The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
This Infosheet explains that myeloma is not an ‘inherited’ cancer in the sense that most people understand the term, but that inherited genetic variations can affect a person’s risk of developing myeloma.
Macmillan Cancer Support
This booklet is for people who are worried that cancer might run in the family. It explains how genes work, the role of genes in the development of some cancers, how risk is inherited, and the role of genetic counselling and testing. It also includes information on preventing cancer and the role of genes in specific cancers (bowel, breast, ovarian). Includes details of useful organisations and other resources.
Macmillan Cancer Support
This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.
This infoguide has been written for myeloma patients. It may also be helpful for their families and friends. It aims to help people understand more about genetics, provide information about the types of genetic changes that can occur in myeloma, and answer some of the questions peopleu may have about how the genetics of myeloma may influence future treatment.
Breast Cancer Care
This booklet explains what a family history of breast cancer is, and what this may mean for you or your family.
In the last few years there has been a revolutionary increase in our knowledge of ovarian cancer management, from detection and genetics to surgery and novel targeted treatment approaches. This means that when it comes to detecting, diagnosing and treating women who have, or are suspected of having, ovarian cancer, there are significant opportunities for the well-informed healthcare professional to intervene in a meaningful way. This resource offers a comprehensive overview of all levels of care, summarizing the most recent advances and putting them in a clinically meaningful context. It answers important questions such as when to operate and when to treat with various modalities, both conventional and novel. We have striven to capture the key knowledge that a busy healthcare professional caring for patients with ovarian cancer needs, in a refreshingly readable concise format. (Publisher)
Target Ovarian Cancer
Women who have had a diagnosis of ovarian cancer may worry that other family members may be at risk. This guide explains what a family history of ovarian cancer means, whether family members are at risk of developing hereditary cancer, whether to have a genetic test, and the implications for you and your family if you do have hereditary ovarian cancer.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Advice for parents about how to talk to children and young people about the presence of a multiple endocrine neoplasia (MEN) gene in the family. It covers issues such as: What helps young people and children?; When is a good time to tell your children?; What information do you tell children?; Communication tips; What are children likely to know about genes and inheritance?; What helped parents talk to their children; Preparing to talk to your children; Benefits; Drawbacks.
Multiple myeloma accounts for approximately 0.8% of cancers worldwide, with about 114 000 new cases each year. Rapid progress is being made in the development of new treatments and, although myeloma is incurable at present, survival has almost tripled over the past 10 years and it is now projected that a third of patients will survive more than 10 years after diagnosis. Fast Facts: Multiple Myeloma and Plasma Cell Dyscrasias emphasizes the importance of early diagnosis for a favourable outcome, covers the ever-increasing role of genetics in diagnosis and treatment, and discusses new and gold-standard treatments. A chapter on supportive care also features and briefs the reader on long-term outcomes and quality of life issues. Although primarily intended for health care professionals, this highly readable resource may be of interest to patients wanting to know more about multiple myeloma and plasma cell dyscrasias. Written for doctors, read by patients too. (Publisher)
Vermilion (Random House)
As a result of a genetically-transmitted gene, all three Bryan sisters, Felicity, Elizabeth and Bunny have had cancer. And, unusually, each of them suffered a different cancer; ovarian, breast and pancreatic. As the gene also has a dominant inheritance, half of their family members can be expected to carry it. Now, in a personal and deeply affecting memoir, Elizabeth writes of her family's extraordinary experience of this dreadful disease. Writing not only as a daughter, sister and aunt of those afflicted and bereaved by cancer, but as a sufferer herself, she will tell of the shocks, sadnesses, dilemmas and uncertainties that come with diagnosis and then treatment. Giving a personal view from both the perspective of a patient and that of a relative, as well as comparing the impacts of remission and terminal prognoses on herself and those around her, Singing the Life gives a uniquely wide-ranging account of dealing with life-threatening illness and the threat it still poses in her family. Eloquently setting Elizabeth's personal story against the universal fears, problems and worries that face those affected by cancer, this is an inspirational and encouraging read unlike any other on the subject. (Publisher)