Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1748

Cover image of 'The HPV vaccine for men who have sex with men'

The HPV vaccine for men who have sex with men (2019)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of 'Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends'

Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends (November 2019)

Marie Curie

Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.

Cover image of 'Living with a terminal illness. Support for you and those close to you [Welsh]'

Living with a terminal illness. Support for you and those close to you [Welsh] (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia Care

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'The HPV vaccine for men who have sex with men [Chinese, Simplified]'

The HPV vaccine for men who have sex with men [Chinese, Simplified] (2019)

NHS Health Scotland

This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.

Cover image of 'Living with an illness you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness you will probably die from. Work, money and getting the best out of life [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Myeloproliferative neoplasms'

Myeloproliferative neoplasms (January 2019)

Blood Cancer UK

This booklet describes the myeloproliferative disorders - a group of diseases that shares some common features. It covers polycythaemia vera, essential thrombocythaemia, and myelofibrosis, with information on causes, signs and symptoms, diagnosis, and treatment.

Cover image of 'How to do the bowel screening kit in Wales'

How to do the bowel screening kit in Wales (August 2019)

Cancer Research UK

A short, illustrated factsheet containing simple instructions and helpful hints on how to use a bowel screening kit. 

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'How to do the bowel screening kit in England'

How to do the bowel screening kit in England (August 2019)

Cancer Research UK

A short, illustrated factsheet containing simple instructions and helpful hints on how to use a bowel screening kit. 

Cover image of 'How to do the bowel screening kit in Scotland'

How to do the bowel screening kit in Scotland (August 2019)

Cancer Research UK

A short, illustrated factsheet containing simple instructions and helpful hints on how to use a bowel screening kit. 

Cover image of 'Myelodysplastic syndromes (MDS)'

Myelodysplastic syndromes (MDS) (March 2019)

Blood Cancer UK

This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (January 2019)

Blood Cancer UK

This booklet explains what acute myeloid leukaemia is, and describes the causes and the symptoms, and how it is diagnosed and treated.

Cover image of 'Chronic myeloid leukaemia (CML)'

Chronic myeloid leukaemia (CML) (January 2019)

Blood Cancer UK

This booklet explains what chronic myeloid leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Planning ahead for the end of life (Scotland)'

Planning ahead for the end of life (Scotland) (November 2019)

Macmillan Cancer Support and the Public Health Agency

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in Scotland. It is for anyone who wants to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. The booklet talks about the ways you can plan ahead, for example writing a will, or making a power of attorney or an advance directive. It also tells you how to talk about planning ahead with your family, friends and health and social care professionals.

Cover image of 'Your step by step guide to making a will'

Your step by step guide to making a will (November 2019)

Macmillan Cancer Support

This leaflet is a guide to making or updating your will. It is for anyone affected by cancer. It also explains how inheritance tax works, and who to contact for more information and support. 

Cover image of 'Planning ahead for the end of life. England and Wales'

Planning ahead for the end of life. England and Wales (November 2019)

Macmillan Cancer Support

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in England or Wales. It is for anyone who wants to plan ahead, whether they have a serious illness or not. 

Cover image of 'Managing breathlessness'

Managing breathlessness (March 2019)

Macmillan Cancer Support

This booklet is for people who have breathlessness due to cancer or its treatment. It includes information about breathing and relaxation exercises, treatments, practical tips for everyday living and a list of useful contacts for further information and support. It also includes a copy of the 'Relax and breathe' CD.

Cover image of 'Acute promyelocytic leukaemia (APL)'

Acute promyelocytic leukaemia (APL) (November 2019)

Blood Cancer UK

Acute promyelocytic leukaemia (APL) is a form of cancer affecting the stem cells that produce myeloid blood cells in the bone marrow. This booklet explains who gets APL and what causes it, and describes the signs and symptoms, the diagnosis, the two types of APL, the treatment options (including the long-term effects of treatment) and the prognosis.

Cover image of 'Chronic lymphocytic leukaemia (CLL)'

Chronic lymphocytic leukaemia (CLL) (July 2019)

Blood Cancer UK

This booklet explains what chronic lymphocytic leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (February 2019)

Blood Cancer UK

This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.

Cover image of 'How to stop smoking. It's never too late to  quit'

How to stop smoking. It's never too late to quit (February 2019)

British Lung Foundation

This booklet explains the benefits of stopping smoking and the steps you can take to quit. It will help you improve your health and quality of life for the future. 

Cover image of 'Exercise'

Exercise (July 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about how to reduce your risk of cancer. This booklet talks about different ways you can exercise.  

Cover image of 'Understanding melanoma. Lymph node assessment and treatment'

Understanding melanoma. Lymph node assessment and treatment (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has spread to the lymph nodes. 

Cover image of 'Understanding melanoma that has come back in the same area'

Understanding melanoma that has come back in the same area (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).

