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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Macmillan Cancer Support
This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues.
Leukaemia Care
This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.
Lymphoma Action
This information is about allogeneic (donor) stem cell transplants for people with lymphoma. It explains what a donor (allogeneic) stem cell transplant is, who might have one, what is involved, the risks and what happens afterwards?
Lymphoma Action
An overview of stem cell transplants in the treatment of lymphoma. The factsheet outlines the difference between a self (autologous) stem cell transplant and a donor (allogeneic) stem cell transplant. Contents: What are stem cells?; What is a stem cell transplant?; Why are stem cell transplants used?; When are stem cell transplants used?; Self (‘autologous’) and donor (‘allogeneic’) stem cell transplants.
Children's Cancer and Leukaemia Group
This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.
Lymphoma Action
Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).
Myeloma UK
This infosheet has information on allogeneic stem cell transplantation, a type of transplant using stem cells from a donor, which is occasionally considered in the treatment of myeloma. It exaplains what it is, how it is carried out, and describes the advantages and disadvantages.
Macmillan Cancer Support
This audiobook gives a wide range of information about allogeneic (donor) stem cell treatment. It includes a list of helpful organisations.
Children's Cancer and Leukaemia Group
This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.
Macmillan Cancer Support
This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues.
Anthony Nolan
This booklet is for anyone with a child who needs a stem cell transplant (sometimes also called a bone marrow transplant). It will help you understand why they need one, what will happen to them and how to look after them as they recover. It will also help you answer any questions your child might have about what they’re going through. It is a supplement to our children’s activity books: Going to hospital for my stem cell transplant; Having my stem cell transplant; and Coming home after my stem cell transplant.
Anthony Nolan
A brief guide to a type of stem cell or bone marrow transplant called a matched unrelated donor or MUD transplant. It describes who can have this type of transplant, how it works, the possible side effects and where to find further information and support.
Anthony Nolan
Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.
Anthony Nolan
Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.
Anthony Nolan
Activity booklet for children aged between 5 and 11 who are about to have a stem cell transplant. It will help them understand why they need a transplant, what will happen to them and how to look after themselves as they recover.
Anthony Nolan
One of the most common side effects after a stem cell transplant is infection and although it is an expected part of recovery, it can also be challenging. This booklet highlights when you might get infections, the symptoms to look out for and how infections are treated as well as how to look after yourself and prevent infections in both your short and long term recovery.
Anthony Nolan
Having a stem cell transplant is a life-changing event. Dealing with the treatment and its impact on your everyday life can be a challenge. This guide aims to help you learn more about diet and physical activity after a transplant. All the tips are based on ideas that other patients and health professionals have told us can be useful. If you are preparing for a transplant, this leaflet is designed to help you learn more about what to expect and how you can help yourself after transplant.
Anthony Nolan
A brief guide to a type of treatment you may receive after your stem cell transplant. It describes what a DLI is, why you might need one, the possible side effects, and where to get support and further information.
Children's Cancer and Leukaemia Group
Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.
Anthony Nolan
A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.
Anthony Nolan
Advice for people gping home after a stem cell transplant.
Lymphoma Action
This factsheet is about stem cell transplants that use your own stem cells (autologous stem cell transplants). It covers: What is a self (autologous) stem cell transplant?; Who might have one?; What does it involve?; What are the risks?; Follow-up; Recovery.
Anthony Nolan
A booklet to help you manage fatigue during and after a stem cell transplant, to help you come to terms with your current situation and what can help. It’s been written with guidance and advice from patients and healthcare professionals. Friends and family might also like to read through it to get an understanding of what fatigue is and how they can support you.
Lymphoma Action
This booklet describes autologous stem cell transplant in detail.
Anthony Nolan
A stem cell transplant is likely to affect many aspects of your life, including the way you feel. There are likely to be many highs and lows that will have an impact on your mental health. This booklet highlights some of the issues you might experience and gives advice on how to come to terms with them. It’s been written with guidance and advice from patients and healthcare professionals. They have shared their experiences with us to help you see that other people have come through similardifficulties. There is information for carers, too, to help them look after their mental health during this challenging time.
Leukaemia Care
This booklet explains what an autologous stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.
Myeloma UK
This Infoguide contains information about the range of different tests and investigations that are done as part of the process of diagnosing myeloma, and later in the course of the disease. It covers why and when the tests are done, and what they entail.
Anthony Nolan
This booklet for anyone thinking about donating their stem cells to a relative who needs a transplant to treat a blood cancer or blood disorder. It will explain why a donation is needed and what happens at each step of the process.
Blood Cancer UK
This factsheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells.
Anthony Nolan
A short illustrated guide to what happens next if you or someone you know needs a stem cell transplant.
Children's Cancer and Leukaemia Group
A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.
Myeloma UK
High-dose therapy and stem cell transplantation is a treatment option for many people who have myeloma. This booklet explains what high-dose therapy and stem cell transplantation is, why it is needed, and the advantages and disadvantages of this treatment. It also discusses what will happen during the procedure, what to do on returning home, and feelings and relationships.
