Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 187

Cover image of 'Childhood brain tumours'

Childhood brain tumours (February 2018)

The Brain Tumour Charity

This factsheet briefly describes brain tumours in children, the risk factors, diagnosis, treatment options and long-term side effects. It also describes the different types of brain tumours in children.

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Learning difficulties in children with brain tumours'

Learning difficulties in children with brain tumours (February 2018)

The Brain Tumour Charity

This fact sheet gives an overview of some of the learning difficulties your child may experience as the result of a brain tumour and also of the support and possible plans of action (strategies) available to help them in their learning. 

Cover image of 'Steroids for children with brain tumours'

Steroids for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet describes when and why children might be given steroids, how they are taken and the possible side-effects, and answers some commonly asked questions that you may have about steroids in children.

Cover image of 'Radiotherapy for adults with brain tumours'

Radiotherapy for adults with brain tumours (May 2018)

The Brain Tumour Charity

This factsheet describes how radiotherapy treatment is planned, the radiotherapy mask, and the treatment procedure. It also answers some questions about radiotherapy, such as: who will my medical team consist of; will treatment be painful; how long does it take; what are the typical side effects; will I need to give up work; where can I find a wig or headwear.

Cover image of 'Scans for children with brain tumours'

Scans for children with brain tumours (February 2018)

The Brain Tumour Charity

Information about CT and MRI scans for the parents/carers of a child with a brain tumour, including scan procedure, and how to prepare your child for a scan. It also has answers to some common questions you may have about CT or MRI scans.

Cover image of 'Chemotherapy for children with brain tumours'

Chemotherapy for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet has information about chemotherapy to treat brain tumours in children. It covers how chemotherapy works, why and how it is given, and preventing infection of your child’s central line and has answers to some common questions.

Cover image of 'Patient guide. Introduction'

Patient guide. Introduction (July 2018)

Brainstrust

Introduction to the leaflets in the Patient Guide.

Cover image of 'Patient guide. Treatment'

Patient guide. Treatment (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Helping your child to eat (children with brain tumours)'

Helping your child to eat (children with brain tumours) (February 2018)

The Brain Tumour Charity

Practical suggestions for parents/carers to helping their child to eat if they have had treatment for a brain tumour.

Cover image of 'Seizures (epilepsy) and brain tumours - living with'

Seizures (epilepsy) and brain tumours - living with (June 2018)

The Brain Tumour Charity

This factsheet addresses the impact of living with seizures, including the emotional aspects, driving, identifying triggers, and safety and first aid.

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Follow-up'

Patient guide. Follow-up (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Palliative care'

Patient guide. Palliative care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Memory difficulties and brain tumours'

Memory difficulties and brain tumours (August 2018)

The Brain Tumour Charity

If you have a brain tumour or have received treatment for a brain tumour, you may experience memory difficulties; these could be because of the tumour itself or may be a result of surgery or treatment such as chemotherapy or radiotherapy. This factsheet describes what memory is, the types of memory, how a brain tumour may affect memory and answers some common questions about memory problems.

Cover image of 'Seizures (epilepsy) and brain tumours - treatment'

Seizures (epilepsy) and brain tumours - treatment (June 2018)

The Brain Tumour Charity

This factsheet describes the options that are available for the treatment of seizures: anti-epileptic drugs; surgery; and vagus nerve stimulation. It also discusses the use of complementary therapies (ketogenic diet and cannabis).

Cover image of 'Patient guide. End of life care'

Patient guide. End of life care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'What is a brain tumour?'

What is a brain tumour? (August 2018)

The Brain Tumour Charity

This factsheet explains what a brain tumour is, how they are graded, the different types of brain tumour, and the possible causes and answers some common questions you may have about brain tumours.

Cover image of 'Symptoms of a brain tumour in adults'

Symptoms of a brain tumour in adults (May 2018)

The Brain Tumour Charity

In this factsheet: What are the symptoms of a brain tumour?; Symptoms due to raised pressure within the skull; Symptoms due to location within the brain; What should I do if I think I might have a brain tumour?

Cover image of 'Questions to ask'

Questions to ask (May 2018)

The Brain Tumour Charity

A list of questions for people to ask their healthcare team at different stages of diagnosis and treatment.

Cover image of 'Your child's health team (children with a brain tumour)'

Your child's health team (children with a brain tumour) (February 2018)

The Brain Tumour Charity

This factsheet outlines the roles of some of the health care professionals who may be part of a child’s multidisciplinary team.

Cover image of 'Antineoplaston therapy'

Antineoplaston therapy (January 2018)

The Brain Tumour Charity

Antineoplaston therapy is an alternative treatment available in America. This factsheet gives an overview of antineoplaston therapy and some of the literature behind the theories.

Cover image of 'Astrocytoma'

Astrocytoma (October 2018)

The Brain Tumour Charity

This fact sheet gives an overview of astrocytomas in adults and how they are treated and answers some of the questions you may have about this type of tumour. It doesn’t deal in detail with grade 4 astrocytoma (glioblastoma/GBM), which is explained in a separate fact sheet. 

