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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 50

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Donor (allogeneic) stem cell transplants'

Donor (allogeneic) stem cell transplants (July 2019)

Lymphoma Action

This information is about allogeneic (donor) stem cell transplants for people with lymphoma. It explains what a donor (allogeneic) stem cell transplant is, who might have one, what is involved, the risks and what happens afterwards?

Cover image of 'Stem cell transplants'

Stem cell transplants (July 2019)

Lymphoma Action

An overview of stem cell transplants in the treatment of lymphoma. The factsheet outlines the difference between a self (autologous) stem cell transplant and a donor (allogeneic) stem cell transplant. Contents: What are stem cells?; What is a stem cell transplant?; Why are stem cell transplants used?; When are stem cell transplants used?; Self (‘autologous’) and donor (‘allogeneic’) stem cell transplants.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Having a stem cell transplant'

Having a stem cell transplant (July 2019)

Lymphoma Action

Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).

Cover image of 'Allogeneic stem cell transplantation in myeloma'

Allogeneic stem cell transplantation in myeloma (April 2019)

Myeloma UK

This infosheet has information on allogeneic stem cell transplantation, a type of transplant using stem cells from a donor, which is occasionally considered in the treatment of myeloma. It exaplains what it is, how it is carried out, and describes the advantages and disadvantages.

Cover image of 'Understanding donor stem cell (allogeneic) transplants [Audio CD]'

Understanding donor stem cell (allogeneic) transplants [Audio CD] (February 2017)

Macmillan Cancer Support

This audiobook gives a wide range of information about allogeneic (donor) stem cell treatment. It includes a list of helpful organisations. 

Cover image of 'Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant'

Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant (June 2017)

Children's Cancer and Leukaemia Group

This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Helping your child through their stem cell transplant'

Helping your child through their stem cell transplant (August 2020)

Anthony Nolan

This booklet is for anyone with a child who needs a stem cell transplant (sometimes also called a bone marrow transplant). It will help you understand why they need one, what will happen to them and how to look after them as they recover. It will also help you answer any questions your child might have about what they’re going through. It is a supplement to our children’s activity books: Going to hospital for my stem cell transplant; Having my stem cell transplant; and Coming home after my stem cell transplant. 

Cover image of 'Having a matched unrelated donor (MUD) stem cell transplant'

Having a matched unrelated donor (MUD) stem cell transplant (June 2020)

Anthony Nolan

A brief guide to a type of stem cell or bone marrow transplant called a matched unrelated donor or MUD transplant. It describes who can have this type of transplant, how it works, the possible side effects and where to find further information and support.

Cover image of 'Coming home after my stem cell transplant'

Coming home after my stem cell transplant (August 2020)

Anthony Nolan

Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.

Cover image of 'Going to hospital for my stem cell transplant'

Going to hospital for my stem cell transplant (August 2020)

Anthony Nolan

Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.

Cover image of 'Having my stem cell transplant'

Having my stem cell transplant (August 2020)

Anthony Nolan

Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.

Cover image of 'An essential guide to dealing with infections'

An essential guide to dealing with infections (March 2020)

Anthony Nolan

One of the most common side effects after a stem cell transplant is infection and although it is an expected part of recovery, it can also be challenging. This booklet highlights when you might get infections, the symptoms to look out for and how infections are treated as well as how to look after yourself and prevent infections in both your short and long term recovery. 

Cover image of 'An essential guide to diet and physical activity'

An essential guide to diet and physical activity (September 2020)

Anthony Nolan

Having a stem cell transplant is a life-changing event. Dealing with the treatment and its impact on your everyday life can be a challenge. This guide aims to help you learn more about diet and physical activity after a  transplant. All the tips are based on ideas that other patients and health professionals have told us can be useful. If you are preparing for a transplant, this leaflet is designed to help you learn more about what to expect and how you can help yourself after transplant.

Cover image of 'Having a donor lymphocyte infusion (DLI)'

Having a donor lymphocyte infusion (DLI) (July 2019)

Anthony Nolan

A brief guide to a type of treatment you may receive after your stem cell transplant. It describes what a DLI is, why you might need one, the possible side effects, and where to get support and further information.

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'Having chimeric antigen receptor T-cell (CAR T-CELL) therapy'

Having chimeric antigen receptor T-cell (CAR T-CELL) therapy (September 2019)

Anthony Nolan

A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.

Cover image of 'Essential facts for transplant recovery'

Essential facts for transplant recovery (March 2019)

Anthony Nolan

Advice for people gping home after a stem cell transplant.

Cover image of 'Self (autologous) stem cell transplants'

Self (autologous) stem cell transplants (July 2019)

Lymphoma Action

This factsheet is about stem cell transplants that use your own stem cells (autologous stem cell transplants). It covers: What is a self (autologous) stem cell transplant?; Who might have one?; What does it involve?; What are the risks?; Follow-up; Recovery. 

