The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Macmillan Cancer Support
This booklet is for people who are worried that cancer might run in the family. It explains how genes work, the role of genes in the development of some cancers, how risk is inherited, and the role of genetic counselling and testing. It also includes information on preventing cancer and the role of genes in specific cancers (bowel, breast, ovarian). Includes details of useful organisations and other resources.
A Spark In The Sand
Ceara Hayden's book The Boobies is a lighthearted and informative story about breast cancer. Her quirky and witty rhymes convey this serious disease in a way that is accessible to young adults and grown-ups alike. Based on her own experience of her mother's diagnosis, Ceara's story brings warmth, hope (and a little humour) for those suffering or watching a loved one suffer from this devastating illness. All profits from this book will be donated to the breast cancer awareness charity CoppaFeel. (Publisher)
In her mid-twenties, balancing a stable job and a partying lifestyle, Annie was also on the hunt for a man. She wanted to find Mr Right, get married, buy a house, and live the life she'd always wanted. But then one day, she found a lump ... Breast cancer. The two words that would derail Annie's life. Suddenly she realised how short her life had been, and the very idea of finding love seemed impossible. As her hair fell out, and her social life crumbled, her mental health deteriorated. She began to question if she would actually survive. Struggling with an identity crisis and worryingly low moods, she wondered if she'd ever be able to live the normal life that had been within her reach only months earlier. Love and Remission tells the tale of a young woman in search of love and mental wellbeing. (Publisher)
They say there’s a book in all of us, but I doubt I would ever have written one had it not have been for my diagnosis of breast cancer in 2011. ‘A New Kind of Normal' is the story of my life up to and moving on from that moment. Growing up in the 60's, working through the 70's and 80's, juggling a career in TV and radio while bringing up three children and surviving two divorces. From the moment I knew what a bra was, I’d wanted breasts: I even crafted a pair of blue plasticine boobs for myself, as nature made me wait until I was 15 for breasts of my own! Through cancer I lost them both, and with the chemotherapy; all my hair, my fingernails, and more worryingly, a sense of whom I was. My hair grew back, as did my fingernails, but I still struggled with my identity. What I’ve written isn't a diary, nor a self-help guide, and it's not just about cancer. I’ve taken a really good look at the little girl I was and the woman I grew into, and why I went to such lengths to try and claw back some of what cancer had taken from me - it's not everyone's way I appreciate, and it’s been an interesting exercise trying to ascertain why it was mine! I’ve been honest, open, and meticulous when it comes to detail, as I firmly believe that if you take away the mystery, you can take away some of the fear. But there’s a lot to laugh about here too, as luckily I’ve always been able to see the funny side of a situation, preferring that to the occasional overwhelming despair I felt. In this book I've tried to move the disease away from the medical professionals and the hospitals, and to bring it into the day to day, because that's where it sits. Over the last seven years I’ve come to realise that the ripple effect of cancer is far reaching, affecting not just those of us living with it but everyone around us. 'A New Kind of Normal' gives an insight into my relationship with my then partner, now husband; my children and their reaction to my illness, my family and friends, my work colleagues, people who wrote to me, and the professionals who cared for me; everybody reacts differently. Breast cancer assaults your femininity - the treatment is tough and the surgery brutal. It isn't easy, but it is possible, and I'd like to feel this book may be a source of comfort to anyone who's life is touched by breast cancer; maybe even help them to find their 'New Kind of Normal'. There are many things in life we may have to give up on, but hope is not one of them. (P
Polygon (Birlinn Imprint)
How do you start a new life when the person you love is about to die? At the age of thirty-six, Gordon Darroch's wife was diagnosed with breast cancer. It was a devastating blow just as he, and their two children with autism, were preparing to move to her native Holland. Eighteen months later, as their plans seemed to be back on course, came the second blow: Magteld was terminally ill and possibly had only a few months to live. As her health rapidly deteriorated, they became caught up in a race against time to get a dying mother home and give their children a future in a country they hardly knew. How could they build a new life in the midst of grief and loss? How would their two sons adjust to such enormous changes? And what would remain of Magteld once she was gone? All the Time We Thought We Had is a story of love and loss and a meditation on grief and memory. It's about how events shape our lives and how we cope with them. And it raises important questions about what we value in life and the legacies we leave behind. (Publisher)
