Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 72

Cover image of 'Healthy living. Healthy lifestyle advice for childhood cancer survivors'

Healthy living. Healthy lifestyle advice for childhood cancer survivors (June 2016)

Children's Cancer and Leukaemia Group

Healthy lifestyle advice for childhood cancer survivors. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Dexamethasone. Information for patients, parents and carers'

Dexamethasone. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet has information on the use of dexamethasone in children and young people with cancer. It also offers help to parents in managing the behaviour of children with cancer that requires regular steroids. 

Cover image of 'Safe handling of chemotherapy medicines. Information for patients, parents and carers'

Safe handling of chemotherapy medicines. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the safe handling and storage of chemotherapy medicines at home and the precautions needed for safe disposal of bodily waste.  

Cover image of 'Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment'

Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about osteonecrosis (or avascular necrosis) and the health of your bones after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Osteoradionecrosis. The health of your bones after radiotherapy'

Osteoradionecrosis. The health of your bones after radiotherapy (January 2016)

Children's Cancer and Leukaemia Group

Information about osteoradionecrosis and the health of your bones after radiotherapy treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Helping brothers and sisters. A guide for adults supporting siblings of children with cancer'

Helping brothers and sisters. A guide for adults supporting siblings of children with cancer (February 2016)

Children's Cancer and Leukaemia Group

This illustrated leaflet is designed to help adults who come into contact with the siblings of children with cancer. It explains the problems that siblings may have and how adults can best help them cope.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial'

Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial (April 2016)

Children's Cancer and Leukaemia Group

Information for teenagers and young adults about research and clinical trials.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute myeloid leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute lymphoblastic leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Neuroblastoma'

Neuroblastoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a neuroblastoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Rare tumours'

Rare tumours (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet has brief information about rare tumours of childhood, including details of useful organisations.

Cover image of 'Retinoblastoma'

Retinoblastoma (October 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

Cover image of 'Osteosarcoma'

Osteosarcoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what osteosarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Rhabdomyosarcoma'

Rhabdomyosarcoma (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what rhabdomyosarcoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Ewing sarcoma'

Ewing sarcoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Hodgkin lymphoma is, and briefly describes the signs, symptoms, tests and treatment options.

Cover image of 'Germ cell tumours'

Germ cell tumours (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'Non-Hodgkin lymphoma (NHL)'

Non-Hodgkin lymphoma (NHL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Lomustine'

Lomustine (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of lomustine in children and young people with cancer. 

Cover image of 'Imatinib'

Imatinib (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of imatinib in children and young people with cancer. 

Cover image of 'Oral etoposide'

Oral etoposide (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of oral etoposide in children and young people with cancer. 

Cover image of 'Temozolomide'

Temozolomide (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of temozolomide in children and young people with cancer. 

Cover image of 'Procarbazine'

Procarbazine (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of procarbazine in children and young people with cancer. 

Cover image of 'Chlorambucil'

Chlorambucil (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of chlorambucil in children and young people with cancer. 

Cover image of 'Oral methotrexate'

Oral methotrexate (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of oral methotrexate in children and young people with cancer. 

Cover image of 'Mercaptopurine'

Mercaptopurine (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the use of mercaptopurine in children and young people with cancer. 

Cover image of 'Aftercure. A guide for teenage and young adult survivors of cancer'

Aftercure. A guide for teenage and young adult survivors of cancer (March 2015)

Children's Cancer and Leukaemia Group

This illustrated booklet has been written for young adults (16+) who have survived cancer. Please note: this booklet was reviewed in March 2017 but no changes were made so versions dated 2015 are still current.

Cover image of 'I have a friend who has cancer'

I have a friend who has cancer (March 2014)

Children's Cancer and Leukaemia Group

This illustrated leaflet for children has a list of things that the child with cancer may want their friends to know.

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