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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 50

Cover image of 'Veno-occlusive disease (VOD)'

Veno-occlusive disease (VOD) (August 2017)

Children's Cancer and Leukaemia Group

Veno-occlusive disease (VOD) is one of the less common but serious complications that can occur during stem cell transplant (SCT). VOD is a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. It explains what VOD is and why it happens, how it is diagnosed, its impact, and how it is treated.

Cover image of 'A young person's guide to the stem cell transplant journey'

A young person's guide to the stem cell transplant journey (June 2017)

Anthony Nolan

This booklet has been designed to provide teenagers and young adults with the information and support needed at every stage of the stem cell transplant journey. It will cover all aspects, from how a donor is found, right the way through to coping with long term side effects and helping you return to education or work.

Cover image of 'Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant)'

Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant) (October 2017)

Children's Cancer and Leukaemia Group

An illustrated, colour booklet for children who are having a stem cell transplant. It describes the bone marrow, the stem cell nurses, the harvest machine, and what happens on the day that the cells are harvested and on the day that they are returned.

Cover image of 'Understanding chronic myeloid leukaemia'

Understanding chronic myeloid leukaemia (July 2017)

Macmillan Cancer Support

This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.

Cover image of 'Complementary and natural therapies for your child. Information for parents and families of a child or young person with cancer'

Complementary and natural therapies for your child. Information for parents and families of a child or young person with cancer (September 2017)

Children's Cancer and Leukaemia Group

This leaflet is for parents who are interested in finding out more about how complementary and natural therapies can help their child to cope with the side-effects of cancer and its treatment.

Cover image of 'Myeloma XII (ACCoRd)'

Myeloma XII (ACCoRd) (September 2017)

Myeloma UK

This factsheet provides information about the Myeloma XII clinical trial (to see if using a novel drug called ixazomib can strengthen the effect of the second HDT-SCT), what is involved if patients decide to take part in the trial, and the advantages and disadvantages of taking part. The purpose of the Myeloma XII trial is to see if using a novel drug called ixazomib can strengthen the effect of the second HDT-SCT.

Cover image of 'Blood stem cell and bone marrow transplants. The seven steps'

Blood stem cell and bone marrow transplants. The seven steps (June 2017)

Blood Cancer UK

This is a booklet for people who are going to have a stem cell transplant, and for people who know someone who is going to have a stem cell transplant. The transplant process is described as a series of steps. 

Cover image of 'Lucy and the good soldiers. A small person's guide to transplant'

Lucy and the good soldiers. A small person's guide to transplant (August 2016)

Anthony Nolan

Lucy's dad is diagnosed with leukaemia and has a stem cell transplant. Lucy tells you all about it in this colourful, illustrated booklet. 

Cover image of 'Marrow. A love story'

Marrow. A love story (2016)

Harper Wave (HarperCollins imprint)

The author of the New York Times bestseller Broken Open returns with a visceral and profound memoir of two sisters who, in the face of a bone marrow transplant—one the donor and one the recipient—begin a quest for acceptance, authenticity, and most of all, love. A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life, Elizabeth Lesser has sought understanding about what it means to be true to oneself and, at the same time, truly connected to the ones we love. But when her sister Maggie needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love—honestly, generously, and authentically. Hoping to give Maggie the best chance possible for a successful transplant, the sisters dig deep into the marrow of their relationship to clear a path to unconditional acceptance. They leave the bone marrow transplant up to the doctors, but take on what Lesser calls a "soul marrow transplant," examining their family history, having difficult conversations, examining old assumptions, and offering forgiveness until all that is left is love for each other’s true selves. Their process—before, during, and after the transplant—encourages them to take risks of authenticity in other aspects their lives. But life does not follow the storylines we plan for it. Maggie’s body is ultimately too weak to fight the relentless illness. As she and Lesser prepare for the inevitable, they grow ever closer as their shared blood cells become a symbol of the enduring bond they share. Told with suspense and humor, Marrow is joyous and heartbreaking, incandescent and profound. The story reveals how even our most difficult experiences can offer unexpected spiritual growth. Reflecting on the multifaceted nature of love—love of other, love of self, love of the world—Marrow is an unflinching and beautiful memoir about getting to the very center of ourselves. (Publisher) 

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