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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 76

Cover image of 'Dear life. A doctor's story of love and loss'

Dear life. A doctor's story of love and loss (2020)

Little, Brown Book Group

As a specialist in palliative medicine, Dr Rachel Clarke chooses to inhabit a place many people would find too tragic to contemplate. Every day she tries to bring care and comfort to those reaching the end of their lives and to help make dying more bearable. Rachel's training was put to the test in 2017 when her beloved GP father was diagnosed with terminal cancer. She learned that nothing - even the best palliative care - can sugar-coat the pain of losing someone you love. And yet, she argues, in a hospice there is more of what matters in life - more love, more strength, more kindness, more joy, more tenderness, more grace, more compassion - than you could ever imagine. For if there is a difference between people who know they are dying and the rest of us, it is simply this: that the terminally ill know their time is running out, while we live as though we have all the time in the world. Dear Life is a book about the vital importance of human connection, by the doctor we would all want by our sides at a time of crisis. It is a love letter - to a father, to a profession, to life itself. (Publisher)

Cover image of 'Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet'

Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet (March 2019)

Christie Hospital NHS Trust

Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.

Cover image of 'Pain and discomfort following stoma surgery'

Pain and discomfort following stoma surgery (July 2019)

Colostomy Association

This leaflet describes what may cause pain and discomfort following Hartmann's procedure or loop stoma or abdomino-perineal excision of the rectum (APER), coping strategies and treatments available. Patients share their experiences.

Cover image of 'Pain and pancreatic cancer'

Pain and pancreatic cancer (February 2019)

Pancreatic Cancer UK

This booklet describes the different types of pain that pancreatic cancer can cause. It has information on how to describe pain to your medical team, and ways of keeping it under control, including painkillers.  

Cover image of 'My lung surgery'

My lung surgery (August 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.

Cover image of 'Living with skin lymphoma'

Living with skin lymphoma (April 2019)

Lymphoma Action

This factsheet has advice and support to help you manage symptoms and to live well with skin (cutaneous) lymphoma. It overs the following topics: Alleviating itching and dryness; Minimising skin irritation; Treating an infection; Controlling your temperature; Managing pain; Improving the appearance of your skin; Day-to-day life.

Cover image of 'Bereavement and grief'

Bereavement and grief (November 2019)

Lymphoma Action

The death of someone you love can be extremely difficult to deal with and the mix of feelings that accompany such loss can feel overwhelming. Even if the person was unwell for a while, it can still be a shock. We all have our own ways of grieving. While nobody can take away the pain, there is support available to help you cope. Contents: What is grief?; Feelings you might experience when someone you love dies; Interactions with other people; Frequently asked questions about bereavement, loss and grief; How can I help myself?.

Cover image of 'Managing cancer pain'

Managing cancer pain (July 2019)

Macmillan Cancer Support

This booklet aims to help people understand more about cancer pain and the wide range of medical and complementary treatments available for controlling it. It describes pain and its possible causes, before covering individual methods of pain control. It includes a section on how to describe pain, a pullout pain diary, information about sources of support, and lists of useful organisation and websites.

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read]'

Living with an illness you will probably die from. How to keep comfortable, healthy and happy [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how to keep comfortable, healthy and happy.

Cover image of 'Pancreatic cancer. Treating symptoms and getting support. An Easy Read booklet'

Pancreatic cancer. Treating symptoms and getting support. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain how symptoms like diet problems and pain are treated, and how you can get support. 

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'How long have I got? The story of a ‘terminal’ cancer patient'

How long have I got? The story of a ‘terminal’ cancer patient (2019)

