The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheet is about the most common group of skin lymphomas, T-cell skin lymphomas and covers: What is T-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of T-cell skin lymphoma including mycosis fungoides and Sézary syndrome; Outlook; Follow-up; Research and clinical trials.
POEMS syndrome is a rare disorder that can affect multiple systems in the body. It is named after five common features of the syndrome: polyneuropathy (also known as peripheral neuropathy); organomegaly (enlargement of organs, such as the liver, spleen or lymph nodes); endocrinopathy (abnormal function of endocrine glands); monoclonal plasma cell disorder; and skin changes. This factsheet explains what POEMS syndrome is, how it is diagnosed and how it is treated and managed.
This factsheet explains clinical trials, and has details of trials currently open to people with myelodysplastic syndrome.
Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.
Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.
Bowel Cancer UK
This booklet is for people who have been diagnosed with bowel cancer under the age of 50. It gives an introduction to how bowel cancer can affect your body, your emotions, your relationships and your everyday life. It includes the personal experiences of people who have been diagnosed with bowel cancer at a younger age. There are links to more detailed information, contact details for organisations, and a glossary of the medical words used.
Bowel Cancer UK
Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you.
The Oesophageal Patients Association
This booklet has been written for people who have had an oesophagectomy or a gastrectomy. It describes the operation and recovery, how the surgery may affect eating and drinking, and the possible problems that may arise, such as dumping, gastric retention, acid regurgitation, or diarrhoea. It has advice on life after surgery; for example, driving, sleep, relationships, and going back to work, and concludes with suggestions for small meals, snacks and nutritious drinks.
All health professionals, regardless of specialty, will care for patients with pain that has persisted for more than 6 months. This fully updated fourth edition of Fast Facts: Chronic and Cancer Pain, written by two internationally renowned experts in the field, is designed to bring busy health professionals up to speed with the latest information in this area, including: easy-to-read overviews of pain mechanisms; a practical approach to pain assessment; developments in stepped care and multimodal management; the latest thinking on opioids. With health services around the world responding to calls to improve the management of painful long-term conditions, develop preventive and cost-effective solutions, and respond to patient choice and voice, this easy-to-read fact-packed book is essential reading for all GPs, nurses, junior hospital doctors, physical therapists, clinical psychologists, occupational therapists, pharmacists, medical specialists and medical students wanting – and needing – to know more. (Publisher)
Children's Cancer and Leukaemia Group
This factsheet has been written to help parents understand posterior fossa syndrome (PFS), the name given to a collection of symptoms that may occur together following surgery to the back of the brain. PFS is also sometimes known as cerebellar mutism syndrome.