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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Travelling, going on holiday and lung cancer'

Travelling, going on holiday and lung cancer (March 2019)

Roy Castle Lung Cancer Foundation

Most people look forward to a holiday. This booklet covers everything you will want to know, from medication advice to destinations. 

Cover image of 'Pain and discomfort following stoma surgery'

Pain and discomfort following stoma surgery (July 2019)

Colostomy Association

This leaflet describes what may cause pain and discomfort following Hartmann's procedure or loop stoma or abdomino-perineal excision of the rectum (APER), coping strategies and treatments available. Patients share their experiences.

Cover image of 'Living with a stoma. Information for ostomates and their carers'

Living with a stoma. Information for ostomates and their carers (July 2019)

Colostomy UK

This booklet describes what happens after the operation, how to look after a stoma, the early days at home, and getting back to normal. It also advice on exercise and what to eat.

Cover image of 'Men's health guide'

Men's health guide (2019)

World Cancer Research Fund

Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, alcohol, and physical activity. Includes brief information on the most common symptoms of prostate, bowel, lung, mouth and throat, oesophageal and testicular cancer and information on screening tests where applicable.

Cover image of 'Radiotherapy (localised penile cancer)'

Radiotherapy (localised penile cancer) (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the use of radiotherapy to treat cancer that has not spread to other parts of the body.

Cover image of 'Permanent seed brachytherapy'

Permanent seed brachytherapy (March 2019)

Prostate Cancer UK

This factsheet describes how permanent seed brachytherapy may be used to treat prostate cancer, who can have it, the advantages and disadvantages, what happens after treatment, and the possible side effects. It does not describe external beam radiotherapy or high dose rate brachytherapy.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'A-Z of medical words'

A-Z of medical words (July 2019)

Prostate Cancer UK

This factsheet explains some of the words that people may read or hear when they are finding out about prostate problems and prostate cancer.

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

Cover image of 'Chronic myeloid leukaemia (CML)'

Chronic myeloid leukaemia (CML) (January 2019)

Bloodwise

This booklet explains what chronic myeloid leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Total penectomy'

Total penectomy (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the aftercare, including catheters, and possible complications of a total penectomy

Cover image of 'Partial penectomy'

Partial penectomy (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the aftercare, including catheters, and possible complications of a partial penectomy 

Cover image of 'Women's health guide'

Women's health guide (2019)

World Cancer Research Fund

Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, dietary supplements, alcohol, and physical activity. Includes brief information on the most common symptoms of breast, bowel, lung, womb, ovarian, cervical and skin cancer and information on screening tests where applicable.

Cover image of 'Glans resurfacing and split skin graft/Glansectomy'

Glans resurfacing and split skin graft/Glansectomy (March 2019)

Orchid – Fighting Male Cancer

This information sheet describes glans resurfacing and glansectomy,  how surgery is carried out, aftercare, and possible complications.

Cover image of 'Radiotherapy and chemotherapy (for non localised cancer)'

Radiotherapy and chemotherapy (for non localised cancer) (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the use of radiotherapy and chemotherapy to treat cancer that has spread beyond the penis to other parts of the body.

Cover image of 'Focus on men's health'

Focus on men's health (January 2019)

Cancer Focus Northern Ireland

Lifestyle tips for men to help reduce the risk of cancer.

Cover image of 'Prostate log book'

Prostate log book (July 2019)

Prostate Scotland

A log book for men to keep a record of appointments, the names of their health professionals, and the results of tests.

Cover image of 'Financial support - help with costs [Welsh]'

Financial support - help with costs [Welsh] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Bowel cancer'

Bowel cancer (2019)

Guts UK

Information about bowel cancer, including causes, symptoms, diagnosis, treatment options, and secondary bowel cancer.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'Myelodysplastic syndromes (MDS)'

Myelodysplastic syndromes (MDS) (March 2019)

Bloodwise

This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Focus on women's health'

Focus on women's health (January 2019)

Cancer Focus Northern Ireland

Lifestyle tips for women to help reduce the risk of cancer.

Cover image of 'Acute lymphoblastic leukaemia (ALL) in adults'

Acute lymphoblastic leukaemia (ALL) in adults (February 2019)

Bloodwise

This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.

Cover image of 'Financial support - benefits [Chinese, Traditional]'

Financial support - benefits [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Stage 2 ovarian cancer'

Stage 2 ovarian cancer (June 2019)

Ovacome

This factsheet describes how stage 2 ovarian cancer is treated. 

