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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 402

Cover image of 'Having tests for prostate cancer'

Having tests for prostate cancer (May 2018)

Macmillan Cancer Support

This booklet is for men who may be having tests for prostate cancer; these may be diagnostic (DRE, PSA, PCA3, TRUS, biopsy, MRI) or tests that may be carried out to determine the stage and grade of prostate cancer (Isotope bone scan, X-rays, MRI and CT scans). It also covers issues such as waiting for test results and talking to healthcare staff. Includes a list of questions to ask and details of further support.

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (November 2018)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'Future treatments in acute myeloid leukaemia (AML). A guide for patients'

Future treatments in acute myeloid leukaemia (AML). A guide for patients (October 2018)

Leukaemia Care

The main treatment for acute myeloid leukaemia (AML) is chemotherapy, including targeted therapy. This might be followed by a stem cell transplant, and surgery and radiotherapy may be used in special circumstances. New therapies are being developed and investigated and this booklet describes several of these: clofarabine (DNA synthesis inhibitor); gilteritinib and quizartinib (tyrosine kinase inhibitors); venetoclax (B-cell lymphoma-2 (BCL2) inhibitor); and Vyxeos® (a combination of daunorubicin and cytarabine. 

Cover image of 'Things that are important to me. Sharing what is important to my healthcare team [Easy read]'

Things that are important to me. Sharing what is important to my healthcare team [Easy read] (June 2018)

Macmillan Cancer Support|ENABLE Scotland|CHANGE

It is helpful to tell your doctors and nurses what is important to you. This will help them give you the best care. You can use this book to write about what is important to you.

Cover image of 'Managing the late effects of head and neck cancer treatment'

Managing the late effects of head and neck cancer treatment (July 2018)

Macmillan Cancer Support

Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.

Cover image of 'What now? A practical guide for parents and carers'

What now? A practical guide for parents and carers (February 2018)

CLIC Sargent

A booklet for parents of children diagnosed with cancer.

Cover image of 'Your child's health team (children with a brain tumour)'

Your child's health team (children with a brain tumour) (February 2018)

The Brain Tumour Charity

This factsheet outlines the roles of some of the health care professionals who may be part of a child’s multidisciplinary team.

Cover image of 'Clinical trials. Your questions answered'

Clinical trials. Your questions answered (June 2018)

The Royal Marsden NHS Trust

This booklet uses a question and answer format to help people with cancer decide whether to participate in a clinical trial of cancer treatment. It includes sources of further information and support.

Cover image of 'Breast cancer'

Breast cancer (2018)

Oxford University Press

Breast Cancer: The Facts provides essential, easy to follow information on all aspects of the diagnosis and management of breast cancer. It provides essential background information on the disease, from the ways breast problems are investigated, through treatment options and new therapies, to follow-up processes after remission. Fully updated to cover new and emerging therapies in breast cancer, this second edition also features new chapters on treating special or unusual types of breast cancer; surviving and thriving post-treatment; and coping and support strategies for the partners, families, friends, and colleagues of the person diagnosed with breast cancer. Each chapter is enriched with resources such as websites, links to videos, and care plans so the reader can explore relevant topics in greater detail. Written by specialists in breast cancer, the focus is on the whole patient, their family, and social networks, to make this book a holistic guide to better health at and after diagnosis with the disease, equipping patients affected by breast cancer and their families to be able to ask their health care team the questions they need to have answered to make informed decisions about their treatment. (Publisher)

Cover image of 'Never too young to grieve. Supporting children under 5 after the death of a parent'

Never too young to grieve. Supporting children under 5 after the death of a parent (2018)

Winston's Wish

A child’s early years are a time of development and change which helps shape the rest of their life. From newborn babies needing constant attention and care to curious children seeking new experiences, an immense amount of learning and change happen during this short period of time. A key focus of early childhood is the relationships that children form with the important people in their lives — usually parents, carers and siblings. Most children will form a strong, secure bond with these people, which enables them to feel safe, and encourages the curiosity that helps them to explore their world. Bereavement during a child’s early years interrupts the attachment that they have with that person. In the absence of strong memories of their own, it can be hard for a young child to remember the person who has died and to feel connected to them. This booklet is designed for parents, carers, childcare professionals and other adults supporting children up to the age of 5 who have experienced the death of a parent or carer. It offers information and ideas as well as some activities which we hope will benefit children and their families. (Publisher)

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child'

Follow the child. Planning and having the best end-of-life care for your child (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'Planning for the final stages of a long-term lung condition'

Planning for the final stages of a long-term lung condition (March 2018)

British Lung Foundation

This information is for people with a long-term lung condition who are coming to the end of their life. It is also for those who are close to them, including their carers, family and friends.

