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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 47

Cover image of 'Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour'

Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour (January 2020)

Brainstrust

Up 60% of people diagnosed with a brain tumour experience behaviour and personality changes (BPC). This booklet covers: understanding BPC; what we mean by BPC; causes; symptoms; how BPC is manifested; how it is measured; mood journals; strategies to help people cope; and treatment options and self-help strategies. It also has information for carers, details of who can help, and questions to ask.

Cover image of 'Mindfulness'

Mindfulness (April 2020)

Brainstrust

When practised regularly, mindfulness can help to reduce stress and anxiety, which can help your emotional well-being and aid sleep. This factsheet explores way that you can practice mindfulness when living with a brain tumour.

Cover image of 'How to deal with money worries'

How to deal with money worries (July 2020)

Brainstrust

This factsheet provides a framework to hlep people deal with money worries. 

Cover image of 'How to be assertive to get the support that you need'

How to be assertive to get the support that you need (March 2020)

Brainstrust

This factsheet will help you use assertiveness to get the support that you need.

Cover image of 'Lasting power of attorney'

Lasting power of attorney (March 2020)

Brainstrust

This factsheet explains all about lasting power of attorney (LPA) to help you to consider whether this is something that you need to implement. 

Cover image of 'How to build a supportive team around you'

How to build a supportive team around you (March 2020)

Brainstrust

This factsheet will help you build a supportive team so you can cope better when a loved one has a brain tumour. 

Cover image of 'How to live with uncertainty'

How to live with uncertainty (March 2020)

Brainstrust

When you have been diagnosed with a brain tumour, you feel that your life is less secure, more fragile than it once was. You find yourself living in a space where nothing seems certain anymore. It’s a scary place to be, and it can leave you feeling out of control and overwhelmed. This factsheet will help you get comfortable with living with uncertainty.

Cover image of 'How to get a carer’s assessment'

How to get a carer’s assessment (March 2020)

Brainstrust

This factsheet will explain what extra support may be available to you as a caregiver in the form of a carer’s assessment. It will go through what the assessment is and how to apply for it, and it will also signpost some useful organisations that may be able to support you.

Cover image of 'How to have a voice as caregiver'

How to have a voice as caregiver (March 2020)

Brainstrust

Being a caregiver is a daunting role – you need compassion, fortitude and fierce resilience. And more often than not, you are living these values on behalf of your close person, but never for yourself. This factsheet will help you find your voice as a caregiver of someone with a brain tumour.

Cover image of 'Understanding the pathway. When does proton beam therapy happen?'

Understanding the pathway. When does proton beam therapy happen? (January 2019)

Brainstrust

This leaflet describes when proton beam therapy is given, preparation for treatment, and what happens afterwards.

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