Independently published

Suitcases filled with medication. Life and death situations. Multiple organ removal. Risking everything to stay alive just one more day. And people still moan to you when they have a cold. Welcome to the life of a ‘terminal’ cancer patient. In January 2016 thirty-year-old Fi Munro was diagnosed with stage four ovarian cancer. Told from day one that her cancer was incurable and ‘terminal’, Fi faced unimaginable pain, heartache and suffering as the life she’d dreamed of was suddenly pulled away from her. Yet in the wake of this news she did not wallow. Instead she discovered a remarkable inner strength, resilience and, above all, a very dark sense of humour. Years later and she is still here, having outlived, in her opinion, two ‘very unreasonable’ prognoses. How Long Have I Got? is her inspiring story. Honest, open and often tear-jerking this is everything you wanted to know - and some stuff you’ll want to forget - about living with cancer and an important reminder that we are all terminal. Reading this will change your life forever. Fi Munro is a multi-award-winning researcher, author, blogger, speaker and mentor recognised internationally for her presentations and articles on her journey and the importance of holistic health. She has been featured in two BBC documentaries, in TV and radio shows, and in newspaper and magazine articles across the globe. Today she is healthier and happier than ever before and believes cancer saved her life. She is currently training to be a shaman and is excited for what the future holds. (Publisher)

Cover image of 'Managing pain. A guide for people living with a terminal illness and their carers'

Managing pain. A guide for people living with a terminal illness and their carers (May 2018)

Marie Curie

If you’re living with a terminal illness, or caring for someone who is, you may be worried about pain. This booklet explains what causes pain and how it can be effectively managed. 

Cover image of 'A step-by-step guide for patients'

A step-by-step guide for patients (February 2018)

Bone Cancer Research Trust

A step-by-step guide to being diagnosed with primary bone camcer. It covers diagnosis, treatment, coping with side effects, living with and after primary bone cancer, and support. There is also space to record contact details for your medical team, and details of appointments

Cover image of 'Managing lung cancer symptoms'

Managing lung cancer symptoms (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone you care for has just been diagnosed with lung cancer you may have lots of questions. This booklet was produced with input from people affected by lung cancer and lung cancer experts, and is designed to help answer those questions.It describes the possible symptoms that may experienced when living with lung cancer and how to cope with them.

Cover image of 'Keeping active. The benefits of regular movement'

Keeping active. The benefits of regular movement (August 2018)

Marie Curie

Keeping active can help to reduce some of the effects of being ill, such as stress, pain and fatigue. This leaflet includes information about why we need to stay active, types of exercise (including for wheelchair users) and how to exercise safely. 

Cover image of 'Living with and after prostate cancer. A guide to physical, emotional and practical issues'

Living with and after prostate cancer. A guide to physical, emotional and practical issues (December 2018)

Prostate Cancer UK

This booklet is for men living with prostate cancer, before during and after treatment. It is also for men who may be having their prostate cancer monitored, rather than having treatment. It contains information about the physical and emotional effects of living with prostate cancer and treatment, and looks at ways to manage them. It also provides information about practical issues such as work and money.

Cover image of 'Menopausal symptoms and breast cancer'

Menopausal symptoms and breast cancer (March 2018)

Breast Cancer Care

A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Symptoms of lymphoma'

Symptoms of lymphoma (November 2018)

Lymphoma Action

This information gives details about the symptoms of lymphoma and the possible reasons for them: B symptoms; swollen lymph nodes; fatigue; unexplained weight loss; night sweats; itching; fever; difficulty getting over infections; chest symptoms; abdominal (tummy) symptoms; pain; skin symptoms; brain and nerve symptoms; swelling in the arms or legs; anaemia (low red blood cells). 

Cover image of 'Coping with common symptoms of lymphoma'

Coping with common symptoms of lymphoma (November 2018)

Lymphoma Action

This factsheet has general guidance for coping with some of the symptoms of lymphoma, including: swollen lymph nodes; fatigue;  weight loss; night sweats; itching; pain; skin symptoms; swollen arms or legs; and coping with your emotions.

Cover image of 'Myeloma bone disease and bisphosphonates'

Myeloma bone disease and bisphosphonates (November 2018)

Myeloma UK

This booklet provides information on why myeloma bone disease may occur, how it is diagnosed and monitored and how it is managed and treated, including the use of bisphosphonates.

Cover image of 'Your operation and recovery'

Your operation and recovery (January 2018)

Breast Cancer Care

This booklet provides information for anyone going into hospital for breast cancer surgery. It describes what may happen before admission, what to take into hospital, what happens before and after surgery, what to expect after surgery (normal changes, possible problems) and leaving hospital and recovering from surgery. Includes details of further support and useful organisations.