Cover image of 'The carer's bible'

The carer's bible (2018)

Souvenir Press

This accessible and detailed guide includes practical tips, checklists for best practice, descriptions of their experience from a wide range of carers that addresses solutions to common problems, and expert advice on how to deliver compassionate and dignified care to older people. Uniquely, Amanda Waring also provides support and guidance for the carer, how to maintain energy and commitment, how to recognize signs of compassion fatigue and where carers can get help if they need it. The Carer's Bible is an invaluable, inspiring guide to how to give your loved one the best possible care while addressing the anxieties that all carers suffer. (Publisher) 

Cover image of 'Before I go. The essential guide to creating a good end of life plan'

Before I go. The essential guide to creating a good end of life plan (2018)

Findhorn Press

A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)

Cover image of 'Taking care in the sun and hot weather'

Taking care in the sun and hot weather (November 2017)

Cheshire and Wirral Partnership NHS Foundation Trust

Easy read information on taking care in the sun.

Cover image of 'Skin care'

Skin care (May 2017)

Colostomy UK

Details of companies that supply skin products to help people with a stoma manage their condition.

Cover image of 'Primary bone cancer. An overview of the disease, diagnosis and treatment'

Primary bone cancer. An overview of the disease, diagnosis and treatment (February 2017)

Bone Cancer Research Trust

This factsheet describes primary bone caner, the types, who it affects, symptoms, causes and risk factors, diagnosis, treatment, follow-up care, and rehabitation and support.

Cover image of 'Side effects of cancer treatment'

Side effects of cancer treatment (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment.

Cover image of 'The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people  affected by a brain tumour'

The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people affected by a brain tumour (January 2017)

Brainstrust

A directory of support services and resources for people with a brain tumour in Aberdeen, The Highlands and surrounding areas.

Cover image of 'Paclitaxel (Taxol)'

Paclitaxel (Taxol) (November 2017)

Breast Cancer Care

This factsheet explains briefly what Taxol® is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Breast prostheses, bras and clothes after surgery'

Breast prostheses, bras and clothes after surgery (December 2017)

Breast Cancer Care

This booklet provides practical information about breast prostheses (artificial breast forms), bras and clothes for women who have had surgery for breast cancer. Includes photographs, quotes from women, and details of suppliers.

Cover image of 'Health promotion'

Health promotion (May 2017)

Action Cancer

Z-card with information about how to reduce the risk of cancer via making lifestyle changes, including healthy eating, physical activity, smoking, alcohol drinking and taking care in the sun. Also has information about services offered by Action Cancer.

Cover image of 'Secondary breast cancer in the liver'

Secondary breast cancer in the liver (March 2017)

Breast Cancer Care

This booklet is for anyone diagnosed with secondary cancer in the liver that has spread from the breast. It describes what secondary breast cancer in the liver is, the possible symptoms and how they can be managed, the investigations that might be needed, and the treatment options.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'Invasive lobular breast cancer'

Invasive lobular breast cancer (December 2017)

Breast Cancer Care

This leaflet discusses the main aspects of invasive lobular breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Pain and myeloma'

Pain and myeloma (June 2017)

Myeloma UK

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. It provides information on the different methods of pain treatment available, and gives guidance on non-medical strategies that may help to improve your pain and make living with pain a little easier.

Cover image of 'Low-grade non-Hodgkin lymphoma'

Low-grade non-Hodgkin lymphoma (September 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.

Cover image of 'My care, my future. A guide for women living with incurable ovarian cancer'

My care, my future. A guide for women living with incurable ovarian cancer (May 2017)

Target Ovarian Cancer

This guide has been written to help women deal with the challenges of living with ovarian cancer that is terminal.

Cover image of 'Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer'

Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer (September 2017)

Children's Cancer and Leukaemia Group

Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (April 2017)

Kidney Cancer UK

This booklet has information about kidney cancer, including the symptoms, diagnosis, staging and grading, and the treatment options. It also briefly discusses life with kidney cancer, including feelings, day-to-day living, money, and support. Includes sources of further information and a glossary.

