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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 41

Cover image of 'Acute promyelocytic leukaemia (APL). A guide for patients'

Acute promyelocytic leukaemia (APL). A guide for patients (January 2020)

Leukaemia Care

Acute promyelocytic leukaemia (APL) is a rare sub-type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, and treatment options. It also covers practical issues of living with APL and how to talk to your haematologist, family and friends.

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients'

FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients (January 2020)

Leukaemia Care

FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia Care

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia Care

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia Care

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'Chronic lymphocytic leukaemia (CLL). A guide for patients'

Chronic lymphocytic leukaemia (CLL). A guide for patients (October 2019)

Leukaemia Care

Being told that you have chronic lymphocytic leukaemia (CLL) can be a shock. This booklet describes CLL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CLL and talking about CLL. Includes a glossary of terms and details of useful contacts and further support.   

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Acute myelomonocytic leukaemia (AMML). A guide for patients'

Acute myelomonocytic leukaemia (AMML). A guide for patients (October 2019)

Leukaemia Care

Acute myelomonocytic leukaemia (AMML) is a rare type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, prognosis, and treatment options. It also covers issues such as telling your family, managing your emotions, and survivorship. Includes a glossary and sources of support.

Cover image of 'Autologous stem cell transplants. A guide for patients'

Autologous stem cell transplants. A guide for patients (December 2019)

Leukaemia Care

This booklet explains what an autologous stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support. 

Cover image of 'Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients'

Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients (October 2019)

Leukaemia Care

This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Atypical chronic myeloid leukaemia (aCML). A guide for patients'

Atypical chronic myeloid leukaemia (aCML). A guide for patients (July 2019)

Leukaemia Care

This booklet describes atypical chronic myeloid leukaemia (aCML), what causes it, who it affects, what symptoms to expect, and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.  

Cover image of 'Acute megakaryoblastic leukaemia (AMKL). A guide for patients'

Acute megakaryoblastic leukaemia (AMKL). A guide for patients (March 2019)

Leukaemia Care

Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.

Cover image of 'B-cell acute lymphoblastic leukaemia (ALL). A guide for patients'

B-cell acute lymphoblastic leukaemia (ALL). A guide for patients (May 2019)

Leukaemia Care

This booklet explains what B-cell acute lymphoblastic leukaemia is, and describes the causes, who it affects, the symptoms and side-effects and treatment options. It also covers issues such as day-to-day life with B-cell acute lymphoblastic leukaemia, managing your emotions, telling family and friends, survivorship, palliative care, and end-of-life care.

Cover image of 'All about leukaemia [Easy read]'

All about leukaemia [Easy read] (September 2019)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Azacitidine for acute myeloid leukaemia (AML). A guide for patients'

Azacitidine for acute myeloid leukaemia (AML). A guide for patients (June 2019)

Leukaemia Care

Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.

Cover image of 'Childhood acute lymphoblastic leukaemia (ALL). A guide for parents'

Childhood acute lymphoblastic leukaemia (ALL). A guide for parents (March 2019)

Leukaemia Care

Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia Care

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'Aplastic anaemia. A guide for patients'

Aplastic anaemia. A guide for patients (October 2018)

Leukaemia Care

This booklet describes aplastic anaemia, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Essential thrombocythaemia (ET). A guide for patients'

Essential thrombocythaemia (ET). A guide for patients (April 2018)

Leukaemia Care

Essential thrombocythaemia (ET) belongs to a group of conditions called myeloproliferative neoplasms (MPNs), which also includes polycythaemia vera and myelofibrosis. ET is a chronic condition that is characterised by too many platelets (blood cells that helps the blood clot) in the blood. This booklet explains what ET is, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments.

Cover image of 'Hairy cell leukaemia. A guide for patients'

Hairy cell leukaemia. A guide for patients (April 2018)

Leukaemia Care

Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Chronic myeloid leukaemia (CML). A guide for patients'

Chronic myeloid leukaemia (CML). A guide for patients (November 2018)

Leukaemia Care

Being told that you have chronic myeloid leukaemia (CML) can be a shock. This booklet describes CML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CML and talking about CML. Includes a glossary of terms and details of useful contacts and further support.    

Cover image of 'Chronic neutrophilic leukaemia (CNL). A guide for patients'

Chronic neutrophilic leukaemia (CNL). A guide for patients (September 2018)

Leukaemia Care

Chronic neutrophilic leukaemia (CNL) is an extremely rare cancer originating in the bone marrow. Being diagnosed with CNL can be a shock, particularly if you have never heard of it. This booklet has information about CNL: what causes it; who it affects; how it affects your body; symptoms; diagnosis; treatment options. Includes details of further support and information.

Cover image of 'Adult acute lymphoblastic leukaemia (ALL). A guide for patients'

Adult acute lymphoblastic leukaemia (ALL). A guide for patients (October 2018)

Leukaemia Care

This booklet explains what acute lymphopblastic leukaemia (ALL) is, and describes the symptoms, diagnosis, and treatment options. It also covers everday life with ALL and how to talk to your haematologist, family and friends. 

