Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 91

Cover image of 'Active surveillance'

Active surveillance (March 2019)

Prostate Cancer UK

This fact sheet is for men who want to know more about active surveillance, which is a way of monitoring localised (early) prostate cancer rather than treating it straight away. 

Cover image of 'Questions to ask'

Questions to ask (November 2019)

Lymphoma Action

Questions for people to ask their medical team: Questions about your lymphoma; Questions about tests and scans; Questions about staging; Questions about active monitoring (‘watch and wait’); Questions about treatment; Questions about side effects of treatment; Questions about effects of treatment on other areas of your life; Questions about clinical trials; Questions about ending treatment; Questions about follow-up; Questions about relapse. 

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (November 2019)

Lymphoma Action

This comprehensive booklet discusses Hodgkin lymphoma in detail.

Cover image of 'Treatments for skin lymphoma'

Treatments for skin lymphoma (April 2019)

Lymphoma Action

This factsheet has information about the different treatments used for skin (cutaneous) lymphomas. It covers the following: How are skin lymphomas treated?; Active monitoring; Topical (skin-directed) treatments; Light treatment (phototherapy); Radiotherapy; Systemic (whole body) treatments; Stem cell transplants; Research and future treatments.

Cover image of 'Active monitoring ('watch and wait')'

Active monitoring ('watch and wait') (April 2018)

Lymphoma Action

This factsheet explains why watchful waiting may be appropriate for some types of lymphoma and aims to answer some of the questions people might have: What is active monitoring? Why is active monitoring done? Who might have active monitoring? What happens on active monitoring? When does treatment start? Living on active monitoring.

Cover image of 'Active monitoring ('watch and wait') for lymphoma'

Active monitoring ('watch and wait') for lymphoma (June 2018)

Lymphoma Action

Many people with low-grade (slow-growing) non-Hodgkin lymphoma have periods of active monitoring (also referred to as watch and wait or active surveillance) where they do not have treatment for their lymphoma. It can be difficult knowing you have an illness, but are not having treatment. This booklet explains what active monitoring is and why it might be offered to you. It also provides tips on coping well and there is space for notes.

Cover image of 'Watch and wait (active monitoring)'

Watch and wait (active monitoring) (May 2018)

The Brain Tumour Charity

This factsheet explains when and why watch and wait is sometimes more appropriate than immediate intervention. It also looks at how to deal with the emotional impact of receiving this type of treatment. 

Cover image of 'Low-grade non-Hodgkin lymphoma'

Low-grade non-Hodgkin lymphoma (September 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'An essential guide to diet and physical activity'

An essential guide to diet and physical activity (September 2020)

Anthony Nolan

Having a stem cell transplant is a life-changing event. Dealing with the treatment and its impact on your everyday life can be a challenge. This guide aims to help you learn more about diet and physical activity after a  transplant. All the tips are based on ideas that other patients and health professionals have told us can be useful. If you are preparing for a transplant, this leaflet is designed to help you learn more about what to expect and how you can help yourself after transplant.

Cover image of 'Simple steps for good bowel health'

Simple steps for good bowel health (November 2020)

Bowel Cancer UK

Illustrated leaflet with information about how the digestive system works and advice on how to eat well and other lifestyle changes to reduce the risk of bowel cancer.

Cover image of 'Managing weight gain after cancer treatment'

Managing weight gain after cancer treatment (August 2020)

Macmillan Cancer Support

This booklet is about managing weight gain after cancer treatment. It gives suggestions and tips to help you keep to a healthy body weight. We explain how changing the types of food you eat and being physically active can help you lose weight and feel healthier.

Cover image of 'Living with lung cancer'

Living with lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was written with the help of lung cancer experts, people affected by lung cancer, and others who support people with lung cancer to help you make the most of your health and wellbeing. 

Cover image of 'Men's health guide'

Men's health guide (2019)

World Cancer Research Fund

Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, alcohol, and physical activity. Includes brief information on the most common symptoms of prostate, bowel, lung, mouth and throat, oesophageal and testicular cancer and information on screening tests where applicable.

Cover image of 'Women's health guide'

Women's health guide (2019)

World Cancer Research Fund

Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, dietary supplements, alcohol, and physical activity. Includes brief information on the most common symptoms of breast, bowel, lung, womb, ovarian, cervical and skin cancer and information on screening tests where applicable.

Cover image of 'Active surveillance as a management for early prostate cancer'

Active surveillance as a management for early prostate cancer (August 2019)

Prostate Scotland

A leaflet to help men decide if active surveillance is right for them.

Cover image of 'A smear test could save your life. Don't ignore your invitation [Arabic]'

A smear test could save your life. Don't ignore your invitation [Arabic] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'Active ostomates. Sport and fitness after stoma surgery'

Active ostomates. Sport and fitness after stoma surgery (November 2019)

Colostomy UK

Adapting to life with a stoma can be challenging and the thought of exercise may well be the last thing on your mind as you recover from surgery. This booklet has advice on exercises to try and how to manage your stoma while exercising or playing sport.

