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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Lymphoma Action
Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).
Lymphoma Action
CAR T-cell therapy, is a type of targeted treatment used for certain types of high-grade (fast-growing) lymphoma. This factsheet explains what CAR T cells are, who can have them and how they are given, the benefits, and the possible side effects.
Lymphoma Action
This factsheet is about clinical trials for lymphoma: what they are, why they are done, how they are organised and what they involve for those who take part.
Lymphoma Action
The death of someone you love can be extremely difficult to deal with and the mix of feelings that accompany such loss can feel overwhelming. Even if the person was unwell for a while, it can still be a shock. We all have our own ways of grieving. While nobody can take away the pain, there is support available to help you cope. Contents: What is grief?; Feelings you might experience when someone you love dies; Interactions with other people; Frequently asked questions about bereavement, loss and grief; How can I help myself?.
Lymphoma Action
This information is about allogeneic (donor) stem cell transplants for people with lymphoma. It explains what a donor (allogeneic) stem cell transplant is, who might have one, what is involved, the risks and what happens afterwards?
Lymphoma Action
Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma.
Lymphoma Action
This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.
Lymphoma Action
Idelalisib is a targeted drug used in the treatment of certain types of lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.
Lymphoma Action
This factsheet is about stem cell transplants that use your own stem cells (autologous stem cell transplants). It covers: What is a self (autologous) stem cell transplant?; Who might have one?; What does it involve?; What are the risks?; Follow-up; Recovery.
Lymphoma Action
Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.
Lymphoma Action
This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations
Lymphoma Action
Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.
Lymphoma Action
This booklet describes autologous stem cell transplant in detail.
Lymphoma Action
Lymphoma can put pressure on your relationships. This factsheet is for anyone affected by lymphoma, including family and friends of someone with a diagnosis. It offers tips to help you communicate well with the people around you.
Lymphoma Action
Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).
Lymphoma Action
This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.
Lymphoma Action
Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.
Lymphoma Action
General guidance on following a healthy diet, including how to eat well during your treatment for lymphoma. Contents: Why is a healthy diet important?; How can I eat well during treatment for lymphoma?; Frequently asked questions about diet and lymphoma
Lymphoma Action
This factsheet is about palliative care at the end of life. It covers: What is palliative care?; Who provides palliative care?; Frequently asked questions about palliative care at the end of life.
Leukaemia Care
Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.
Leukaemia Care
This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.
Lymphoma Action
Nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL) is an uncommon type of Hodgkin lymphoma. This factsheet covers: What is NLPHL?; Who gets NLPHL and why?; Symptoms; Diagnosis and staging; Outlook; Treatment; Relapse; Transformation; Research.
Lymphoma Action
Information about the causes of lymphoma, including age and sex, family history, immune system problems, infections, previous cancers, non-cancerous factors and other possible causes.
Lymphoma Action
This factsheet describes how the immune system is affected by lymphoma and how the immune system may be used to treat lymphoma.
Lymphoma Action
Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease. They are treated in the same way. CLL is used to refer to both forms in this booklet, except where there are important differences and SLL is discussed separately. This booklet explains what CLL is, how it is diagnosed and treated, and has tips on living with CLL.
Lymphoma Action
This factsheet about lymphoma in children (0 to 14 years old) is primarily intended for parents and carers and covers: What is lymphoma?; Types of lymphoma in children; Symptoms; Tests; Outlook; Treatment; Side effects and late effects of treatment; Relapsed and refractory lymphoma; After treatment; Further information and support.
CLIC Sargent|Lymphoma Action
Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.
Lymphoma Action
Having another long-term health condition, being older (over 60) or being frail can affect what treatment you may receive for your lymphoma. This factsheet covers the following topics: Common long-term health conditions; Lymphoma treatment and health conditions; Lymphoma treatment and age; Adapting treatment; Support; Understanding your treatment options.
Lymphoma Action
This factsheet explains why drug development takes so long, why drugs are so expensive and how you can find out if a drug might be funded on the NHS.
Lymphoma Action
Checkpoint inhibitors are a type of targeted drug used in the treatment of certain types of lymphoma. This factsheet explains what they are, who can have them and how they are given, the benefits and possible side effects.
Lymphoma Action
This information gives details about the symptoms of lymphoma and the possible reasons for them: B symptoms; swollen lymph nodes; fatigue; unexplained weight loss; night sweats; itching; fever; difficulty getting over infections; chest symptoms; abdominal (tummy) symptoms; pain; skin symptoms; brain and nerve symptoms; swelling in the arms or legs; anaemia (low red blood cells).