Cover image of 'Managing fatigue after a stem cell transplant'

Managing fatigue after a stem cell transplant (June 2019)

Anthony Nolan

A booklet to help you manage fatigue during and after a stem cell transplant, to help you come to terms with your current situation and what can help. It’s been written with guidance and advice from patients and healthcare professionals. Friends and family might also like to read through it to get an understanding of what fatigue is and how they can support you. 

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Your mental health and stem cell transplant'

Your mental health and stem cell transplant (September 2019)

Anthony Nolan

A stem cell transplant is likely to affect many aspects of your life, including the way you feel. There are likely to be many highs and lows that will have an impact on your mental health. This booklet highlights some of the issues you might experience and gives advice on how to come to terms with them. It’s been written with guidance and advice from patients and healthcare professionals. They have shared their experiences with us to help you see that other people have come through similardifficulties. There is information for carers, too, to help them look after their mental health during this challenging time.

Cover image of 'Autologous stem cell transplants. A guide for patients'

Autologous stem cell transplants. A guide for patients (December 2019)

Leukaemia Care

This booklet explains what an autologous stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support. 

Cover image of 'Tests and investigations in myeloma'

Tests and investigations in myeloma (October 2019)

Myeloma UK

This Infoguide contains information about the range of different tests and investigations that are done as part of the process of diagnosing myeloma, and later in the course of the disease. It covers why and when the tests are done, and what they entail.

Cover image of 'Donating stem cells to your relative'

Donating stem cells to your relative (October 2019)

Anthony Nolan

This booklet for anyone thinking about donating their stem cells to a relative who needs a transplant to treat a blood cancer or blood disorder. It will explain why a donation is needed and what happens at each step of the process. 

Cover image of 'Donating stem cells'

Donating stem cells (July 2019)

Blood Cancer UK

This factsheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells. 

Cover image of 'Essential facts for transplant patients'

Essential facts for transplant patients (January 2018)

Anthony Nolan

A short illustrated guide to what happens next if you or someone you know needs a stem cell transplant. 

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'High-dose therapy and autologous stem cell transplantation'

High-dose therapy and autologous stem cell transplantation (November 2018)

Myeloma UK

High-dose therapy and stem cell transplantation is a treatment option for many people who have myeloma. This booklet explains what high-dose therapy and stem cell transplantation is, why it is needed, and the advantages and disadvantages of this treatment. It also discusses what will happen during the procedure, what to do on returning home, and feelings and relationships.

Cover image of 'Preparing for hospital isolation'

Preparing for hospital isolation (October 2018)

Anthony Nolan

A booklet for anyone about to have a stem cell or bone marrow transplant. It will help you prepare for your stay in one of your hospital or transplant centre’s protective isolation units. It’s been written with guidance and advice from patients and specialist healthcare professionals. 

Cover image of 'Blood transfusions'

Blood transfusions (February 2018)

Blood Cancer UK

A blood transfusion is a treatment where you receive blood that has been donated from someone else. The blood is usually given to you through a plastic tube into a vein in your arm. This factsheet explains the different types of blood transfusion used to treat people with blood cancer or a related condition, describes what happens when you have a transfusion and outlines the possible risks. 

Cover image of 'An essential guide to graft versus host disease (GvHD)'

An essential guide to graft versus host disease (GvHD) (December 2017)

Anthony Nolan

After having a stem cell or bone marrow transplant, some patients will develop GvHD. This brief guide aims to help you understand what GvHD is, who might get it, where and when it might occur, and who to go to for help and support. It includes tips from patients.

Cover image of 'Having an autograft or autologous stem cell transplant'

Having an autograft or autologous stem cell transplant (January 2017)

Anthony Nolan

A brief guide to a type of stem cell transplant called an autologous or autograft transplant. It describes who can have this type of transplant, how it works, the advantages and disadvantages, the possible side effects, and where to get further information and support.

Cover image of 'Having a sibling stem cell transplant'

Having a sibling stem cell transplant (January 2017)

Anthony Nolan

A brief guide to a type of stem cell or bone marrow transplant called a sibling transplant. It describes who can have this type of transplant, how it works, the possible side effects and where to go for further information and support.

Cover image of 'An essential guide to sex and relationships'

An essential guide to sex and relationships (October 2017)

Anthony Nolan

This booklet is for anyone concerned about their relationship or sex life after their stem cell or bone marrow transplant. It has been written with guidance and advice from patients, their partners, and healthcare professionals, to help you come to terms with your current situation and what can be done to help. 

