Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 102

Cover image of 'Understanding primary bone cancer'

Understanding primary bone cancer (March 2019)

Macmillan Cancer Support

This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'A step-by-step guide for patients'

A step-by-step guide for patients (February 2018)

Bone Cancer Research Trust

A step-by-step guide to being diagnosed with primary bone camcer. It covers diagnosis, treatment, coping with side effects, living with and after primary bone cancer, and support. There is also space to record contact details for your medical team, and details of appointments

Cover image of 'Primary bone cancer. An overview of the disease, diagnosis and treatment'

Primary bone cancer. An overview of the disease, diagnosis and treatment (February 2017)

Bone Cancer Research Trust

This factsheet describes primary bone caner, the types, who it affects, symptoms, causes and risk factors, diagnosis, treatment, follow-up care, and rehabitation and support.

Cover image of 'Your guide to Ewing sarcoma'

Your guide to Ewing sarcoma (December 2017)

Bone Cancer Research Trust

This booklet for children and young people explains what cancer is, and describes the different types of bone cancer and how Ewing sarcoma is treated. It also covers topics such as body image and what happens after treatment. Includes a glossary of medical terms.

Cover image of 'Your guide to osteosarcoma'

Your guide to osteosarcoma (December 2017)

Bone Cancer Research Trust

This booklet for children and young people explains what cancer is, and describes the different types of bone cancer and how osteosarcoma is treated. It also covers topics such as body image and what happens after treatment. Includes a glossary of medical terms.

Cover image of 'Bone health'

Bone health (May 2017)

Macmillan Cancer Support

This booklet describes why bone health is important, the factors that affect the bones (including cancer treatments) and has guidance on how to maintain bone health (diet, physical activity). It also covers treatments, such as bisphosphonates. It does not cover problems related to primary or secondary bone cancer.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Now

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma'

Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma (June 2020)

Macmillan Cancer Support

This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'The circle. A young adult's journey with cancer'

The circle. A young adult's journey with cancer (2020)

Independently published

Cancer. It's a word associated with an unrivalled sense of dread, but also one that unites us in a variety of painful and unexpected ways. I, like many others, did my best to remain ignorant of the unpleasant truths surrounding this illness until at just the age of 19 I was diagnosed with Ewing's Sarcoma, a rare bone cancer. This compiled journal is a record of my experiences as part of a group that can often be underrepresented in the public's approach to cancer. Follow me from the beginning to the end of this at times dire journey, where I do my best to learn what I can to share with the world about how we can better fight this illness on the psychological plain. If you or a loved one are in a similar situation, or perhaps you're looking to simply satisfy morbid curiosity, then partake in a unique account on one young man's experience with one of humanity's greatest killers. (Author) 

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'Zoledronic acid for primary breast cancer'

Zoledronic acid for primary breast cancer (April 2019)

Breast Cancer Care

Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.

Cover image of 'Sodium clodronate for primary breast cancer'

Sodium clodronate for primary breast cancer (April 2019)

Breast Cancer Care

This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause. 

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Understanding cancer of unknown primary'

Understanding cancer of unknown primary (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'Myeloma. An introduction'

Myeloma. An introduction (February 2019)

Myeloma UK

This booklet provides a brief overview of myeloma, the causes, symptoms, diagnosis, and treatment and management.

Cover image of 'Having a stem cell transplant'

Having a stem cell transplant (July 2019)

Lymphoma Action

Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).

Cover image of 'Fertility, pregnancy and breast cancer'

Fertility, pregnancy and breast cancer (October 2019)

Breast Cancer Now

This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman’s fertility, and possible ways of preserving fertility. It also includes information about pregnancy after a diagnosis of breast cancer, and permanent infertility. 

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Donating stem cells to your relative'

Donating stem cells to your relative (October 2019)

Anthony Nolan

This booklet for anyone thinking about donating their stem cells to a relative who needs a transplant to treat a blood cancer or blood disorder. It will explain why a donation is needed and what happens at each step of the process. 

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia Care

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'Donating stem cells'

Donating stem cells (July 2019)

Blood Cancer UK

This factsheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells. 

Cover image of 'Myeloproliferative neoplasms'

Myeloproliferative neoplasms (January 2019)

Blood Cancer UK

This booklet describes the myeloproliferative disorders - a group of diseases that shares some common features. It covers polycythaemia vera, essential thrombocythaemia, and myelofibrosis, with information on causes, signs and symptoms, diagnosis, and treatment.

Cover image of 'Chronic lymphocytic leukaemia (CLL)'

Chronic lymphocytic leukaemia (CLL) (July 2019)

Blood Cancer UK

This booklet explains what chronic lymphocytic leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Chronic myeloid leukaemia (CML)'

Chronic myeloid leukaemia (CML) (January 2019)

Blood Cancer UK

This booklet explains what chronic myeloid leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (February 2019)

Blood Cancer UK

This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.

