Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1755

Cover image of 'MEN 1. Patient information. Multiple endocrine neoplasia type 1'

MEN 1. Patient information. Multiple endocrine neoplasia type 1 (August 2019)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet has been written for people with MEN by people with MEN. It explains what MEN 1 is, how it is diagnosed, and the three main types of tumours associated with it: parathyroid tumours, pituitary tumours, and pancreatic islet cell tumours. Each section includes information about the tests that may be carried out and the treatment options.

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

Cover image of 'Working with your medical team'

Working with your medical team (2018)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet explores what the ideal medical team for MEN may look like, how you can tell if you are being cared for by an expert medical centre, and how to become an effective part of the team who are helping to keep you in the best health possible. 

Cover image of 'Signs and symptoms of pancreatic cancer'

Signs and symptoms of pancreatic cancer (August 2018)

Pancreatic Cancer UK

This factsheet describes the signs and symptoms of pancreatic cancer and endocrine tumours.

Cover image of 'Primary breast cancer information pack'

Primary breast cancer information pack (December 2018)

Breast Cancer Care

This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.

Cover image of 'MTC. Medullary thyroid cancer'

MTC. Medullary thyroid cancer (February 2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet explains what medullary thyroid cancer is, how it is diagnosed, the tests that may be carried out and the treatment options.

Cover image of 'Adrenal gland surgery'

Adrenal gland surgery (2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Information for anyone who may be about to have surgery to remove an adrenal gland. This leaflet explains what an adrenal gland is, why an operation may be needed, and who should care for you during your treatment.

Cover image of 'Hereditary phaeochromocytomas and paranganglioma syndromes [PPGL syndromes]'

Hereditary phaeochromocytomas and paranganglioma syndromes [PPGL syndromes] (August 2020)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

PPGL syndromes are conditions that may cause tumours called paraganglioma or phaeochromocytoma. This booklet describes their diagnosis and treatment and also covers issues such as genetic testing and emotional wellbeing.

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (May 2020)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

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