Cover image of 'A guide for the end of life'

A guide for the end of life (November 2019)

Macmillan Cancer Support

This booklet explains what happens at the end of someone’s life and how to plan for it. It is for anyone nearing the end of life. There is also information for people caring for someone nearing the end of life.

Cover image of 'Understanding melanoma and treatment with surgery'

Understanding melanoma and treatment with surgery (July 2019)

Macmillan Cancer Support

This booklet is about a type of skin cancer called melanoma. It includes information about melanoma, how it is diagnosed and how it is treated with surgery. 

Cover image of 'Going home from hospital'

Going home from hospital (March 2019)

Macmillan Cancer Support

This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.

Cover image of 'Move more. Your guide to becoming more active'

Move more. Your guide to becoming more active (January 2019)

Macmillan Cancer Support

Taking part in physical activity before, during and after cancer treatment can have many health benefits. It can help prevent and manage some of the effects of treatment, such as fatigue, depression and risks to your heart health. Lots of people say physical activity helps them feel more like they did before cancer. It can also help you take back control. This is your step-by-step guide to becoming more active. Here you will find tips on choosing which activity to do and where to get support. If you have not been active for a while or are new to being active, this guide will help you set realistic and achievable goals. We have included some tips to help you get started, information on how to set goals and an activity diary to help you keep track of how you are doing.

Cover image of 'Managing your debt'

Managing your debt (September 2019)

Macmillan Cancer Support

This booklet is about managing your debt. It is for people with cancer and their partners, family, friends or carers. It could help if you are in debt now, or if you are worried that you may have debt in the future. It tells you who to contact for more information and support.

Cover image of 'Stop smoking'

Stop smoking (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about how to reduce your risk of cancer. This booklet talks about smoking and tips for stopping.  

Cover image of 'Have safe sex'

Have safe sex (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about how to reduce your risk of cancer. This booklet talks about how to have safe sex.  

Cover image of 'Understanding advanced melanoma'

Understanding advanced melanoma (July 2019)

Macmillan Cancer Support

This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.

Cover image of 'Ten top tips for a healthy weight'

Ten top tips for a healthy weight (June 2019)

Cancer Research UK

Tips, based on scientific evidence, to help people control their weight by taking in fewer calories and using more energy. 

Cover image of 'Understanding breast screening'

Understanding breast screening (July 2019)

Macmillan Cancer Support

This booklet aims to help women understand why breast screening is carried out, the methods used, and what happens if an abnormality is detected. The advantages of screening as well as the difficulties are described. Includes details of useful organisations and other resources.

Cover image of 'Sorting out your financial affairs'

Sorting out your financial affairs (October 2019)

Macmillan Cancer Support

This booklet is for people affected by cancer who want to plan ahead. It can help you make choices about what will happen to your money and belongings. By planning ahead, you can save family or friends from tough decisions or financial difficulties in the future. This booklet also explains how to arrange for someone to help you if you become unable to look after your finances. 

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia Care

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'Having a biopsy'

Having a biopsy (November 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about the different types of biopsy and what happens.  

Cover image of 'Cervical screening'

Cervical screening (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about cervical cancer and what happens during cervical screening (a smear test).  

Cover image of 'You can be smoke free'

You can be smoke free (June 2019)

Cancer Research UK

Information on smoking and giving up for good.

Cover image of 'Managing your energy costs'

Managing your energy costs (September 2019)

Macmillan Cancer Support

This booklet has information about what to do about energy bills during cancer treatment. It explains how to look for cheaper alternatives, about government grants, payments and schemes that may help, the changes to make at home, and other support services available.

Cover image of 'Drink less alcohol'

Drink less alcohol (July 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about how to reduce your risk of cancer. This booklet talks about alcohol and how many units are in different drinks. 

Cover image of 'Having an x-ray'

Having an x-ray (November 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about different types of scans and x-rays and what might happen at the hospital. 

Cover image of 'Planning and managing your finances'

Planning and managing your finances (October 2019)

Macmillan Cancer Support

This booklet is about planning and managing your finances. Having cancer can mean you have extra costs, and affect how much money you have coming in (your income). This booklet can help you plan for these changes and manage your money. It is for anyone who wants to manage their spending, bills or bank accounts better, or is thinking of borrowing money.

Cover image of 'Having an endoscopy'

Having an endoscopy (November 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about what happens before, during and after en endoscopy. 

Cover image of 'Having a CT scan'

Having a CT scan (November 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet explaining what happens before and during a CT scan. 

Cover image of 'Be breast aware'

Be breast aware (May 2019)

Breast Test Wales

This illustrated leaflet tells women how to be breast aware, how to check their breasts and what to look out for.

Cover image of 'Having an ultrasound'

Having an ultrasound (November 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet explaining what happens during an ultrasound scan. 

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