Cover image of 'Chronic myelomonocytic leukaemia (CMML). A guide for patients'

Chronic myelomonocytic leukaemia (CMML). A guide for patients (June 2018)

Leukaemia Care

Being diagnosed with chronic myelomonocytic leukaemia can be a shock (CMML). This booklet describes CMML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CMML and talking about CMML. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'Adult acute myeloid leukaemia (AML). A guide for patients'

Adult acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia Care

This booklet describes acute myeloid leukaemia (AML) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.

Cover image of 'Chronic eosinophilic leukaemia (CEL). A guide for patients'

Chronic eosinophilic leukaemia (CEL). A guide for patients (September 2018)

Leukaemia Care

Being told that you have chronic eosinophilic leukaemia (CEL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes CEL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CEL and talking about CEL. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients'

DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients (December 2018)

Leukaemia Care

This booklet describes DA treatment, a combination of the drugs daunorubicin and cytarabine (Ara-C), used primarily as induction chemotherapy in patients with newly diagnosed acute myeloid meukaemia. It describes how DA is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients'

Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients (September 2018)

Leukaemia Care

This booklet is written for patients with Philadelphiachromosome-positive (Ph+) CML. It explains what tyrokinase inhibitors are and how they work. It covers imatinib, nilotinib, dasatinib, bosutinib, ponatinib, including how they are given and possible side-effects.

Cover image of 'Childhood acute myeloid leukaemia (AML). A guide for parents'

Childhood acute myeloid leukaemia (AML). A guide for parents (April 2018)

Leukaemia Care

Being told that your child has acute myeloid leukaemia (AML) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood AML, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood AML and talking about childhood AML. Includes a glossary of terms and details of useful contacts and further support. 

Cover image of 'ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients'

ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia Care

All-trans retinoic acid (ATRA), known as Tretinoin (Vesanoid®) is the acid form of vitamin A, which is used with chemotherapy for induction of remission in patients with confirmed acute promyelocytic leukaemia (APL), a subtype of acute myeloid leukaemia. This booklet describes the use of ATRA along with the chemotherapy drugs idarubicin and mitoxantrone.

Cover image of 'The emotional impact of a blood cancer. A guide for patients'

The emotional impact of a blood cancer. A guide for patients (October 2018)

Leukaemia Care

This booklet describes some of the more challenging emotional responses you may experience as you adjust to life following a diagnosis of blood cancer. It must be noted that this information is mainly written in the context of acute leukaemia and is for those who are receiving intensive treatment. However, anyone with a blood cancer diagnosis may find this information useful.

Cover image of 'Future treatments in acute myeloid leukaemia (AML). A guide for patients'

Future treatments in acute myeloid leukaemia (AML). A guide for patients (October 2018)

Leukaemia Care

The main treatment for acute myeloid leukaemia (AML) is chemotherapy, including targeted therapy. This might be followed by a stem cell transplant, and surgery and radiotherapy may be used in special circumstances. New therapies are being developed and investigated and this booklet describes several of these: clofarabine (DNA synthesis inhibitor); gilteritinib and quizartinib (tyrosine kinase inhibitors); venetoclax (B-cell lymphoma-2 (BCL2) inhibitor); and Vyxeos® (a combination of daunorubicin and cytarabine. 

Cover image of 'Common side effects of treatment. A guide for patients'

Common side effects of treatment. A guide for patients (October 2018)

Leukaemia Care

Cancer treatment can cause side-effects and sometimes these can be more difficult to manage than the illness itself. Some of these are common and experienced by many, some are much rarer and occur in very few patients. This booklet is designed to provide you with information about the common side-effects you may experience, what to expect and how they may be managed. It covers the following side effects: increased chance of infection; fatigue; hair loss; anaemia; gastrointestinal side-effects (nausea and vomiting, appetitie changes, constipation, diarrhoea); mouth changes; cognitive effects; pain and tingling; fertility; cardiac and lung toxicity; and secondary cancer risk. It also includes a glossary and details of useful contacts and further support.

Cover image of 'All about leukaemia [Easy read] [Urdu]'

All about leukaemia [Easy read] [Urdu] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Bengali]'

All about leukaemia [Easy read] [Bengali] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Welsh]'

All about leukaemia [Easy read] [Welsh] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Polish]'

All about leukaemia [Easy read] [Polish] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Gujarati]'

All about leukaemia [Easy read] [Gujarati] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Punjabi]'

All about leukaemia [Easy read] [Punjabi] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Understanding myelodysplastic syndromes'

Understanding myelodysplastic syndromes ()

MDS UK|Leukaemia Care|Bloodwise

This booklet has been written to help people understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It also provides information on coping with the emotional impact of an MDS diagnosis.

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