapy, how they work and what the treatment involves. It also includes information about the possible side-effects and how to manage them.
Brainstrust
This leaflet describes when proton beam therapy is given, preparation for treatment, and what happens afterwards.
Brainstrust
This leaflet describes what proton beam therapy is and how it is different from conventional external-beam radiotherapy. It also explains the potential benefits and drawbacks of proton beam therapy.
Brainstrust
This leaflet describes what happens when proton beam therapy is given, and the possible side effects.
Brainstrust
This leaflet outlines the advantages of having proton beam therapy in an NHS setting, rather than privately.
Brainstrust
This leaflet explains who proton beam therapy is suitable for and how the decision is made. Includes Care Pathway and Clinical Dependencies Referral and Care Pathway 1 (NHS and overseas) and Pathway 2 (NHS only).
Brainstrust
This leaflet is not about whether someone should or should not have proton beam therapy. Rather, it explores the approaches that can be taken to help people make a decision.
Lymphoma Action
This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.
Lymphoma Action
This factsheet explains what antibody therapy is and how it is used to treat lymphoma.
Lymphoma Action
This booklet describes autologous stem cell transplant in detail.
Macmillan Cancer Support
Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.
Lymphoma Action
Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).
Prostate Cancer UK
Factsheet for men who have been diagnosed with advanced (metastatic) prostate cancer. It explains what advanced prostate cancer is, and describes how it is diagnosed, the grading and staging, and the treatment options (hormone therapy).
Lymphoma Action
This factsheet describes maintenance therapy, used to prolong remission after successful treatment of lymphoma. It explains what it is, whio can have it and the risks and benefits.
Penny Brohn UK
This evidence-based information sheet aims to provide clearly sourced and reliable information to help you make informed choices about the range of creative arts activities on offer to support people with cancer.
Roy Castle Lung Cancer Foundation
If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.
Breast Cancer Care
This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.
Breast Cancer Care
This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects.
Breast Cancer Care
This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.
British Association of Dermatologists
This factsheet aims to help you understand more about photodynamic therapy, which may be used to treat basal cell carcinoma and areas of pre-cancerous skin damage. It explains what it is and what is involved, and describes the potential side effects.
Myeloma UK
This factsheet has information on on immunotherapy, a type of treatment being investigated in myeloma. It explains what imunotherapy treatment is, how it works, and the current evidence to support its use in the treatment of myeloma. It describes the main immunotherapies (monoclonal antibody drugs; CAR-T cell treatments; and oncolytic viruses) and their known possible side-effects, and the availability of immunotherapy treatment in the UK.
Penny Brohn UK
This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.
Macmillan Cancer Support
This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.
Marie Curie
Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.
Macmillan Cancer Support
This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help.
Macmillan Cancer Support
This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
The Brain Tumour Charity
Proton Beam Therapy (PBT) is a highly specialised form of radiotherapy that is more targeted than conventional radiotherapy. This means it causes less damage to the healthy tissue of the brain and so causes fewer side-effects. However, PBT is only suitable for a few types of brain tumour and, in most cases, does not lead to better outcomes than conventional radiotherapy. This factsheet describes PBT and how does it compare to conventional radiotherapy, who can have it, what it involves and side-effects, and answers some commonly asked questions.
Macmillan Cancer Support
Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).
Macmillan Cancer Support
This booklet explains how certain cancer treatments can cause changes to your appearance. It is for people who have had changes to their skin, nails and hair because of cancer treatment. It gives advice on how to manage these changes to help you feel more like you again. We hope it helps you deal with some of the questions or feelings you may have.
Macmillan Cancer Support
This booklet is for anyone who has been diagnosed with stomach cancer. There is also information for carers, family members and friends. It talks about the signs and symptoms of stomach cancer and explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about how cancer and its treatment can affect your sex life. It is for anyone who needs information about this before, during or after cancer treatment. This information is for you whether or not you are in a relationship or having sex. We hope you find it helpful whatever your sexual orientation or gender.
The Royal Marsden NHS Foundation Trust
This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.
Look Good...Feel Better
Information about Look Good Feel Better with details of workshop locations in the UK.
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