Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 30

Cover image of 'Myelodysplastic syndromes (MDS)'

Myelodysplastic syndromes (MDS) (March 2019)

Blood Cancer UK

This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'What happens if lymphoma relapses?'

What happens if lymphoma relapses? (February 2020)

Lymphoma Action

This factsheet gives an overview of what happens if lymphoma comes back (relapses) or doesn’t respond to treatment (refractory lymphoma). It covers: What is relapsed or refractory lymphoma? Who might experience relapse? How will I know if my lymphoma has relapsed? What happens if lymphoma relapses? How is relapsed or refractory lymphoma treated? What happens if there is no further treatment for my lymphoma?

Cover image of 'MALT lymphoma (extranodal marginal zone lymphoma)'

MALT lymphoma (extranodal marginal zone lymphoma) (January 2020)

Lymphoma Action

This factsheet is about MALT lymphoma – a slow-growing type of non-Hodgkin lymphoma. It most commonly develops in the stomach (gastric MALT lymphoma) but can develop in other parts of the body (non-gastric MALT lymphoma). Contents: What is MALT lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Follow-up; Relapsed and refractory MALT lymphoma; Research and targeted treatments.

Cover image of 'Splenic marginal zone lymphoma'

Splenic marginal zone lymphoma (January 2020)

Lymphoma Action

Splenic marginal zone lymphoma is a slow-growing type of non-Hodgkin lymphoma that develops in the spleen. This factsheet covers the following topics: What is splenic marginal zone lymphoma?; Who gets splenic marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed or refractory splenic marginal zone lymphoma; Research and targeted treatments.

Cover image of 'Nodal marginal zone lymphoma'

Nodal marginal zone lymphoma (January 2020)

Lymphoma Action

This factsheet is about nodal marginal zone lymphoma – a rare, slow-growing type of non-Hodgkin lymphoma. Contents: What is nodal marginal zone lymphoma?; Who gets nodal marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed and refractory nodal marginal zone lymphoma; Research and targeted treatments.

Cover image of 'Anaemia'

Anaemia (February 2019)

Lymphoma Action

Many people with lymphoma are affected by anaemia at some point during their illness, either because of the lymphoma itself or as a side effect of the treatment they are having. This factsheet describes what anaemia is and what causes it, why haemoglobin is important and how much you should have, the symptoms of anaemia, and its treatment.

Cover image of 'Ibrutinib'

Ibrutinib (November 2019)

Lymphoma Action

This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.

Cover image of 'Classical Hodgkin lymphoma'

Classical Hodgkin lymphoma (April 2019)

Lymphoma Action

This factsheet is about classical Hodgkin lymphoma. It describes what it is, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapsed and refractory classical Hodgkin lymphoma, and research.

Cover image of 'Adult T-cell leukaemia/lymphoma (ATL)'

Adult T-cell leukaemia/lymphoma (ATL) (August 2019)

Lymphoma Action

This factsheet is about adult T-cell leukaemia/lymphoma (ATL), a rare type of T-cell lymphoma associated with the HTLV-1 virus. It covers: What is ATL?; Who gets it?; Symptoms; Treatment; Relapsed and refractory ATL; Research and targeted treatments. 

Cover image of 'Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL)'

Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) (August 2019)

Lymphoma Action

Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) are thought to develop from the same type of cell and are treated in the same way. This factsheet describes what they are, who gets them, the symptoms, treatment, relapsed and refractory AITL and FTCL, and research and targeted treatments

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