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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 36

Cover image of 'Words for wellbeing: using creative writing to benefit health and wellbeing'

Words for wellbeing: using creative writing to benefit health and wellbeing (2012)

Cumbria Partnership NHS Foundation Trust

Words for Wellbeing' is an edited collection of prose and poems from patients, health care staff, carers and the general public. The authors included in the book all have their own story to tell about how writing has helped improve their health and wellbeing. The contributors include people from across Cumbria and from ages 7 to 94 years old, and include emotional pieces about a variety of subjects, and includes a foreword is written by award-winning writer Jim Eldridge. There are 14 chapters, including one written by leading author Dr Gillie Bolton. (Publisher)

Cover image of 'Living with cancer: endings and beginnings'

Living with cancer: endings and beginnings (2012)

Dorset County Hospital NHS Foundation Trust

Six people (two men, four women) who had recently been treated for cancer at Dorset County Hospital met with writer Rosie Jackson for some creative writing workshops in October 2012. This booklet is their personal response to the experience of being diagnosed with cancer and going through treatment and its aftermath.

Cover image of 'Creative arts. Evidence-based information to help you self-manage your cancer experience'

Creative arts. Evidence-based information to help you self-manage your cancer experience (2019)

Penny Brohn UK

This evidence-based information sheet aims to provide clearly sourced and reliable information to help you make informed choices about the range of creative arts activities on offer to support people with cancer. 

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'Planning ahead for the end of life (Scotland) [in press]'

Planning ahead for the end of life (Scotland) [in press] (November 2019)

Macmillan Cancer Support and the Public Health Agency

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in Scotland. It is for anyone who wants to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. The booklet talks about the ways you can plan ahead, for example writing a will, or making a power of attorney or an advance directive. It also tells you how to talk about planning ahead with your family, friends and health and social care professionals.

Cover image of 'Managing your debt'

Managing your debt (September 2019)

Macmillan Cancer Support

This booklet is about managing your debt. It is for people with cancer and their partners, family, friends or carers. It could help if you are in debt now, or if you are worried that you may have debt in the future. It tells you who to contact for more information and support.

Cover image of 'Chemo companion. A friendly guide to chemotherapy and a collection of chemo stories'

Chemo companion. A friendly guide to chemotherapy and a collection of chemo stories (2019)

Rethink Street Publishing

This clear, concise book helps you to understand what chemotherapy may be doing to your body, your mind and your life. It gives you useful tips and information, practical advice and reassurance, and it reminds you that you are not alone. Part 1 is a brief GUIDE to the time before, during and after chemotherapy. It includes planning and preparation, common side effects, your thoughts and feelings, food and exercise, work and money issues, how you might feel after treatment, and where to find further help and support. Part 2 is a collection of STORIES based on true, real-life experiences of chemotherapy. Each one is candid and honest and shared in the spirit of kindness and friendship. Including an overly complicated salad, finding long lost relatives, flying paper aeroplanes, writing to new online pen-pals, and tips for friends who don't know what to say. (Publisher)

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'For Freddie. A mother’s final gift for her son'

For Freddie. A mother’s final gift for her son (2019)

Michael O'Mara Books Ltd

The inspirational memoir from the founder of the You, Me and the Big C podcast, Rachael Bland. Courageous and life-affirming, this is a mother's final gift to her son. In 2016, beloved broadcaster and journalist Rachael Bland was diagnosed with cancer. Shortly afterwards she made the brave decision to share her story, and she spoke with beautiful poignancy through her blog and podcast, You, Me and the Big C. Having been told that she only had a matter of months left to live and writing this in what were sadly her final days, Rachael brings her warmth, courage and humour to the page in this heart-warming and heart-breaking story. Part memoir, part advice, For Freddie beautifully encapsulates the grace and fearlessness in which Rachael lived her life. This is her legacy and an incredible final gift to her son. (Publisher)

Cover image of 'On smaller dogs and larger life questions'

On smaller dogs and larger life questions (2018)

Virago Press (Little, Brown Book Group)

Coming up to her sixtieth birthday, Kate Figes found herself turning to the larger questions of family, love and life's meaning. It is like this author to examine different stages in writing, and her books - from new motherhood and adolescence to coupledom and infidelity - testify to this way of understanding herself and others: so naturally she turned to writing to explore the challenges of becoming sixty. And then - a horrible, and sudden diagnosis of breast cancer which had metastasised. Instead of a gentle journey into middle age, Kate Figes began to write for her life. Now, clawing back confidence and control was not just the ordinary business of these years: it was the only way to try and survive great pain and emotional turmoil. As her writing became an honest reflection on ageing, failing, regrets and the importance of childhood memory, friends, family and love she found a new determination to live to the full and about finding ways to face up to a shortened life expectancy with dignity. Original, passionate, funny and moving, On Smaller Dogs and Larger Life Questions will resonate with anyone dealing with the many griefs and freedoms of midlife. It is about living with a life-threatening disease but it is even more: an intelligent and passionate look at the way we can approach disappointment and trouble, friendship and love - every day. (Publisher)

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