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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 468

Cover image of 'Lucy and the good soldiers. A small person's guide to transplant'

Lucy and the good soldiers. A small person's guide to transplant (August 2016)

Anthony Nolan

Lucy's dad is diagnosed with leukaemia and has a stem cell transplant. Lucy tells you all about it in this colourful, illustrated booklet. 

Cover image of 'Healthy living. Healthy lifestyle advice for childhood cancer survivors'

Healthy living. Healthy lifestyle advice for childhood cancer survivors (June 2016)

Children's Cancer and Leukaemia Group

Healthy lifestyle advice for childhood cancer survivors. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Rare tumours'

Rare tumours (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet has brief information about rare tumours of childhood, including details of useful organisations.

Cover image of 'Posterior fossa syndrome'

Posterior fossa syndrome (May 2016)

Children's Cancer and Leukaemia Group

This factsheet has been written to help parents understand posterior fossa syndrome (PFS), the name given to a collection of symptoms that may occur together following surgery to the back of the brain. PFS is also sometimes known as cerebellar mutism syndrome. 

Cover image of 'Dexamethasone. Information for patients, parents and carers'

Dexamethasone. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet has information on the use of dexamethasone in children and young people with cancer. It also offers help to parents in managing the behaviour of children with cancer that requires regular steroids. 

Cover image of 'Neuroblastoma'

Neuroblastoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a neuroblastoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Retinoblastoma'

Retinoblastoma (October 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

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