Cover image of 'Having a haploidentical stem cell transplant'

Having a haploidentical stem cell transplant (January 2017)

Anthony Nolan

A brief guide to a type of stem cell or bone marrow transplant called a haploidentical or haplo transplant. It describes who can have this type of transplant, how it works, the possible side effects, and where you can get support and further information.

Cover image of 'Having a cord blood transplant'

Having a cord blood transplant (January 2017)

Anthony Nolan

A brief guide to a type of stem cell transplant called a cord blood transplant. It describes who can have this type of transplant, how it works, the advantages and disadvantages, the possible side effects, and where to get further information and support. 

Cover image of 'Veno-occlusive disease (VOD)'

Veno-occlusive disease (VOD) (August 2017)

Children's Cancer and Leukaemia Group

Veno-occlusive disease (VOD) is one of the less common but serious complications that can occur during stem cell transplant (SCT). VOD is a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. It explains what VOD is and why it happens, how it is diagnosed, its impact, and how it is treated.

Cover image of 'A young person's guide to the stem cell transplant journey'

A young person's guide to the stem cell transplant journey (June 2017)

Anthony Nolan

This booklet has been designed to provide teenagers and young adults with the information and support needed at every stage of the stem cell transplant journey. It will cover all aspects, from how a donor is found, right the way through to coping with long term side effects and helping you return to education or work.

Cover image of 'Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant)'

Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant) (October 2017)

Children's Cancer and Leukaemia Group

An illustrated, colour booklet for children who are having a stem cell transplant. It describes the bone marrow, the stem cell nurses, the harvest machine, and what happens on the day that the cells are harvested and on the day that they are returned.

Cover image of 'Understanding chronic myeloid leukaemia'

Understanding chronic myeloid leukaemia (July 2017)

Macmillan Cancer Support

This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.

Cover image of 'Complementary and natural therapies for your child. Information for parents and families of a child or young person with cancer'

Complementary and natural therapies for your child. Information for parents and families of a child or young person with cancer (September 2017)

Children's Cancer and Leukaemia Group

This leaflet is for parents who are interested in finding out more about how complementary and natural therapies can help their child to cope with the side-effects of cancer and its treatment.

Cover image of 'Myeloma XII (ACCoRd)'

Myeloma XII (ACCoRd) (September 2017)

Myeloma UK

This factsheet provides information about the Myeloma XII clinical trial (to see if using a novel drug called ixazomib can strengthen the effect of the second HDT-SCT), what is involved if patients decide to take part in the trial, and the advantages and disadvantages of taking part. The purpose of the Myeloma XII trial is to see if using a novel drug called ixazomib can strengthen the effect of the second HDT-SCT.

Cover image of 'Blood stem cell and bone marrow transplants. The seven steps'

Blood stem cell and bone marrow transplants. The seven steps (June 2017)

Blood Cancer UK

This is a booklet for people who are going to have a stem cell transplant, and for people who know someone who is going to have a stem cell transplant. The transplant process is described as a series of steps. 

Cover image of 'Lucy and the good soldiers. A small person's guide to transplant'

Lucy and the good soldiers. A small person's guide to transplant (August 2016)

Anthony Nolan

Lucy's dad is diagnosed with leukaemia and has a stem cell transplant. Lucy tells you all about it in this colourful, illustrated booklet. 

Cover image of 'Marrow. A love story'

Marrow. A love story (2016)

Harper Wave (HarperCollins imprint)

The author of the New York Times bestseller Broken Open returns with a visceral and profound memoir of two sisters who, in the face of a bone marrow transplant—one the donor and one the recipient—begin a quest for acceptance, authenticity, and most of all, love. A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life, Elizabeth Lesser has sought understanding about what it means to be true to oneself and, at the same time, truly connected to the ones we love. But when her sister Maggie needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love—honestly, generously, and authentically. Hoping to give Maggie the best chance possible for a successful transplant, the sisters dig deep into the marrow of their relationship to clear a path to unconditional acceptance. They leave the bone marrow transplant up to the doctors, but take on what Lesser calls a "soul marrow transplant," examining their family history, having difficult conversations, examining old assumptions, and offering forgiveness until all that is left is love for each other’s true selves. Their process—before, during, and after the transplant—encourages them to take risks of authenticity in other aspects their lives. But life does not follow the storylines we plan for it. Maggie’s body is ultimately too weak to fight the relentless illness. As she and Lesser prepare for the inevitable, they grow ever closer as their shared blood cells become a symbol of the enduring bond they share. Told with suspense and humor, Marrow is joyous and heartbreaking, incandescent and profound. The story reveals how even our most difficult experiences can offer unexpected spiritual growth. Reflecting on the multifaceted nature of love—love of other, love of self, love of the world—Marrow is an unflinching and beautiful memoir about getting to the very center of ourselves. (Publisher) 

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