The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.
Blood Cancer UK
This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.
Children's Cancer and Leukaemia Group
Being told your child’s cancer has come back or hasn’t gone away can come as a huge shock, bringing back many emotions from your child’s first diagnosis. This booklet acknowledges these feelings and gives information to help you cope with the experience once again.
Multiple myeloma accounts for approximately 0.8% of cancers worldwide, with about 114 000 new cases each year. Rapid progress is being made in the development of new treatments and, although myeloma is incurable at present, survival has almost tripled over the past 10 years and it is now projected that a third of patients will survive more than 10 years after diagnosis. Fast Facts: Multiple Myeloma and Plasma Cell Dyscrasias emphasizes the importance of early diagnosis for a favourable outcome, covers the ever-increasing role of genetics in diagnosis and treatment, and discusses new and gold-standard treatments. A chapter on supportive care also features and briefs the reader on long-term outcomes and quality of life issues. Although primarily intended for health care professionals, this highly readable resource may be of interest to patients wanting to know more about multiple myeloma and plasma cell dyscrasias. Written for doctors, read by patients too. (Publisher)
This factsheet gives an overview of what happens if lymphoma comes back (relapses) or doesn’t respond to treatment (refractory lymphoma). It covers: What is relapsed or refractory lymphoma? Who might experience relapse? How will I know if my lymphoma has relapsed? What happens if lymphoma relapses? How is relapsed or refractory lymphoma treated? What happens if there is no further treatment for my lymphoma?
This factsheet is about MALT lymphoma – a slow-growing type of non-Hodgkin lymphoma. It most commonly develops in the stomach (gastric MALT lymphoma) but can develop in other parts of the body (non-gastric MALT lymphoma). Contents: What is MALT lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Follow-up; Relapsed and refractory MALT lymphoma; Research and targeted treatments.
Splenic marginal zone lymphoma is a slow-growing type of non-Hodgkin lymphoma that develops in the spleen. This factsheet covers the following topics: What is splenic marginal zone lymphoma?; Who gets splenic marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed or refractory splenic marginal zone lymphoma; Research and targeted treatments.
This factsheet is about nodal marginal zone lymphoma – a rare, slow-growing type of non-Hodgkin lymphoma. Contents: What is nodal marginal zone lymphoma?; Who gets nodal marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed and refractory nodal marginal zone lymphoma; Research and targeted treatments.
Christie Hospital NHS Trust
This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.
PCaSO Prostate Cancer Support Network
This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.