Cover image of 'Zoledronic acid [Lithuanian]'

Zoledronic acid [Lithuanian] (December 2018)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Lithuanian. Zoledronic acid is a bisphosphonate that can be used to help prevent bone loss, reduce the risk of cancer spreading to the bones in women with early breast cancer, treat bone weakness or pain caused by myeloma or cancer that has spread to the bones (secondary bone cancer), or treat high levels of calcium in the blood. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Common side effects of treatment. A guide for patients'

Common side effects of treatment. A guide for patients (October 2018)

Leukaemia Care

Cancer treatment can cause side-effects and sometimes these can be more difficult to manage than the illness itself. Some of these are common and experienced by many, some are much rarer and occur in very few patients. This booklet is designed to provide you with information about the common side-effects you may experience, what to expect and how they may be managed. It covers the following side effects: increased chance of infection; fatigue; hair loss; anaemia; gastrointestinal side-effects (nausea and vomiting, appetitie changes, constipation, diarrhoea); mouth changes; cognitive effects; pain and tingling; fertility; cardiac and lung toxicity; and secondary cancer risk. It also includes a glossary and details of useful contacts and further support.

Cover image of 'Managing the late effects of breast cancer treatment'

Managing the late effects of breast cancer treatment (October 2018)

Macmillan Cancer Support

Information for women who experience side-effects that continue for six months or longer after treatment, or delayed late effects that begin months or years after treatment. 

Cover image of 'Managing the late effects of head and neck cancer treatment'

Managing the late effects of head and neck cancer treatment (July 2018)

Macmillan Cancer Support

Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.

Cover image of 'All that followed. A story of cancer, kids and the fear of leaving too soon'

All that followed. A story of cancer, kids and the fear of leaving too soon (2018)

Mirror Books

With four children (three of them triplets!) and a relationship break-up to contend with, some things get a little lost in the mix. Like symptoms. Emma Campbell bravely and honestly offers heartfelt thoughts on what happens when cancer becomes an unwelcome guest at an already crowded party. She shares her own terror and pain, mixed with the heartwarming and unexpected. The extraordinary kindness of people and the gritty detail of battling a life-threatening illness, all while being a single mum to four children. She opens up about her angels and demons, losing and then finding love again, a constant fear of death mixed with the joy and relief of living, the anxiety of cancer returning - then facing it when it does. This book has grown from Emma's blog Me And My Four. Eager to share with her followers in more detail, the secrets, the fears, the triumphs and the terrors that she faces each day, in a life as unpredictable as your own... (Publisher)

Cover image of 'On smaller dogs and larger life questions'

On smaller dogs and larger life questions (2018)

Virago Press (Little, Brown Book Group)

Coming up to her sixtieth birthday, Kate Figes found herself turning to the larger questions of family, love and life's meaning. It is like this author to examine different stages in writing, and her books - from new motherhood and adolescence to coupledom and infidelity - testify to this way of understanding herself and others: so naturally she turned to writing to explore the challenges of becoming sixty. And then - a horrible, and sudden diagnosis of breast cancer which had metastasised. Instead of a gentle journey into middle age, Kate Figes began to write for her life. Now, clawing back confidence and control was not just the ordinary business of these years: it was the only way to try and survive great pain and emotional turmoil. As her writing became an honest reflection on ageing, failing, regrets and the importance of childhood memory, friends, family and love she found a new determination to live to the full and about finding ways to face up to a shortened life expectancy with dignity. Original, passionate, funny and moving, On Smaller Dogs and Larger Life Questions will resonate with anyone dealing with the many griefs and freedoms of midlife. It is about living with a life-threatening disease but it is even more: an intelligent and passionate look at the way we can approach disappointment and trouble, friendship and love - every day. (Publisher)

Cover image of 'Managing pain in advanced prostate cancer'

Managing pain in advanced prostate cancer (May 2017)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer who are having problems with pain. It focuses on prostate cancer that has spread to the bones. It describes the types of pain and causes, and possible ways of treating and controlling pain.