Anthony Nolan
A booklet for anyone about to have a stem cell or bone marrow transplant. It will help you prepare for your stay in one of your hospital or transplant centre’s protective isolation units. It’s been written with guidance and advice from patients and specialist healthcare professionals.
Blood Cancer UK
A blood transfusion is a treatment where you receive blood that has been donated from someone else. The blood is usually given to you through a plastic tube into a vein in your arm. This factsheet explains the different types of blood transfusion used to treat people with blood cancer or a related condition, describes what happens when you have a transfusion and outlines the possible risks.
Anthony Nolan
After having a stem cell or bone marrow transplant, some patients will develop GvHD. This brief guide aims to help you understand what GvHD is, who might get it, where and when it might occur, and who to go to for help and support. It includes tips from patients.
Anthony Nolan
A brief guide to a type of stem cell transplant called an autologous or autograft transplant. It describes who can have this type of transplant, how it works, the advantages and disadvantages, the possible side effects, and where to get further information and support.
Anthony Nolan
A brief guide to a type of stem cell or bone marrow transplant called a sibling transplant. It describes who can have this type of transplant, how it works, the possible side effects and where to go for further information and support.
Anthony Nolan
This booklet is for anyone concerned about their relationship or sex life after their stem cell or bone marrow transplant. It has been written with guidance and advice from patients, their partners, and healthcare professionals, to help you come to terms with your current situation and what can be done to help.
Anthony Nolan
A brief guide to a type of stem cell or bone marrow transplant called a haploidentical or haplo transplant. It describes who can have this type of transplant, how it works, the possible side effects, and where you can get support and further information.
Anthony Nolan
A brief guide to a type of stem cell transplant called a cord blood transplant. It describes who can have this type of transplant, how it works, the advantages and disadvantages, the possible side effects, and where to get further information and support.
Children's Cancer and Leukaemia Group
Veno-occlusive disease (VOD) is one of the less common but serious complications that can occur during stem cell transplant (SCT). VOD is a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. It explains what VOD is and why it happens, how it is diagnosed, its impact, and how it is treated.
Anthony Nolan
This booklet has been designed to provide teenagers and young adults with the information and support needed at every stage of the stem cell transplant journey. It will cover all aspects, from how a donor is found, right the way through to coping with long term side effects and helping you return to education or work.
Children's Cancer and Leukaemia Group
An illustrated, colour booklet for children who are having a stem cell transplant. It describes the bone marrow, the stem cell nurses, the harvest machine, and what happens on the day that the cells are harvested and on the day that they are returned.
Macmillan Cancer Support
This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.
Children's Cancer and Leukaemia Group
This leaflet is for parents who are interested in finding out more about how complementary and natural therapies can help their child to cope with the side-effects of cancer and its treatment.
Myeloma UK
This factsheet provides information about the Myeloma XII clinical trial (to see if using a novel drug called ixazomib can strengthen the effect of the second HDT-SCT), what is involved if patients decide to take part in the trial, and the advantages and disadvantages of taking part. The purpose of the Myeloma XII trial is to see if using a novel drug called ixazomib can strengthen the effect of the second HDT-SCT.
Blood Cancer UK
This is a booklet for people who are going to have a stem cell transplant, and for people who know someone who is going to have a stem cell transplant. The transplant process is described as a series of steps.
Anthony Nolan
A handbook for long-term recovery after a stem cell transplant.
Anthony Nolan
Lucy's dad is diagnosed with leukaemia and has a stem cell transplant. Lucy tells you all about it in this colourful, illustrated booklet.
Harper Wave (HarperCollins imprint)
The author of the New York Times bestseller Broken Open returns with a visceral and profound memoir of two sisters who, in the face of a bone marrow transplant—one the donor and one the recipient—begin a quest for acceptance, authenticity, and most of all, love. A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life, Elizabeth Lesser has sought understanding about what it means to be true to oneself and, at the same time, truly connected to the ones we love. But when her sister Maggie needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love—honestly, generously, and authentically. Hoping to give Maggie the best chance possible for a successful transplant, the sisters dig deep into the marrow of their relationship to clear a path to unconditional acceptance. They leave the bone marrow transplant up to the doctors, but take on what Lesser calls a "soul marrow transplant," examining their family history, having difficult conversations, examining old assumptions, and offering forgiveness until all that is left is love for each other’s true selves. Their process—before, during, and after the transplant—encourages them to take risks of authenticity in other aspects their lives. But life does not follow the storylines we plan for it. Maggie’s body is ultimately too weak to fight the relentless illness. As she and Lesser prepare for the inevitable, they grow ever closer as their shared blood cells become a symbol of the enduring bond they share. Told with suspense and humor, Marrow is joyous and heartbreaking, incandescent and profound. The story reveals how even our most difficult experiences can offer unexpected spiritual growth. Reflecting on the multifaceted nature of love—love of other, love of self, love of the world—Marrow is an unflinching and beautiful memoir about getting to the very center of ourselves. (Publisher)
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