The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Self-published using CreateSpace Independent Publishing Platform
The Pink Moon Lovelies are members of the Facebook group Beyond the Pink Moon, named after Nicki Boscia Durlester’s memoir that intimately chronicles her journey after a breast cancer diagnosis. Nicki created the group to provide an active forum for discussion to raise awareness about the BRCA gene and breast and ovarian cancer. She never dreamed her homespun story would travel around the globe and Beyond the Pink Moon would become a support group for people from all walks of life coming together to lift each other up with inspiration, humor, faith and love. With Lovelies in Australia, Canada, England, France, Ireland, Israel, Mexico, Namibia, New Zealand, Singapore, Slovakia, South Africa, Sweden, Tasmania and the USA, Nicki, a BRCA2 survivor, and fellow moderator, Melissa Johnson Voight, a BRCA1 previvor, whose journey of steadfast faith and courage of conviction is included in this book, have encouraged their members to tell their stories with one goal in mind, to save lives. With a Foreword written by renowned breast surgeon, Dr. Kristi Funk, this riveting collection of 50 stories includes: the unflinching account of Barbie Ritzco, a United States Marine who kept silent about discovering a lump in her breast in order to deploy with her unit to Afghanistan, putting her country before her health, the moving story of Ally Durlester, Nicki’s daughter, a 25 year old BRCA2 previvor who will undergo prophylactic surgery to try to avoid the same fate as her mother, grandmother and six great-aunts who all had breast, ovarian or fallopian tube cancer, the frustrating story of Erika Grogin Lange, an Israeli Lovely and mother of five, whose nagging symptoms of fatigue, nausea and bloating went undiagnosed for months until she heard the shocking news that she had Stage III ovarian cancer, and the unpredictable journey of Susan Long Martucci, a two-time breast cancer survivor, disease free for 13 years, blindsided by another diagnosis. She is the beacon of hope who coined the term Pink Moon Lovelies. Each story is compelling and has an important message to impart. The Pink Moon Lovelies, Empowering Stories of Survival concludes with the story of the incomparable May Smith, the 32 year old South African Lovely who left a legacy of extraordinary courage, grace and love. Hers was a life well lived. When May sadly passed away on July 22, 2012 from breast cancer she left the Pink Moon Lovelies with one final message filled with wisdom and advice beyond her years. H
In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g
Self-published using CreateSpace Independent Publishing Platform
In this touching, frank and informative memoir, Nicki Boscia Durlester intimately chronicles her transformational journey after being diagnosed with breast cancer. Her story begins with her mother, who was diagnosed with the disease in 1962: a time when breast cancer was only discussed behind closed doors, and long before women took an active role in their diagnosis and treatment. Nicki provides unique insight into being part of a large Italian-American family afflicted with the BRCA2 gene, and shares poignant stories about her mother and aunts who faced breast and ovarian cancer with extraordinary grace and courage. Nicki writes candidly about her frustration in finding the right team of doctors as well as the highs and lows of her journey, sharing humor and heart along the way. She puts a human face on statistics ranking breast cancer as the second leading cause of cancer deaths in women in the United States. This deeply moving story of legacy, loss and ultimately survival is told through the eyes of a daughter who shared an unbreakable bond with her mother. As she travels the scary, unpredictable road through her own diagnosis, treatment and recovery, Nicki discovers the most difficult challenge she faces becomes the most spiritually transcendent experience of her life. This Special Edition of Beyond the Pink Moon includes an Afterword from the author. A portion of the proceeds from sales of this book will be donated to breast cancer research. (Publisher)
Vermilion (Random House)
As a result of a genetically-transmitted gene, all three Bryan sisters, Felicity, Elizabeth and Bunny have had cancer. And, unusually, each of them suffered a different cancer; ovarian, breast and pancreatic. As the gene also has a dominant inheritance, half of their family members can be expected to carry it. Now, in a personal and deeply affecting memoir, Elizabeth writes of her family's extraordinary experience of this dreadful disease. Writing not only as a daughter, sister and aunt of those afflicted and bereaved by cancer, but as a sufferer herself, she will tell of the shocks, sadnesses, dilemmas and uncertainties that come with diagnosis and then treatment. Giving a personal view from both the perspective of a patient and that of a relative, as well as comparing the impacts of remission and terminal prognoses on herself and those around her, Singing the Life gives a uniquely wide-ranging account of dealing with life-threatening illness and the threat it still poses in her family. Eloquently setting Elizabeth's personal story against the universal fears, problems and worries that face those affected by cancer, this is an inspirational and encouraging read unlike any other on the subject. (Publisher)
Christie Hospital NHS Trust
This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.
Children's Cancer and Leukaemia Group
This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.
PCaSO Prostate Cancer Support Network
This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.
Lymphoedema Support Network
Guidance for people with lymphoedema.
The Oesophageal Patients Association
This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.
Pancreatic Cancer UK
This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy.