Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 257

Cover image of 'Young person's guide to lymphoma'

Young person's guide to lymphoma (January 2020)

Lymphoma Action

Comprehensive booklet for young people with lymphoma. 

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of '365 days past the traffic lights'

365 days past the traffic lights (2019)

Independently published

How do you cope with the death of a parent at 24 years old? The time when you’re somewhere between independence and reliance on parents, figuring out who you are and what you want to do, and trying to maintain friendships and a social life when your world is crumbling around you and no one understands. Rose Taylor straddled two worlds; living in both a picturesque English village and an adventure filled Hollywood lifestyle in Los Angeles. But in late 2017 life hurtled her into a new realm, one that was immersed in medical settings and put her life on hold. In this compelling and emotive memoir, Rose Taylor explores the first 365 days following the death of her father. She writes frankly about the moment of diagnosis, the experience of becoming a carer for a parent and sheds light on the psychological and physical symptoms of bereavement. The book takes the reader between London, Atlanta and Los Angeles weaving together the experience of grieving and a narrative of reconciling memory and loss. The book ultimately offers a voice for grieving young adults, with the aim of showing them they are not alone. (Publisher) 

Cover image of 'Searching for information and support online. Help and advice for parents and families of children, teenagers and young adults with cancer'

Searching for information and support online. Help and advice for parents and families of children, teenagers and young adults with cancer (December 2018)

Children's Cancer and Leukaemia Group

The huge amount of information online can be overwhelming, and sometimes conflicting, causing even more worry and stress. It is important that parents make sure that health information is filtered and gathered from reliable, easy to understand sources. As a parent or carer of a newly-diagnosed child, you may not feel confident when searching through cancer information. This leaflet offers advice and tips on where to start and what to look for.

Cover image of 'Practical advice for young people with lymphoma'

Practical advice for young people with lymphoma (November 2018)

Lymphoma Action

Practical advice on issues that often concern teenagers and young adults (up to 24 years old) with lymphoma. It covers: After diagnosis; Where you will be treated; Your medical team; Looking after yourself; School, university and work; Relationships; After treatment.

Cover image of 'Follow-up appointments'

Follow-up appointments (October 2018)

Lymphoma Action

This factsheet explains what to expect from follow-up appointments and how to prepare for them. It is relevant to people of all ages, although follow-up in children, teenagers and young adults may include some additional checks on development and growth. Contents: Follow-up after treatment; What are follow-up appointments for?; Before follow-up appointments; What happens at follow-up appointments?; When will my follow-up finish?.

Cover image of 'The cancer guide for young people. What to expect when you're affected by cancer'

The cancer guide for young people. What to expect when you're affected by cancer (February 2018)

Macmillan Cancer Support

A booklet for young people aged 12-25 years. It aims to help answer some of their questions and to provide tips and guidance. It explains what cancer is and how it can be treated. It also gives practical tips about coping with treatment, relationships and sorting out practical things like school, university, work, and money.

Cover image of 'The Boobies (and that nasty thing called cancer)'

The Boobies (and that nasty thing called cancer) (2018)

A Spark In The Sand

Ceara Hayden's book The Boobies is a lighthearted and informative story about breast cancer. Her quirky and witty rhymes convey this serious disease in a way that is accessible to young adults and grown-ups alike. Based on her own experience of her mother's diagnosis, Ceara's story brings warmth, hope (and a little humour) for those suffering or watching a loved one suffer from this devastating illness. All profits from this book will be donated to the breast cancer awareness charity CoppaFeel. (Publisher)

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