Cover image of 'High-grade non-Hodgkin lymphoma'

High-grade non-Hodgkin lymphoma (June 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.

Cover image of 'Family history, genes and breast cancer'

Family history, genes and breast cancer (March 2017)

Breast Cancer Care

This booklet explains what a family history of breast cancer is, and what this may mean for you or your family.

Cover image of '12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer'

12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer (January 2017)

Cancer Focus Northern Ireland

Information to help you to lower your risk of cancer and improve your health.

Cover image of 'Advanced prostate cancer. Managing symptoms and getting support'

Advanced prostate cancer. Managing symptoms and getting support (March 2017)

Prostate Cancer UK

This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.

Cover image of 'Side effects of cancer treatment'

Side effects of cancer treatment (March 2017)

Macmillan Cancer Support

An overview of some of the more common side-effects that might happen with cancer treatments: bone marrow and blood, fatigue, mouth problems, nausea and vomiting, diarrhoea and constipation, eating problems, skin, fertility, sex life, hormonal changes. The booklet suggests ways of dealing with them.

Cover image of 'Breast awareness and screening'

Breast awareness and screening (May 2017)

Action Cancer

This leaflet describes when and how to check the breasts for changes and what to look for. It briefly explains what a mammogram is. Contains information on local services and describes the work of Action Cancer in Northern Ireland.

Cover image of 'All about leukaemia [Easy read] [Urdu]'

All about leukaemia [Easy read] [Urdu] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Polish]'

All about leukaemia [Easy read] [Polish] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Welsh]'

All about leukaemia [Easy read] [Welsh] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Gujarati]'

All about leukaemia [Easy read] [Gujarati] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Bengali]'

All about leukaemia [Easy read] [Bengali] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Punjabi]'

All about leukaemia [Easy read] [Punjabi] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Signs and symptoms of cancer and how to reduce your risk'

Signs and symptoms of cancer and how to reduce your risk (March 2017)

Macmillan Cancer Support

This leaflet explains how to recognise the early signs of cancer and how to reduce the risk. It describes the symptoms to look out for (unexplained bleeding, weight loss, lumps, pain) and how to reduce the risk by making lifestyle changes (smoking, diet, exercise, alcohol drinking and taking care in the sun).

Cover image of 'A guide for people with cancer and dementia'

A guide for people with cancer and dementia (September 2017)

Macmillan Cancer Support|Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Information and advice on skin cancer for patients awaiting an organ transplant'

Information and advice on skin cancer for patients awaiting an organ transplant (February 2017)

British Association of Dermatologists

People who have had an organ transplant are more at risk of developing skin cancer. This leaflet aims to help you reduce your risk by taking good care of your skin in the sun.

Cover image of 'Cancer and dementia. A guide for carers'

Cancer and dementia. A guide for carers (September 2017)

Macmillan Cancer Support

This booklet is about cancer and dementia. It is for anyone who looks after a friend or family member who has both cancer and dementia. Living with two conditions can be very difficult for you and the person you care for. This booklet talks about some of the worries you may have and ways to cope. It also gives practical information about getting help and support.

Cover image of 'Understanding lung cancer'

Understanding lung cancer (December 2017)

Macmillan Cancer Support

This booklet has detailed information on the causes of lung cancer, symptoms, diagnosis, and treatment options. Includes information on clinical trials and issues such as feelings, talking to children, and financial support. 

Cover image of 'Mesothelioma'

Mesothelioma (November 2017)

British Lung Foundation

This booklet describes mesothelioma, the link with asbestos, who is at risk, the symptoms, diagnosis and treatment options. It also discusses financial support and end-of-life care. Includes a glossary of medical terms and further sources of support and information.

Cover image of 'Expectations of care for patients with a neobladder in the primary care setting'

Expectations of care for patients with a neobladder in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.

Cover image of 'Central venous access devices. A guide for patients receiving intravenous therapies'

Central venous access devices. A guide for patients receiving intravenous therapies (January 2017)

The Royal Marsden NHS Foundation Trust

This booklet explains what a central venous access device (CVAD) is and describes the advantages and disadvantages of the different types, namely peripherally inserted central catheters (PICCs); skin-tunnelled catheters; and implanted ports.

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