The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
If you have breathlessness, this booklet may be helpful for you. It’s aimed at people with a life-limiting or terminal illness and may be helpful at any stage of your illness. It describes things you can do yourself to manage breathlessness, and who can help you.
Together for Short Lives
Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child.
Olop and Flossie Publishing
What does the mother say to her six-year-old when she asks the question that no mother ever wants to be asked? How does the fourteen-year-old cope with the illness while struggling with the typical angst of a teenager? This book is about an ordinary family who is faced with extra-ordinary changes and challenges when the mother is diagnosed with a potentially life-limiting illness. IT (the illness) becomes the uninvited guest in the family and as the story develops the frustrations, anxieties and impact all become very real. (Publisher)
Jessica Kingsley Publishers
Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)
Southgate Publishers Ltd
Offers in-depth advice and guidance for adults about how to help children and young people deal with an expected death in the family. The book includes detailed sections on telling the children, questions children may ask, ways to encourage communication between adults and children, creating lasting memories together and dealing with death. The book will be of great help to adults going through this most difficult and painful time, It will also be a useful resource for professionals working with pre- and post-bereaved families. (Publisher)
Children's Cancer and Leukaemia Group
This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.
A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.
Macmillan Cancer Support
This booklet is for you if you may die in prison from a serious illness. It explains what might happen, how you may feel and what support is there to help you. There is some information about what will happen after your death and the support available for any family members and friends.
Cancer. It's a word associated with an unrivalled sense of dread, but also one that unites us in a variety of painful and unexpected ways. I, like many others, did my best to remain ignorant of the unpleasant truths surrounding this illness until at just the age of 19 I was diagnosed with Ewing's Sarcoma, a rare bone cancer. This compiled journal is a record of my experiences as part of a group that can often be underrepresented in the public's approach to cancer. Follow me from the beginning to the end of this at times dire journey, where I do my best to learn what I can to share with the world about how we can better fight this illness on the psychological plain. If you or a loved one are in a similar situation, or perhaps you're looking to simply satisfy morbid curiosity, then partake in a unique account on one young man's experience with one of humanity's greatest killers. (Author)
This guide is for people living with a terminal illness and their friends and family. It aims to helps you explore your care options. It explains what care may be available, what you can expect from it, and who to ask for help.