Cover image of 'Glioblastoma'

Glioblastoma (June 2018)

The Brain Tumour Charity

This factsheet gives an overview of glioblastomas in adults and answers some of the questions you may have about this type of tumour. 

Cover image of 'Watch and wait (active monitoring)'

Watch and wait (active monitoring) (May 2018)

The Brain Tumour Charity

This factsheet explains when and why watch and wait is sometimes more appropriate than immediate intervention. It also looks at how to deal with the emotional impact of receiving this type of treatment. 

Cover image of 'How to hold a difficult conversation'

How to hold a difficult conversation (August 2018)

Brainstrust

Many people are unsure about how to talk to someone who might be distressed or in difficulty. Questions about the illness, its symptoms, its meaning or its impact can be hard to ask. This guide will help people talk to those close to them,.

Cover image of 'The neuroscientist who lost her mind. A memoir of madness and recovery'

The neuroscientist who lost her mind. A memoir of madness and recovery (2018)

Bantam Press (imprint of Transworld Publications)

All we think, feel and dream, how we move, if we move, everything that makes us who we are, comes from the brain. We are the brain. So what happens when the brain fails? What happens when we lose our mind? In January 2015, renowned neuroscientist Barbara Lipska's melanoma spread to her brain. It was, in effect, a death sentence. She had surgery, radiation treatments and entered an immunotherapy clinical trial. And then her brain started to play tricks on her. The expert on mental illness - who had spent a career trying to work out how the brain operates and what happens when it fails - experienced what it is like to go mad. She began to exhibit paranoia and schizophrenia-like symptoms. She became disinhibited, completely unaware of her inappropriate behaviour. She got lost driving home from work, a journey she did every day. She couldn't remember things that had just happened to her. Small details like what she was having for breakfast became an obsession, but she ignored the fact that she was about to die. And she remembers every moment with absolute clarity. Weaving the science of the mind and the biology of the brain into her deeply personal story, this is the dramatic account of Dr Lipska's own brilliant brain gone awry. (Publisher)

Cover image of 'Gone in the morning. A writer’s journey of bereavement'

Gone in the morning. A writer’s journey of bereavement (2018)

Jessica Kingsley Publishers

An exploration of death, bereavement and grief. This first hand account gives Geoff Mead's experience of responding to the loss of his wife from a brain tumour. Giving insight into the grieving process and how Geoff learned to manage his grief, this book will offer hope to anyone experiencing something similar. After coming to the realisation that mourning is a conscious process, to which we can apply creativity, passion and intelligence, Geoff explored the unknown territory of bereavement through his writing. The book shows how artful practice, such as writing, can help to make sense of our experience and navigate the wreckage of grief. (Publishers)

Cover image of 'Brain tumours and epilepsy'

Brain tumours and epilepsy (2017)

Brain Tumour Action

This booklet explains what epilepsy is, the types of seizures, how it is diagnosed,and treatment options. it also has tips on people can help themselves, what family and friends should do if someone has a seizure, and how seizures may affect daily life (driving, work, home life, sport). 

Cover image of 'Brain tumours'

Brain tumours (June 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a brain tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people  affected by a brain tumour'

The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people affected by a brain tumour (January 2017)

Brainstrust

A directory of support services and resources for people with a brain tumour in Aberdeen, The Highlands and surrounding areas.

Cover image of 'My fatigue book. A resource to help you understand, manage and own fatigue'

My fatigue book. A resource to help you understand, manage and own fatigue (September 2017)

Brainstrust

This resource aims to enable patients and caregivers living with a brain tumour to understand what is meant by fatigue and to self-manage fatigue relating to brain tumours so that they: learn a new pace of living; take steps to mitigate the impact of fatigue; and make the most of what they can do, rather than what they can’t.

Cover image of 'Possible effects of brain tumours and their treatment for adults'

Possible effects of brain tumours and their treatment for adults (September 2017)

The Brain Tumour Charity

A poster to help people with a brain tumour make their employer or colleagues aware of the possible effects of brain tumours and their treatment.

Cover image of 'Lumbar puncture'

Lumbar puncture (October 2017)

Brain and Spine Foundation

This factsheet provides information on lumbar punctures, including what one is and why it might be carried out, and what happens before, during and after the procuedure.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'Employment charter: for people with a brain tumour'

Employment charter: for people with a brain tumour (September 2017)

The Brain Tumour Charity

This charter will guide you on the rights that people have when at work or seeking work, whether you are an employee or an employer. It can also be used by people who are caring for someone with a brain tumour. 

Cover image of 'Temozolomide (Temodal®) [Thai]'

Temozolomide (Temodal®) [Thai] (October 2017)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Thai. Temozolomide is a chemotherapy drug used to treat gliomas. It can also be used to treat anaplastic astrocytoma in young people. It describes temozolomide, how it is given and the possible side effects.

