Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 187

Cover image of 'Questions to ask'

Questions to ask (May 2018)

The Brain Tumour Charity

A list of questions for people to ask their healthcare team at different stages of diagnosis and treatment.

Cover image of 'Your child's health team (children with a brain tumour)'

Your child's health team (children with a brain tumour) (February 2018)

The Brain Tumour Charity

This factsheet outlines the roles of some of the health care professionals who may be part of a child’s multidisciplinary team.

Cover image of 'Antineoplaston therapy'

Antineoplaston therapy (January 2018)

The Brain Tumour Charity

Antineoplaston therapy is an alternative treatment available in America. This factsheet gives an overview of antineoplaston therapy and some of the literature behind the theories.

Cover image of 'Astrocytoma'

Astrocytoma (October 2018)

The Brain Tumour Charity

This fact sheet gives an overview of astrocytomas in adults and how they are treated and answers some of the questions you may have about this type of tumour. It doesn’t deal in detail with grade 4 astrocytoma (glioblastoma/GBM), which is explained in a separate fact sheet. 

Cover image of 'Glioblastoma'

Glioblastoma (June 2018)

The Brain Tumour Charity

This factsheet gives an overview of glioblastomas in adults and answers some of the questions you may have about this type of tumour. 

Cover image of 'Watch and wait (active monitoring)'

Watch and wait (active monitoring) (May 2018)

The Brain Tumour Charity

This factsheet explains when and why watch and wait is sometimes more appropriate than immediate intervention. It also looks at how to deal with the emotional impact of receiving this type of treatment. 

Cover image of 'How to hold a difficult conversation'

How to hold a difficult conversation (August 2018)

Brainstrust

Many people are unsure about how to talk to someone who might be distressed or in difficulty. Questions about the illness, its symptoms, its meaning or its impact can be hard to ask. This guide will help people talk to those close to them,.

Cover image of 'The neuroscientist who lost her mind. A memoir of madness and recovery'

The neuroscientist who lost her mind. A memoir of madness and recovery (2018)

Bantam Press (imprint of Transworld Publications)

All we think, feel and dream, how we move, if we move, everything that makes us who we are, comes from the brain. We are the brain. So what happens when the brain fails? What happens when we lose our mind? In January 2015, renowned neuroscientist Barbara Lipska's melanoma spread to her brain. It was, in effect, a death sentence. She had surgery, radiation treatments and entered an immunotherapy clinical trial. And then her brain started to play tricks on her. The expert on mental illness - who had spent a career trying to work out how the brain operates and what happens when it fails - experienced what it is like to go mad. She began to exhibit paranoia and schizophrenia-like symptoms. She became disinhibited, completely unaware of her inappropriate behaviour. She got lost driving home from work, a journey she did every day. She couldn't remember things that had just happened to her. Small details like what she was having for breakfast became an obsession, but she ignored the fact that she was about to die. And she remembers every moment with absolute clarity. Weaving the science of the mind and the biology of the brain into her deeply personal story, this is the dramatic account of Dr Lipska's own brilliant brain gone awry. (Publisher)

Cover image of 'Gone in the morning. A writer’s journey of bereavement'

Gone in the morning. A writer’s journey of bereavement (2018)

Jessica Kingsley Publishers

An exploration of death, bereavement and grief. This first hand account gives Geoff Mead's experience of responding to the loss of his wife from a brain tumour. Giving insight into the grieving process and how Geoff learned to manage his grief, this book will offer hope to anyone experiencing something similar. After coming to the realisation that mourning is a conscious process, to which we can apply creativity, passion and intelligence, Geoff explored the unknown territory of bereavement through his writing. The book shows how artful practice, such as writing, can help to make sense of our experience and navigate the wreckage of grief. (Publishers)

Cover image of 'Brain tumours and epilepsy'

Brain tumours and epilepsy (2017)

Brain Tumour Action

This booklet explains what epilepsy is, the types of seizures, how it is diagnosed,and treatment options. it also has tips on people can help themselves, what family and friends should do if someone has a seizure, and how seizures may affect daily life (driving, work, home life, sport). 

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