The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Prostate Cancer UK
This fact sheet is for men who want to know more about active surveillance, which is a way of monitoring localised (early) prostate cancer rather than treating it straight away.
Questions for people to ask their medical team: Questions about your lymphoma; Questions about tests and scans; Questions about staging; Questions about active monitoring (‘watch and wait’); Questions about treatment; Questions about side effects of treatment; Questions about effects of treatment on other areas of your life; Questions about clinical trials; Questions about ending treatment; Questions about follow-up; Questions about relapse.
This comprehensive booklet discusses Hodgkin lymphoma in detail.
This factsheet has information about the different treatments used for skin (cutaneous) lymphomas. It covers the following: How are skin lymphomas treated?; Active monitoring; Topical (skin-directed) treatments; Light treatment (phototherapy); Radiotherapy; Systemic (whole body) treatments; Stem cell transplants; Research and future treatments.
This factsheet explains why watchful waiting may be appropriate for some types of lymphoma and aims to answer some of the questions people might have: What is active monitoring? Why is active monitoring done? Who might have active monitoring? What happens on active monitoring? When does treatment start? Living on active monitoring.
Many people with low-grade (slow-growing) non-Hodgkin lymphoma have periods of active monitoring (also referred to as watch and wait or active surveillance) where they do not have treatment for their lymphoma. It can be difficult knowing you have an illness, but are not having treatment. This booklet explains what active monitoring is and why it might be offered to you. It also provides tips on coping well and there is space for notes.
The Brain Tumour Charity
This factsheet explains when and why watch and wait is sometimes more appropriate than immediate intervention. It also looks at how to deal with the emotional impact of receiving this type of treatment.
This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.
PCaSO Prostate Cancer Support Network
This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.
Having a stem cell transplant is a life-changing event. Dealing with the treatment and its impact on your everyday life can be a challenge. This guide aims to help you learn more about diet and physical activity after a transplant. All the tips are based on ideas that other patients and health professionals have told us can be useful. If you are preparing for a transplant, this leaflet is designed to help you learn more about what to expect and how you can help yourself after transplant.