The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
A handbook for long-term recovery after a stem cell transplant.
Macmillan Cancer Support
This leaflet is about how you can take an active role in your care. It describes types of support that your healthcare team may call the Recovery Package. This leaflet looks at: some of the support you can ask for after a cancer diagnosis; what options may be available to you for your follow-up care, and what information you need; ways you can look after yourself.
Macmillan Cancer Support
DVD and booklet. The DVD features an exercise programme for people living with or after cancer. It also includes stories and tips from people who may have been through similar experiences. They describe how they became active and how this helped them. The booklet describes what's included on the DVD, what to consider before using the DVD, and some dos and dont's. It also explains the benefits of being active. There are details of the 'Walking for Health' programme, sports organisations, support on the high street (Boots) and The National Gardens Scheme.
This short workbook is designed to help patients equip themselves with the best information about myeloma. Starting with a simple overview of the biology of the disease, it will help patients to understand the type of myeloma that they have, the remitting-relapsing nature of the disease, and the signs and symptoms they are likely to experience. It takes patients through the initial treatment options and their side effects, what to expect if they have stem cell transplantation, and how they will be treated when their symptoms return. The final sections will help patients understand the supportive care options available, and provide an insight into the latest myeloma research, which is progressing on many fronts. (Publishers)
Hearing the words “You have cancer” can be devastating - some cancer patients even say that the emotional pain and loss of certainty from hearing this are worse than the pains from the cancer, surgeries, radiation, chemotherapy, and other treatments. This is the intimate journey of a melanoma and breast cancer survivor who honestly, and sometimes even humorously, shares her own story and offers supportive emotional tools to help people diagnosed with cancer, and their loved ones and caregivers, work through the emotional pain and upheaval of a cancer diagnosis. You will be supported in knowing what it feels like to hear you have cancer and be given a variety of helpful ideas to start feeling better whether you are newly diagnosed, in treatment, or months or years after treatment. If you are a caregiver, friend, or family member who wants to help, you will get a better understanding of the cancer experience as well as tools to help the person you care about. (Publisher)
Multiple myeloma accounts for approximately 0.8% of cancers worldwide, with about 114 000 new cases each year. Rapid progress is being made in the development of new treatments and, although myeloma is incurable at present, survival has almost tripled over the past 10 years and it is now projected that a third of patients will survive more than 10 years after diagnosis. Fast Facts: Multiple Myeloma and Plasma Cell Dyscrasias emphasizes the importance of early diagnosis for a favourable outcome, covers the ever-increasing role of genetics in diagnosis and treatment, and discusses new and gold-standard treatments. A chapter on supportive care also features and briefs the reader on long-term outcomes and quality of life issues. Although primarily intended for health care professionals, this highly readable resource may be of interest to patients wanting to know more about multiple myeloma and plasma cell dyscrasias. Written for doctors, read by patients too. (Publisher)
The Cloister House Press
Throughout his extensive career Alfred Samuels was a bodyguard to some the world's most recognised celebrities. He was a physically active and mentally alert individual who provided the needs of his particular industry over many years. In January 2012 his world came to a sudden and unforeseeable halt when he was diagnosed with advanced metastatic prostate cancer, stage four. Alfred Samuels’ honest and frank account is one part of his mission to challenge men's attitudes and the taboo surrounding prostate cancer. (Publisher)
Self-published using CreateSpace Independent Publishing Platform
The Pink Moon Lovelies are members of the Facebook group Beyond the Pink Moon, named after Nicki Boscia Durlester’s memoir that intimately chronicles her journey after a breast cancer diagnosis. Nicki created the group to provide an active forum for discussion to raise awareness about the BRCA gene and breast and ovarian cancer. She never dreamed her homespun story would travel around the globe and Beyond the Pink Moon would become a support group for people from all walks of life coming together to lift each other up with inspiration, humor, faith and love. With Lovelies in Australia, Canada, England, France, Ireland, Israel, Mexico, Namibia, New Zealand, Singapore, Slovakia, South Africa, Sweden, Tasmania and the USA, Nicki, a BRCA2 survivor, and fellow moderator, Melissa Johnson Voight, a BRCA1 previvor, whose journey of steadfast faith and courage of conviction is included in this book, have encouraged their members to tell their stories with one goal in mind, to save lives. With a Foreword written by renowned breast surgeon, Dr. Kristi Funk, this riveting collection of 50 stories includes: the unflinching account of Barbie Ritzco, a United States Marine who kept silent about discovering a lump in her breast in order to deploy with her unit to Afghanistan, putting her country before her health, the moving story of Ally Durlester, Nicki’s daughter, a 25 year old BRCA2 previvor who will undergo prophylactic surgery to try to avoid the same fate as her mother, grandmother and six great-aunts who all had breast, ovarian or fallopian tube cancer, the frustrating story of Erika Grogin Lange, an Israeli Lovely and mother of five, whose nagging symptoms of fatigue, nausea and bloating went undiagnosed for months until she heard the shocking news that she had Stage III ovarian cancer, and the unpredictable journey of Susan Long Martucci, a two-time breast cancer survivor, disease free for 13 years, blindsided by another diagnosis. She is the beacon of hope who coined the term Pink Moon Lovelies. Each story is compelling and has an important message to impart. The Pink Moon Lovelies, Empowering Stories of Survival concludes with the story of the incomparable May Smith, the 32 year old South African Lovely who left a legacy of extraordinary courage, grace and love. Hers was a life well lived. When May sadly passed away on July 22, 2012 from breast cancer she left the Pink Moon Lovelies with one final message filled with wisdom and advice beyond her years. H
Being diagnosed with cancer is a shock for patient, family and friends. But modern medicine ensures that many people with cancer can be cured or go on to enjoy many more years of active and fulfilling life. Fiona Castle experienced living alongside a cancer patient when her husband, Roy, was diagnosed. In this positive and informative guide she combines the practical and emotional aspects to provide resourceful and supportive help for anyone coping with the illness. She includes: Taking it in and asking the right questions; Understanding the facts; How to get information and support; Treatments and their side effects; Living with cancer and the needs of carers; How to help yourself with complementary therapies; Terminal cancer, the fears and preparations; Getting back to ordinary life. All proceeds from the sale of this book will go to The Roy Castle Fund for Cancer Research UK. (Publisher)
New Harbinger Publications
If you have received a cancer diagnosis, you know that the hundreds of questions and concerns you have about what's to come can be as stressful as the cancer treatment itself. But research shows that if you mentally prepare yourself to handle cancer treatment by getting stress and anxiety under control, you can improve your quality of life and become an active participant in your own recovery. Created by leading psychologists specializing in oncology, the Mindfulness-Based Cancer Recovery program is based on mindfulness-based stress reduction (MBSR), a therapeutic combination of mindfulness meditation and gentle yoga now offered to cancer survivors and their loved ones in hundreds of medical centers, hospitals, and clinics worldwide. Let this book be your guide as you let go of fear and focus on getting well. (Publisher)