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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 8

Cover image of 'Clinical trials in MDS. Information for patients and family members'

Clinical trials in MDS. Information for patients and family members (February 2019)

MDS UK

This factsheet explains clinical trials, and has details of trials currently open to people with myelodysplastic syndrome.

Cover image of 'Azacitidine for acute myeloid leukaemia (AML). A guide for patients'

Azacitidine for acute myeloid leukaemia (AML). A guide for patients (June 2019)

Leukaemia Care

Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.

Cover image of 'Myelodysplastic syndromes (MDS)'

Myelodysplastic syndromes (MDS) (March 2019)

Blood Cancer UK

This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Nutrition information and advice and neutropenic diets'

Nutrition information and advice and neutropenic diets (April 2016)

MDS UK

Guidelines and tips to help people with myelodysplastic syndrome eat healthily.

Cover image of '100 questions and answers about myelodysplastic syndromes'

100 questions and answers about myelodysplastic syndromes (2015)

Jones and Bartlett Publishers

Newly revised and updated, "100 questions & answers about myelodysplastic syndromes" provides authoritative and practical answers to the most common questions asked by patients and their loved ones. What is myelodysplastic syndromes (MDS)? What causes MDS? Is MDS hereditary, and will I give it to my children? Written by experts in the field, and with commentary from actual patients, this guide is the only text available to provide both the doctor's and patient's views. It is an invaluable resource for anyone struggling with the medical, physical, and emotional turmoil of this disease. (Publisher)

Cover image of 'Understanding myelodysplastic syndromes'

Understanding myelodysplastic syndromes ()

MDS UK|Leukaemia Care|Bloodwise

This booklet has been written to help people understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It also provides information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Hereditary phaeochromocytomas and paranganglioma syndromes [PPGL syndromes]'

Hereditary phaeochromocytomas and paranganglioma syndromes [PPGL syndromes] (August 2020)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

PPGL syndromes are conditions that may cause tumours called paraganglioma or phaeochromocytoma. This booklet describes their diagnosis and treatment and also covers issues such as genetic testing and emotional wellbeing.

Cover image of 'MEN 1. Patient information. Multiple endocrine neoplasia type 1'

MEN 1. Patient information. Multiple endocrine neoplasia type 1 (August 2019)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet has been written for people with MEN by people with MEN. It explains what MEN 1 is, how it is diagnosed, and the three main types of tumours associated with it: parathyroid tumours, pituitary tumours, and pancreatic islet cell tumours. Each section includes information about the tests that may be carried out and the treatment options.

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