Cover image of 'Radiotherapy for advanced prostate cancer'

Radiotherapy for advanced prostate cancer (March 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer who would like to know more about treatment with palliative radiotherapy. It explains who can have palliative radiotherapy, how it treats advanced prostate cancer and the advantages and disadvantages. It covers external beam radiotherapy and internal radiotherapy (radioisotopes), describing what the treatment involves and the side effects. It does not cover the treatment of localised or locally-advanced prostate cancer.

Cover image of 'Stage 3 ovarian cancer'

Stage 3 ovarian cancer (June 2019)

Ovacome

This factsheet describes how stage 3 ovarian cancer is treated. 

Cover image of 'Creative arts. Evidence-based information to help you self-manage your cancer experience'

Creative arts. Evidence-based information to help you self-manage your cancer experience (2019)

Penny Brohn UK

This evidence-based information sheet aims to provide clearly sourced and reliable information to help you make informed choices about the range of creative arts activities on offer to support people with cancer. 

Cover image of 'Colonoscopy through the stoma - a patient's perspective'

Colonoscopy through the stoma - a patient's perspective (June 2019)

Colostomy UK

This leaflet describes how a colonoscopy through the stoma is carried out, the preparation beforehand (bowel cleansing), what happens afterwards and the possible risks. It also explains what polyps are.

Cover image of 'Stage 4 ovarian cancer'

Stage 4 ovarian cancer (June 2019)

Ovacome

This factsheet describes how stage 4 ovarian cancer is treated. 

Cover image of 'Early prostate cancer explained'

Early prostate cancer explained (October 2019)

Prostate Scotland

This booklet has detailed information about early prostate cancer, and is aimed at helping men, their partners and families understand about prostate cancer, the tests, investigations and treatment options and help them decide on the treatment that suits them best.

Cover image of 'Metastatic spinal cord compression (MSCC)'

Metastatic spinal cord compression (MSCC) (February 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Lymph node dissection'

Lymph node dissection (March 2019)

Orchid – Fighting Male Cancer

This factsheet describes inguinal and pelvic lymph node dissection and possible complications such as infection and lymphoedema.

Cover image of 'Looking after someone. Information and support for carers in Northern Ireland'

Looking after someone. Information and support for carers in Northern Ireland (November 2019)

Carers Northern Ireland

Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer. 

Cover image of 'Manservation. Sons and daughters guide to prostate cancer. Helping you have those essential conversations with your father about prostate cancer'

Manservation. Sons and daughters guide to prostate cancer. Helping you have those essential conversations with your father about prostate cancer (November 2019)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet gives an overview of prostate cancer and has tips for how adult sons and daughters can support their fathers.

Cover image of 'Clinical trials'

Clinical trials (January 2019)

Kidney Cancer UK

Factsheet with information about clinical trials. It describes the different phases of trials, who conducts trials and where they take place and has advice about deciding whether to participate.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Bloodwise

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'Recipes for when food is a problem'

Recipes for when food is a problem (September 2019)

The Oesophageal Patients Association

Recipes and tips for people with oesophageal cancer who are having problems eating.

Cover image of 'Looking after someone. Information and support for carers in Wales'

Looking after someone. Information and support for carers in Wales (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Colostomy irrigation. An introduction'

Colostomy irrigation. An introduction (July 2019)

Colostomy Association

This leaflet explains the advantages and disadvantages of colostomy irrigation as an alternative to a stoma pouch. It describes who can and cannot irrigate, when irrigation can start, how it is taught, the equipment and supplies required, and how to irrigate.

Cover image of 'Donating stem cells'

Donating stem cells (July 2019)

Bloodwise

This fact sheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells. 

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Applying for a blue badge. Exemption from Prescription Charges'

Applying for a blue badge. Exemption from Prescription Charges (November 2019)

Mesothelioma UK

This leaflet describes how to apply for a blue badge. It also explains that prescription charges were abolished for cancer patients in 2009.

Cover image of 'The bowel screening test. What you need to know [Polish]'

The bowel screening test. What you need to know [Polish] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Zoledronic acid for primary breast cancer'

Zoledronic acid for primary breast cancer (April 2019)

Breast Cancer Care

Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.

Cover image of 'Getting care and support. A guide for people living with a terminal illness, and their family and friends'

Getting care and support. A guide for people living with a terminal illness, and their family and friends (April 2019)

Marie Curie

This guide is for people living with a terminal illness and their friends and family. It aims to helps you explore your care options. It explains what care may be available, what you can expect from it, and who to ask for help.

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