Lymphoma Action
Practical advice on issues that often concern teenagers and young adults (up to 24 years old) with lymphoma. It covers: After diagnosis; Where you will be treated; Your medical team; Looking after yourself; School, university and work; Relationships; After treatment.
Lymphoma Action
This booklet aims to explain what clinical trials are and what they might involve. It also describes some recent trials of importance for people with lymphoma. It includes the personal experiences of four people who took part in clinical trials for lymphoma.
Lymphoma Action
A factsheet for young people up to the age of 24. It covers the different types of lymphoma in young people, their symptoms, the tests needed, treatment options and their possible side effects, and what happens when treatment is finished.
Lymphoma Action
This factsheet has general guidance for coping with some of the symptoms of lymphoma, including: swollen lymph nodes; fatigue; weight loss; night sweats; itching; pain; skin symptoms; swollen arms or legs; and coping with your emotions.
Lymphoma Action
This factsheet covers common practical concerns of parents and carers looking after children and young people with lymphoma: When your child is diagnosed; Telling your child; Where your child will be treated; Changes to expect at home; If your child becomes unwell at home; Your child’s diet during treatment; Going back to school; Looking after yourself; Further information and support.
Lymphoma Action
This factsheet explains what the immue system is, how it works and the different types of cells.
Lymphoma Action
Some people with lymphoma need an infusion of immunoglobulins to strengthen their immune system if their own antibody levels are low. People with chronic lymphocytic leukaemia (CLL) or who have had an allogeneic (donor) stem cell transplant are most likely to have this treatment. This factsheet explains what immunoglobulin replacement therapy id, who might need it, how it is gives, possible side effects, and what happens after treatment.
Lymphoma Action
If you have lymphoma, your care and treatment are planned and managed by a team of health professionals, known as a multi-disciplinary team (MDT). This factsheet covers the multi-disciplinary team, key workers, and MDT members.
Lymphoma Action
This factsheet explains why watchful waiting may be appropriate for some types of lymphoma and aims to answer some of the questions people might have: What is active monitoring? Why is active monitoring done? Who might have active monitoring? What happens on active monitoring? When does treatment start? Living on active monitoring.
Lymphoma Action
This factsheet about hairy cell leukaemia covers: What is hairy cell leukaemia?; Who gets hairy cell leukaemia and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Follow-up; Relapse; Research and targeted treatments; Hairy cell leukaemia (HCL) variant.
Lymphoma Action
It can be difficult waiting for test results. This factsheet considers topics such as: How long will I need to wait; Why do I need to wait; Coping with waiting.
Lymphoma Action
This factsheet aims to answer the most common questions that people with lymphoma have about blood transfusion, including what it is, who might need one, having a blood transfusion, safety, and irradiated blood.
Lymphoma Action
Early menopause is a side effect that can affect some women who have been treated for lymphoma. This factsheet answers some of the questions that women may have, including: what early menopause is; lymphoma and early menopause; likelihood of early menopause; smptoms; long-term effects; diagnosis; treatment; what women can do to help themselves; FAQs.
Lymphoma Action
This factsheet explains what to expect from follow-up appointments and how to prepare for them. It is relevant to people of all ages, although follow-up in children, teenagers and young adults may include some additional checks on development and growth. Contents: Follow-up after treatment; What are follow-up appointments for?; Before follow-up appointments; What happens at follow-up appointments?; When will my follow-up finish?.
Lymphoma Action
This factsheet describes the use of ultrasound scans in the diagnosis of lymphoma. It explains why the test is used and describes what happens during the scan.
Lymphoma Action
People with lymphoma are more likely to get infections than other people. This factsheet explains what signs of infection to look out for and what steps you can take to reduce your risk. Contents: What is infection?; Risk of infection; Signs of infection; What to do if you suspect an infection; Preventing infections; Food safety.
Lymphoma Action
Overview of scans (X-rays, Computed tomography (CT), Positron-emission tomography (PET), Magnetic resonance imaging (MRI)), including what happens before, during and after each procedure.
Lymphoma Action
This factsheet is about radiotherapy treatment for lymphoma. Contents include: Quick overview; What is radiotherapy?; Radiotherapy for lymphoma; Types of radiotherapy; Where will I have radiotherapy?; Radiotherapy dose; Planning radiotherapy; Having radiotherapy; Side effects; Late effects; Follow-up; FAQs.
Lymphoma Action
Lymphoma treatment may cause nausea and vomiting (sickness). This factsheet has practical advice to help manage and cope with these side effects, including: sickness as a side effect of chemotherapy, radiotherapy, and biological therapy; acute, anticipatory and delayed sickness; managing sickness; tips to help with eating and drinking; other practical suggestions.
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