The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: Mindfulness exercises to mitigate physical and emotional pain Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being. (Publisher)
Sudden, severe ill health comes as a shock and presents several challenges, most notably, loss of confidence. Suddenly people are afraid to take exercise, have sex or even go to the shops. Their entire self-image takes a battering, and this roller-coaster of uncertainty often leads to anxiety and depression. This book looks at the learning curve involved in sudden and chronic illness, and explores key ways to build psychological resilience during this time of challenge. Whether it concerns cancer, heart disease, diabetes, or a mental health condition, it explores the common psychological issues that arise when someone’s usual health and routine are disrupted, and discusses the impact of illness on relationships and family. Drawing on CBT techniques, it offers practical self-help strategies to help deal with peoples changed expectations of themselves, and with the related lifestyle changes. (Publisher)
'How to be sick: A Buddhist-inspired guide for the chronically ill' and their caregiver is about living skilfully with the challenges of any chronic illness or condition. I wrote it for sufferers and for their caregivers (the latter includes people involved in hospice, chaplaincy, and elder care; for those interested in chronic illnesses and conditions (health professionals, family and friends); and for people interested in Buddhism (illness can function as a metaphor for suffering which, along with the cessation of suffering, is at the heart of the Buddha’s teaching). Chronic illnesses or conditions - such as arthritis, heart disease, and diabetes (three among dozens) - while not immediately life-threatening, are life-disrupting and stressful. The book is unique in that each chapter contains easy-to-learn tools and practices to help the chronically ill and their caregivers live skilfully, maintain equanimity, and even find joy despite the profound changes in their lives. A recurring theme in the book is that, although one’s body may be sick, one’s mind can be at peace. Some of the practices presented are traditionally Buddhist. Others I devised after becoming ill. Two are from the work of Byron Katie. Each practice is illustrated with examples from my own experience, so the book is also highly personal. The practices are intended to help with the following types of challenges: Suffering due to the relentlessness of physical symptoms; Blaming oneself for being sick; Cursory or dismissive treatment by doctors and medical professionals; The inability to visit with friends, participate in family gatherings, and take part in other social events; Feeling ignored by family or friends; Suffering due to uncertainty about the future; Coping with the disappointment of failed treatments; Caretaker burnout. At the end of the book is a handy reference guide, summarizing the specific tools and practices that can help with each of the above challenges. (Publisher)
Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease and are treated in the same way. CLL is used to refer to both forms of disease, except where there are important differences. This factsheet descrives what CLL is, who gets it, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapse, research and targeted treatments, transformation, and living with CLL
The Oesophageal Patients Association
This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.
Venetoclax is a targeted drug used in the treatment of certain types of low-grade (slow-growing) lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.
Macmillan Cancer Support
Hydroxycarbamide (also known as hydroxyurea) is used to treat chronic myeloid leukaemia, cervical cancer, and some pre-cancerous conditions. This factsheet describes how it is given and the possible side-effects.
A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.
Cancer. It's a word associated with an unrivalled sense of dread, but also one that unites us in a variety of painful and unexpected ways. I, like many others, did my best to remain ignorant of the unpleasant truths surrounding this illness until at just the age of 19 I was diagnosed with Ewing's Sarcoma, a rare bone cancer. This compiled journal is a record of my experiences as part of a group that can often be underrepresented in the public's approach to cancer. Follow me from the beginning to the end of this at times dire journey, where I do my best to learn what I can to share with the world about how we can better fight this illness on the psychological plain. If you or a loved one are in a similar situation, or perhaps you're looking to simply satisfy morbid curiosity, then partake in a unique account on one young man's experience with one of humanity's greatest killers. (Author)
Macmillan Cancer Support
This booklet is for you if you may die in prison from a serious illness. It explains what might happen, how you may feel and what support is there to help you. There is some information about what will happen after your death and the support available for any family members and friends.