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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Children's Cancer and Leukaemia Group
Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.
Children's Cancer and Leukaemia Group
This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.
Children's Cancer and Leukaemia Group
This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.
Children's Cancer and Leukaemia Group
Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.
Children's Cancer and Leukaemia Group
Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.
Together for Short Lives
Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child.
Macmillan Cancer Support
This booklet is about how cancer and its treatment can affect your fertility. It is for teenagers and young people who need information about this before, during or after cancer treatment, whether you are in a relationship or not and whatever your sexual orientation. It explains how cancer and cancer treatment may affect your fertility and has information about preserving your fertility, having fertility tests, fertility treatments and other options for having a child. It also tells you how to get more support.
The Brain Tumour Charity
This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.
Leukaemia Care
Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.
Headsmart
Brain tumours are relatively rare, but early diagnosis can save lives, which is why keeping track of any potential symptoms can help to make the most out of a doctor’s appointment and may lead to a quicker referral or better reassurance. You can use the diary at your appointment to describe the symptoms and explain your concerns.
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