Cover image of 'Acute promyelocytic leukaemia (APL)'

Acute promyelocytic leukaemia (APL) (November 2019)

Blood Cancer UK

Acute promyelocytic leukaemia (APL) is a form of cancer affecting the stem cells that produce myeloid blood cells in the bone marrow. This booklet explains who gets APL and what causes it, and describes the signs and symptoms, the diagnosis, the two types of APL, the treatment options (including the long-term effects of treatment) and the prognosis.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (January 2019)

Blood Cancer UK

This booklet explains what acute myeloid leukaemia is, and describes the causes and the symptoms, and how it is diagnosed and treated.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'Abbie has osteosarcoma. A guide for children'

Abbie has osteosarcoma. A guide for children (December 2018)

Bone Cancer Research Trust

Abbie Has Osteosarcoma is written for parents, carers and healthcare professionals to read with children to help them understand about their osteosarcoma and its treatment. 

Cover image of 'Understanding bone metastasis and lung cancer'

Understanding bone metastasis and lung cancer (October 2018)

Roy Castle Lung Cancer Foundation

This factsheet has information on lung cancer bone metastases, how metastases affect bones, what impact this may have on you and some of the main treatments available. 

Cover image of 'Treating primary breast cancer'

Treating primary breast cancer (December 2018)

Breast Cancer Care

This booklet describes the range of treatments that may be offered to women with newly diagnosed breast cancer.

Cover image of 'Secondary breast cancer in the bone'

Secondary breast cancer in the bone (March 2018)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the bones that has spread from the breast. It describes what secondary breast cancer in the bone is, the symptoms, and the investigations. It also describes the treatment options, but not in great detail. Lists useful organisations.

Cover image of 'Primary breast cancer information pack'

Primary breast cancer information pack (December 2018)

Breast Cancer Care

This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.

Cover image of 'Moving forward: for people living with and beyond a diagnosis of primary breast cancer'

Moving forward: for people living with and beyond a diagnosis of primary breast cancer (November 2018)

Breast Cancer Care

This book is designed to help you move forward after breast cancer. From signs and symptoms of recurrence to dealing with fatigue and financial issues, it offers practical solutions and sources of further support. Whether you have just reached the end of your treatment or your diagnosis of breast cancer was several years ago, this book is for you.

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'How prostate cancer is diagnosed'

How prostate cancer is diagnosed (October 2018)

Prostate Cancer UK

This factsheet describes the tests used to diagnose prostate cancer and explains what the results might show. The tests include the PSA test, digital rectal examination, TRUS (trans-rectal ultra sound) guided biopsy, CT scan, MRI scan and a bone scan. It also explain s the staging and grading of prostate cancer.

Cover image of 'Osteoporosis and breast cancer treatment'

Osteoporosis and breast cancer treatment (November 2018)

Breast Cancer Care

A booklet for people who have been treated for breast cancer and who may be concerned about their risk of osteoporosis. It describes osteoporosis, who is at risk, breast cancer treatment and bone density, how to look after your bones, and what to do if you think you have osteoporosis.

Cover image of 'How prostate cancer is diagnosed [large print]'

How prostate cancer is diagnosed [large print] (October 2018)

Prostate Cancer UK

This factsheet describes the tests used to diagnose prostate cancer and explains what the results might show. The tests include the PSA test, digital rectal examination, TRUS (trans-rectal ultra sound) guided biopsy, CT scan, MRI scan and a bone scan. It also explains the staging and grading of prostate cancer.

Cover image of 'The lymphatic system'

The lymphatic system (April 2018)

Lymphoma Action

Lymphoma is a cancer of the lymphatic system. The lymphatic system is part of your immune system, which helps protect you from infection. It is spread throughout your body, like blood vessels, and has many different parts. This factsheet describes the different parts of the lymphatic system and what they do: What is the lymphatic system?; Lymph; Lymph nodes; Bone marrow; Thymus; Spleen; Tonsils and adenoid; Mucosa-associated lymphoid tissue; The lymphatic system and lymphoma. 

Cover image of 'Breast cancer and you: coping with diagnosis, treatment and the future'

Breast cancer and you: coping with diagnosis, treatment and the future (August 2018)

Breast Cancer Care

This booklet is for anyone who is dealing with a diagnosis of primary breast cancer and its treatment. It discusses the emotions that may arise, how to tell other people, how to find out more, making decisions about treatment, and the effects of treatment, and looks ahead to the time when treatment is finished.

Cover image of 'Zoledronic acid [Lithuanian]'

Zoledronic acid [Lithuanian] (December 2018)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Lithuanian. Zoledronic acid is a bisphosphonate that can be used to help prevent bone loss, reduce the risk of cancer spreading to the bones in women with early breast cancer, treat bone weakness or pain caused by myeloma or cancer that has spread to the bones (secondary bone cancer), or treat high levels of calcium in the blood. This factsheet describes how it is given and the possible side-effects.

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

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