The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Penny Brohn UK
This booklet has been written for people affected by cancer or those wishing to reduce their risk of cancer. It contains general guidance and is not meant to be prescriptive. Everyone has unique nutritional requirements that depend, amongst other things, on genetic make up, medical history, stage of treatment, current state of health, and lifestyle, as well as tastes and preferences. The guidelines can be adapted to suit your own tastes and needs. If you have special dietary needs or problems with eating, swallowing, digestion, or weight loss you should seek further advice from a nutritionally-qualified health professional who has experience of working with people affected by cancer.
Hospitals are a constant presence in the lives of many people. Almost everyone will visit or go into hospital at some point in their life. This can be a confusing experience: the environment is strange, the daily routine is unfamiliar and it is hard to understand the medical language. Going into hospital is, in many ways, like visiting a foreign country. This book is your guide to the foreign land of the hospital. It provides clear, practical information about how hospitals work, who the staff are and the investigations and treatments you may receive. The book helps you understand hospital-speak by translating it into straightforward English. The book has been written by a consultant surgeon, a pharmacist and a psychologist who have all worked in hospitals for many years. If you are better informed and can understand concepts like choice, risk and benefit, you can work more effectively with your healthcare team to make the right decisions, and you will be better equipped to help yourself and your family. You will find this book an invaluable guide to a journey through the hospital. (Publisher)
Profile Books in association with The Welcome Collection
For most of human history, death was a common, ever-present possibility. It didn't matter whether you were five or fifty – every day was a roll of the dice. But now, as medical advances push the boundaries of survival further each year, we have become increasingly detached from the reality of being mortal. So here is a book about the modern experience of mortality – about what it's like to get old and die, how medicine has changed this and how it hasn't, where our ideas about death have gone wrong. With his trademark mix of perceptiveness and sensitivity, Atul Gawande outlines a story that crosses the globe, as he examines his experiences as a surgeon and those of his patients and family, and learns to accept the limits of what he can do. Never before has aging been such an important topic. The systems that we have put in place to manage our mortality are manifestly failing; but, as Gawande reveals, it doesn't have to be this way. The ultimate goal, after all, is not a good death, but a good life - all the way to the very end. Published in partnership with the Wellcome Collection, a free visitor destination that explores the connections between medicine, life and art. (Publisher)
Oxford University Press
Cervical cancer is an emotive disease with multiple connotations. It has stood for the horror of cancer, the curse of femininity, the hope of cutting-edge medical technologies and the promise of screening for malignant tumours. For a long time, this disease was identified with the most dreaded aspects of malignancies: prolonged invalidity and chronic pain, but also physical degradation, shame and social isolation. Cervical cancer displayed in parallel the dangers of being a woman. In the 20th century, innovations initially developed to control cervical cancer - radiotherapy and radium therapy, exfoliate cytology (Pap smear), homogenisation of the 'staging' of tumours, mass campaigns for an early detection of precancerous lesions of the cervix - set standards for diagnosis, treatment and prevention of other malignancies. In the late 20th century, cervical cancer underwent another important change. With the display of the role of selected strands of HPV (Human Papilloma Virus) in the genesis of this malignancy, it was transformed into a sexually transmitted disease. This new understanding of cervical cancer linked it more firmly with lifestyle choices, and thus increased the danger of stigmatisation of patients; on the other hand it opened the possibility for efficient prevention of this malignancy through vaccination. Ilana Lowy follows the disease from antiquity to the 21st century, focussing on the period since the mid-19th century, during which cervical cancer was dissociated from other gynaecological disorders and became a distinct entity. Following the ways in which new developments in science, medicine, and society have affected beliefs about medical progress and an individual's responsibility, gender roles, reproduction, and sex, Lowy demonstrates our understanding of what cervical cancer is, and how it can be prevented and cured. (Publisher)
What is it like to experience breast cancer? This book presents rare and valuable insights into the impact of diagnosis, treatment and prognosis from a woman who has experienced breast cancer as both patient and as health professional. It informs and educates readers about the psychological realities of living with breast cancer, of treatments such as surgery and radiotherapy, and the impact of social and historical attitudes to the breast and breast cancer on a woman's experience of the disease. The conflicts Cordelia Galgut experienced between conventional wisdom and her own first-hand experience are explored vividly and reflectively. (Publisher)
Breast Cancer Now
This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.
Pancreatic Cancer UK
This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy.
Comprehensive booklet for young people with lymphoma.
This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
PPGL syndromes are conditions that may cause tumours called paraganglioma or phaeochromocytoma. This booklet describes their diagnosis and treatment and also covers issues such as genetic testing and emotional wellbeing.