Cover image of 'Pain and myeloma'

Pain and myeloma (June 2017)

Myeloma UK

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. It provides information on the different methods of pain treatment available, and gives guidance on non-medical strategies that may help to improve your pain and make living with pain a little easier.

Cover image of 'Treatments for advanced prostate cancer: treatments for bone pain and spinal cord compression explained'

Treatments for advanced prostate cancer: treatments for bone pain and spinal cord compression explained (October 2017)

Prostate Scotland

This booklet is to help you, your spouse or partner and your family understand more about treating pain in your bones from prostate cancer; it explains  what the treatments are, how these are given and some of the potential side-effects.

Cover image of 'Worried about the symptoms of ovarian cancer?'

Worried about the symptoms of ovarian cancer? (July 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Somali]'

Worried about the symptoms of ovarian cancer? [Somali] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Punjabi]'

Worried about the symptoms of ovarian cancer? [Punjabi] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Urdu]'

Worried about the symptoms of ovarian cancer? [Urdu] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Advanced prostate cancer. Managing symptoms and getting support'

Advanced prostate cancer. Managing symptoms and getting support (March 2017)

Prostate Cancer UK

This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.

Cover image of 'Worried about the symptoms of ovarian cancer? [Arabic]'

Worried about the symptoms of ovarian cancer? [Arabic] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Bengali]'

Worried about the symptoms of ovarian cancer? [Bengali] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Polish]'

Worried about the symptoms of ovarian cancer? [Polish] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Chinese, Cantonese]'

Worried about the symptoms of ovarian cancer? [Chinese, Cantonese] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Welsh]'

Worried about the symptoms of ovarian cancer? [Welsh] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Gujarati]'

Worried about the symptoms of ovarian cancer? [Gujarati] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Worried about the symptoms of ovarian cancer? [Hindi]'

Worried about the symptoms of ovarian cancer? [Hindi] (June 2017)

Target Ovarian Cancer

This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.

Cover image of 'Signs and symptoms of cancer and how to reduce your risk'

Signs and symptoms of cancer and how to reduce your risk (March 2017)

Macmillan Cancer Support

This leaflet explains how to recognise the early signs of cancer and how to reduce the risk. It describes the symptoms to look out for (unexplained bleeding, weight loss, lumps, pain) and how to reduce the risk by making lifestyle changes (smoking, diet, exercise, alcohol drinking and taking care in the sun).

Cover image of 'Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis'

Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis (2017)

Johns Hopkins University Press

The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)

Cover image of 'Fast facts: Chronic and cancer pain'

Fast facts: Chronic and cancer pain (2017)

Health Press

All health professionals, regardless of specialty, will care for patients with pain that has persisted for more than 6 months. This fully updated fourth edition of Fast Facts: Chronic and Cancer Pain, written by two internationally renowned experts in the field, is designed to bring busy health professionals up to speed with the latest information in this area, including: easy-to-read overviews of pain mechanisms; a practical approach to pain assessment; developments in stepped care and multimodal management; the latest thinking on opioids. With health services around the world responding to calls to improve the management of painful long-term conditions, develop preventive and cost-effective solutions, and respond to patient choice and voice, this easy-to-read fact-packed book is essential reading for all GPs, nurses, junior hospital doctors, physical therapists, clinical psychologists, occupational therapists, pharmacists, medical specialists and medical students wanting – and needing – to know more. (Publisher)

Cover image of 'The little c'

The little c (2017)

Self-published using CreateSpace Independent Publishing Platform

On a chilly, damp, foggy, September morning, Charlie slowly walks into the downstairs brightly lit florescent kitchen. His eyes react to the light reflecting off the large white cabinets. He touches the tender swollen lump under the left side of his neck and winces in pain. Charlie knows that something is wrong with him. He’s afraid to tell his mom and dad for fear that learning what may be causing the lump in his neck may be related to the sickness he almost died from when he was born. He doesn’t want to put his family through the stress and uncertainty that they went through twelve years ago. But he knows if he doesn’t say something, his parents may never forgive him. (Publisher)

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