"Cancer is not a laughing matter, as I was told by a cross German lady from Dortmund when I showed her this journal. She had herself had breast cancer and is right of course; there are lots of things that are not fun about cancer, most of them unavoidable. I was therefore as surprised as the next person to realise that a huge amount of funny things happen on the way to chemo, or indeed on the way to most places, and that once you get your eye in, you completely forget to be scared..." This is not just an educational book about cancer, although it is certainly safe to give to cancer patients as a cheerful present. More importantly, it sheds new light on why Kim Kardashian is worth Keeping Up With, what playlists to make for MRI scans, the truth behind the legend of Medea, bikini etiquette on a deserted beach, what to do with a glut of rainbow chard, what an Oscar-winner should say in an acceptance speech, how to deal with cold-callers selling life insurance, and what to wear on a March Against Menopause (layers, obviously)... (Publisher)
Virago Press (Little, Brown Book Group)
Coming up to her sixtieth birthday, Kate Figes found herself turning to the larger questions of family, love and life's meaning. It is like this author to examine different stages in writing, and her books - from new motherhood and adolescence to coupledom and infidelity - testify to this way of understanding herself and others: so naturally she turned to writing to explore the challenges of becoming sixty. And then - a horrible, and sudden diagnosis of breast cancer which had metastasised. Instead of a gentle journey into middle age, Kate Figes began to write for her life. Now, clawing back confidence and control was not just the ordinary business of these years: it was the only way to try and survive great pain and emotional turmoil. As her writing became an honest reflection on ageing, failing, regrets and the importance of childhood memory, friends, family and love she found a new determination to live to the full and about finding ways to face up to a shortened life expectancy with dignity. Original, passionate, funny and moving, On Smaller Dogs and Larger Life Questions will resonate with anyone dealing with the many griefs and freedoms of midlife. It is about living with a life-threatening disease but it is even more: an intelligent and passionate look at the way we can approach disappointment and trouble, friendship and love - every day. (Publisher)
With four children (three of them triplets!) and a relationship break-up to contend with, some things get a little lost in the mix. Like symptoms. Emma Campbell bravely and honestly offers heartfelt thoughts on what happens when cancer becomes an unwelcome guest at an already crowded party. She shares her own terror and pain, mixed with the heartwarming and unexpected. The extraordinary kindness of people and the gritty detail of battling a life-threatening illness, all while being a single mum to four children. She opens up about her angels and demons, losing and then finding love again, a constant fear of death mixed with the joy and relief of living, the anxiety of cancer returning - then facing it when it does. This book has grown from Emma's blog Me And My Four. Eager to share with her followers in more detail, the secrets, the fears, the triumphs and the terrors that she faces each day, in a life as unpredictable as your own... (Publisher)
A moving, thought-provoking and surprisingly humorous book which is both a description of a journey to death and a celebration of the act of living. Based on Clare Wise's blog, which she started when she was first diagnosed with cancer in 2013, Not That Kind of Love charts the highs and lows of the last three years of Clare's life. The end result is not a book that fills you with despair and anguish. On the contrary, Not That Kind of Love should be read by everybody for its candour, and for its warmth and spirit. Clare is an astonishingly dynamic, witty and fun personality, and her positivity and energy exude from every page. As she becomes too weak to type, her brother - the actor Greg Wise - takes over, and the book morphs into a beautiful meditation on life, and the necessity of talking about death. With echoes of Atul Gawande's Being Mortal and Cathy Rentzenbrink's The Last Act of Love, it is a very special read that rejoices in the extraordinary and often underestimated sibling bond, and the importance of making the most of the ordinary pleasures life has to offer. As Greg Wise writes in the book: 'Celebrate the small things, the small moments. If you find yourself with matching socks as you leave the house in the morning, that is a cause for celebration. If the rest of the day is spent finding the cure for cancer, or brokering world peace, then that's a bonus.' (Publisher)
Breast Cancer Care
This leaflet discusses the main aspects of invasive lobular breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.