Cover image of 'My employee has, or is caring for someone with, a brain tumour. How can I help?'

My employee has, or is caring for someone with, a brain tumour. How can I help? (September 2017)

The Brain Tumour Charity

Guidance for empoylers on how best to support an employee who has a brain tumour, or who is caring for someone with a brain tumour.

Cover image of 'Mary has a brain tumour [Welsh]'

Mary has a brain tumour [Welsh] (March 2017)

CLIC Sargent

Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Telling your employer'

Telling your employer (September 2017)

The Brain Tumour Charity

This factsheet aims to help people look at the pros and cons of telling their employer about their, or their loved one's, diagnosis, and how to go about it. 

Cover image of 'Employment adjustments'

Employment adjustments (September 2017)

The Brain Tumour Charity

This sheet gives examples of 'reasonable adjustments' that can be made in the workplace according to the side effects that you are experiencing. You can use these suggestions to start a conversation with your employer about things that can help you in the workplace.

Cover image of 'Mary has a brain tumour'

Mary has a brain tumour (September 2017)

CLIC Sargent

Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Brain tumour. A guide for patients and carers'

Brain tumour. A guide for patients and carers (March 2017)

Brain and Spine Foundation

This booklet provides information on brain tumours in adults and focuses on primary brain tumours. It describes brain tumours and provides information on common symptoms, tests and investigations and possible treatments. It also provides information on rehabilitation and returning to everyday activities.

Cover image of 'About brain tumours'

About brain tumours (September 2017)

The Brain Tumour Charity

This booklet explains what a brain tumour is, how they are graded, and the different types. It also considers possible causes and risk factors, and treatment options.

Cover image of 'Glioblastoma. A guide for patients and loved ones. Your guide to glioblastoma and anaplastic astrocytoma brain tumours'

Glioblastoma. A guide for patients and loved ones. Your guide to glioblastoma and anaplastic astrocytoma brain tumours (2017)

ngo media

Glioblastoma and anaplastic astrocytoma are two of the most common form of brain tumours in adults. Too often they can be life changing, even life limiting for patients, wreaking devastation on their families. This readable, moving and non-technical guide is your comprehensive patient focused guide to these obstinate brain cancers. It covers everything from getting an accurate diagnosis, to dealing with the physical, mental and emotional impact of the disease. From treatment options and how to cope with their side effects, to newly developing techniques and future research. This book presents an honest and realistic picture, with a personal approach. Featuring dozens of personal testimonies from those with these high-grade brain tumours and their loved ones, the book offers information, reassurance and support on these, the most complex of brain tumours. (Publisher)

Cover image of 'Spinal tumours. A guide for patients and carers'

Spinal tumours. A guide for patients and carers (May 2017)

Brain and Spine Foundation

This booklet provides information on spinal tumours in adults. It provides information on common symptoms, tests and investigations, and possible treatments. It also provides information on recovery and returning to everyday activities.  

Cover image of 'We own the sky'

We own the sky (2017)

Trapeze (Orion)

Rob Coates can't believe his luck. There is Anna, his incredible wife, and most precious of all, Jack, their son, who makes every day an extraordinary adventure. Rob feels like he's won the lottery of life. Or rather - he did. Until the day it all changes when Anna becomes convinced there is something wrong with Jack. Now Rob sleepwalks through his days, unable to bridge the gulf that separates him from his wife, his son and the business of living. But he's determined to come to terms with what’s happened-and find a way back to life, and forgiveness. We Own the Sky will resonate with anyone who has ever suffered loss or experienced great love. Luke Allnutt shows that the journey from hope to despair and back is never as simple as we think, and that even the most thoroughly broken heart can learn to beat again. (Publisher)

Cover image of 'The finch in my brain'

The finch in my brain (2017)

Hodder & Stoughton

When film producer Martino Sclavi began experiencing intense headaches, he attributed them to his frenetic lifestyle. As it turned out, he had grade 4 brain cancer and was given 18 months to live. After undergoing brain surgery - while awake - Martino found he had lost the ability to recognise words. His response was to close his eyes and begin to move his fingers across the keyboard to write this, an account of life before diagnosis and since. Defying all predictions Martino is still very much alive, words read out to him by the monotone of a computerised voice he calls Alex. But he must now live in a new way. This book - that he has written but cannot read - charts the effects of his experience: on his relationship with his young son, his marriage, his work and with himself. In the wake of his illness, everything must be reconfigured and Martino is made to question the habits, dreams and beliefs of his old life and confront the present. What he finds is strange and beautiful. Searching for the words between life and death, Sclavi shows that with determination and a subtle, persistent sense of humour, it is possible to change the story of our lives. (Publisher)

Cover image of 'Understanding brain tumours [Audio CD]'

Understanding brain tumours [Audio CD] (November 2016)

Macmillan Cancer Support

This audiobook explains brain tumours, covering causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues.

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