Cover image of 'A smear test could save your life. Don't ignore your invitation [Urdu]'

A smear test could save your life. Don't ignore your invitation [Urdu] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Farsi]'

A smear test could save your life. Don't ignore your invitation [Farsi] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [French]'

A smear test could save your life. Don't ignore your invitation [French] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Somali]'

A smear test could save your life. Don't ignore your invitation [Somali] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Slovak]'

A smear test could save your life. Don't ignore your invitation [Slovak] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Tigrinya]'

A smear test could save your life. Don't ignore your invitation [Tigrinya] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'Lymphoma and the end of life'

Lymphoma and the end of life (September 2019)

Lymphoma Action

This factsheet is about what someone in the final stages of life might experience and gives suggestions to help you get the practical, social and emotional support you need. It covers the following topics: How do I know when to stop active treatment?; How does lymphoma lead to the end of life?; What symptoms might I have towards the end of life?; How can my medical team help?; Your emotions towards the end of your life; Emotional support; Frequently asked questions about lymphoma and the end of life.

Cover image of 'A smear test could save your life. Don't ignore your invitation'

A smear test could save your life. Don't ignore your invitation (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Turkish]'

A smear test could save your life. Don't ignore your invitation [Turkish] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Romanian]'

A smear test could save your life. Don't ignore your invitation [Romanian] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'A smear test could save your life. Don't ignore your invitation [Polish]'

A smear test could save your life. Don't ignore your invitation [Polish] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Chinese, Traditional]'

A smear test could save your life. Don't ignore your invitation [Chinese, Traditional] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'Move more. Your guide to becoming more active'

Move more. Your guide to becoming more active (January 2019)

Macmillan Cancer Support

Taking part in physical activity before, during and after cancer treatment can have many health benefits. It can help prevent and manage some of the effects of treatment, such as fatigue, depression and risks to your heart health. Lots of people say physical activity helps them feel more like they did before cancer. It can also help you take back control. This is your step-by-step guide to becoming more active. Here you will find tips on choosing which activity to do and where to get support. If you have not been active for a while or are new to being active, this guide will help you set realistic and achievable goals. We have included some tips to help you get started, information on how to set goals and an activity diary to help you keep track of how you are doing.

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

Cover image of 'Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read]'

Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how to keep comfortable, healthy and happy.

Cover image of 'Physical activity and cancer treatment'

Physical activity and cancer treatment (January 2019)

Macmillan Cancer Support

This booklet is for anyone who has cancer or has had treatment for cancer and is thinking about becoming more physically active. It explains what physical activity is, its benefits and how to be safe when exercising. It also includes information about the types of activity you can do and how to get started.

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Cancer and pregnancy'

Cancer and pregnancy (November 2019)

Macmillan Cancer Support|Mummy's Star

This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you. 

Cover image of 'Your feelings after cancer treatment'

Your feelings after cancer treatment (January 2019)

Macmillan Cancer Support

This booklet is for people who have had cancer treatment. You may also find it helpful if you are having ongoing treatment to control cancer or prevent it returning. It describes some of the feelings you may have and suggests ways to cope with them. 

Cover image of 'Personality changes'

Personality changes (September 2019)

The Brain Tumour Charity

This leaflet describes personality changes that may occur in brain tumour patients and the reasons behind these changes. It has advice on coping with personality changes and sources of support.

Cover image of 'Blood clot prevention. A guide for patients and carers'

Blood clot prevention. A guide for patients and carers (May 2019)

The Royal Marsden NHS Foundation Trust

This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.

Cover image of 'Caring for someone with a lung condition. Information for carers, family and friends'

Caring for someone with a lung condition. Information for carers, family and friends (November 2018)

British Lung Foundation

Information and support for those caring for someone with a lung condition (not specifically lung cancer).

Cover image of 'Self-management and remote monitoring'

Self-management and remote monitoring (October 2018)

Lymphoma Action

More and more people are living longer after a diagnosis of lymphoma. This has prompted some hospitals to change the way they organise long-term management and follow-up for people who have finished treatment. This factsheet explains how self-management support and remote monitoring may be used for people who have finished treatment. It covers: Self-management; Self-management support; Remote monitoring; When to book an appointment; Life on self-management and remote monitoring.

Cover image of 'Keeping active. The benefits of regular movement'

Keeping active. The benefits of regular movement (August 2018)

Marie Curie

Keeping active can help to reduce some of the effects of being ill, such as stress, pain and fatigue. This leaflet includes information about why we need to stay active, types of exercise (including for wheelchair users) and how to exercise safely. 

Cover image of 'Prostate cancer [Urdu]'

Prostate cancer [Urdu] (October 2018)

Macmillan Cancer Support

This factsheet is about how prostate cancer is diagnosed and treated. Includes the English-language version.

Cover image of 'Prostate cancer'

Prostate cancer (October 2018)

Macmillan Cancer Support

This factsheet is about how prostate cancer is diagnosed and treated.

Cover image of 'Prostate cancer [Russian]'

Prostate cancer [Russian] (October 2018)

Macmillan Cancer Support

This factsheet is about how prostate cancer is diagnosed and treated. Includes the English-language version.

Cover image of 'Prostate cancer [Bengali]'

Prostate cancer [Bengali] (October 2018)

Macmillan Cancer Support

This factsheet is about how prostate cancer is diagnosed and treated. Includes the English-language version.

Cover image of 'Prostate cancer [Gujarati]'

Prostate cancer [Gujarati] (October 2018)

Macmillan Cancer Support

This factsheet is about how prostate cancer is diagnosed and treated. Includes the English-language version.

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